Illness in the Age of ‘e’: A case study in participatory medicineComments on: -- http://e-patients.net/archives/2008/11/illness-in-the-age-of-e-a-case-study-in-participatory-medicine.html because health professionals can't do it alone Tue, 22 May 2012 03:29:30 +0000 hourly 1 By: SusannahFox http://e-patients.net/archives/2008/11/illness-in-the-age-of-e-a-case-study-in-participatory-medicine.html/comment-page-1#comment-50139 SusannahFox Thu, 18 Dec 2008 20:42:27 +0000 http://e-patients.net/?p=772#comment-50139 <span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@ePatientDave We also recommend watching the Dave & Danny show on video: A case study in participatory medicine http://tinyurl.com/69pn5r</span></span> @ePatientDave We also recommend watching the Dave & Danny show on video: A case study in participatory medicine http://tinyurl.com/69pn5r

]]> By: SusannahFox http://e-patients.net/archives/2008/11/illness-in-the-age-of-e-a-case-study-in-participatory-medicine.html/comment-page-1#comment-50140 SusannahFox Tue, 16 Dec 2008 13:50:03 +0000 http://e-patients.net/?p=772#comment-50140 <span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">#socialhealth e-patient Dave's use of PatientSite and ACOR http://tinyurl.com/69pn5r</span></span> #socialhealth e-patient Dave’s use of PatientSite and ACOR http://tinyurl.com/69pn5r

]]> By: Susannah Fox http://e-patients.net/archives/2008/11/illness-in-the-age-of-e-a-case-study-in-participatory-medicine.html/comment-page-1#comment-1656 Susannah Fox Tue, 25 Nov 2008 13:02:00 +0000 http://e-patients.net/?p=772#comment-1656 Thank you so much for editing the video for posterity, Dave! I was in the audience that day and am so glad that we can share the experience with other people. The segment I'm going to pick out as my favorite (first among equals) is Part 5: Audience Discussion. The first comment is inaudible, but I remember it was an audience member who simply said she wanted to recognize Dave for his bravery and applaud the presentation. The next comment is from Lena Sorenson, who asked about how the collaboration described by Danny and Dave can be replicated. How can the information flow not just between providers, but to the patient too? The third question is from Jamie Heywood of PatientsLikeMe, who points out that the value generated in this situation comes from the patient and his social network. The medical system is congratulating itself for stepping back, not stepping in, to save Dave's life. The internet allowed Dave to extract information ahead of the medical system and it's in fact an indictment of that system. Dave and Danny's answer spills into Part 6. It's all worth a listen. Thank you so much for editing the video for posterity, Dave! I was in the audience that day and am so glad that we can share the experience with other people.

The segment I’m going to pick out as my favorite (first among equals) is Part 5: Audience Discussion. The first comment is inaudible, but I remember it was an audience member who simply said she wanted to recognize Dave for his bravery and applaud the presentation.

The next comment is from Lena Sorenson, who asked about how the collaboration described by Danny and Dave can be replicated. How can the information flow not just between providers, but to the patient too?

The third question is from Jamie Heywood of PatientsLikeMe, who points out that the value generated in this situation comes from the patient and his social network. The medical system is congratulating itself for stepping back, not stepping in, to save Dave’s life. The internet allowed Dave to extract information ahead of the medical system and it’s in fact an indictment of that system. Dave and Danny’s answer spills into Part 6. It’s all worth a listen.

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