by Susannah Fox | Oct 5, 2012
(A cross-post from susannahfox.com) I had the great honor of being part of the first Medicine X conference at Stanford University last weekend. I presented a sneak preview of new survey results collected by the Pew Internet Project and the California HealthCare...
by e-Patient Dave | Mar 16, 2012
Beyond question, the “gimme my damn data” rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his...
by e-Patient Dave | Mar 16, 2023
Update 3/19: We’ve opened a CaringBridge page for Casey, where her support team will post updates. You can subscribe to get notifications and to leave words of support, memories, etc. Anyone can view; posting requires free registration. This news hit us worse...
by Eric Bersh | Jan 4, 2023
A few years ago I learned that non-profit organizations MUST have a Scientific or Medical Advisory Board in order to be listed on NIH’s website as an informational resource for patients. Likewise, many foundation grants require a non-profit to have a similar...
by e-Patient Dave | Jan 31, 2019
Sara RIggare, one of the earliest members of our Society, has just received a great honor: Fokus magazine (“Sweden’s Time”) has named her “Swede of the Year” in medicine. In the photo from the award ceremony she seems appropriately...
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