This is a call for patient participation. We’re especially inviting members of our Society, but it’s open to anyone; feel free to circulate widely, especially to people with the conditions listed below!
First, a bit of background, then the request.
Regular readers know that the BMJ (formerly the British Medical Journal) is far and away the most participatory of all medical journals; it’s the global-level journal that has made important declarations about its patient partnership, and is genuinely doing the work. Click the image at left to visit their page, but in short, here are some of the remarkable things they’re doing to make healthcare – and their journal – truly see things from the patient’s perspective.
- A patient advisory panel (I’m on it)… and the editors actually ask us about policies and listen, like real peers(!)
- Other SPM members on the panel include Glyn Elwyn, Sara Riggare, and former board member Larry Chu (head of MedicineX)
- When authors of research papers upload an article, to ask for publication, they’re asked how they involved patients in selecting the research question, what outcomes to measure, even the design of the study(!)
- The answers are published along with the article. Isn’t that amazing?