Society for Participatory Medicine
e-patients.net blog
policy issues
Taxpayer Access: The NIH Public Access Policy
“Taxpayer access” – the principle that American taxpayers should have free, timely, public access to the results of publicly funded research – would change the public access to scientific articles, and put critical biomedical research into the hands of those who need it.
Read Morefound on the net
Dr. Val Jones Leaves Revolution
Although not explicitly mentioned, it appears Dr. Val Jones, the Senior Medical Director at Revolution Health, has quietly left the company and is starting her own venture, Better Health. You can read an interview where she discusses her new life online, with not a single mention of her 2+ year efforts at Revolution. Rumor has it that Revolution actually terminated most of its relationships with medical staff, moving highly paid doctors like Dr. Val from full-time to a consulting role only. Glad to see her move on with her own “brand” and venturing out on her own!
Read Moretrends & principles
Pareto’s Tyranny vs. the Paradox of Rarity: Why ACOR succeeded
Why have rare diseases been so disproportionally represented in the online medical communities since we started creating these resources in the early 90s? Could the Pareto Principle be responsible for this unusual finding?
Read Morefound on the net, hc's problem list, news & gossip, policy issues, trends & principles
Cloud computing puts your health data at risk?
In today’s
Windows Secrets, Stuart Johnston writes about the pros and cons of having our health data out on the Internet, as proposed by Google Health and Microsoft HealthVault. Quotes: “Selling prescription records is a multibillion-dollar-a-year industry”; “Disclosure of health information is [already] out of control.” Yikes?
