Society for Participatory Medicine
e-patients.net blog
news & gossip, policy issues, trends & principles
CCHIT, PHR and the Lack of e-Patient Representation
Read Moree-patient stories, e-pts resources, positive patterns, reforming hc
An e-Patient discusses how technology helped him
Read Moree-patient stories, others' e-patient stories
E-patient Interview: Keith Schorsch
When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s the clue that saved Keith. Keith turned his experience into a consumer [...]
Read Morefound on the net
How do US journalists cover medical news?
A really interesting evaluation of 500 medical stories from the press covering treatments,tests, products & procedures is available at PLoS.
This should be required reading for anyone interested in the power of e-patient groups, since these groups very often debunk improperly reported news.
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