Your Health Information at Your FingertipsComments on: --

By: Communication, A Vital Skill for Participatory Medicine | e-Patients.net

Communication, A Vital Skill for Participatory Medicine | e-Patients.net — Mon, 08 Aug 2011 14:41:43 +0000

[...] also Nancy’s November 2008 post here about a recent [...]

By: Suresh Kumar

Suresh Kumar — Tue, 19 May 2009 18:12:23 +0000

Hi Nancy,

It’s great to hear that you have taken upon yourself to create and maintain your PHR. You must be the “1 in 1000″! How do we get the other 999 to do the same?

As a PHR technologist and a founder of a PHR startup, this is something I am working towards. Having been in Healthcare for quite sometime and hearing polticians, lawmakers and well wishers, I strongly believe the ONUS is on us (The Patient) to take charge and take care of themselves. The first step is to start and maintain their PHR.

Suresh
603-930-9451

By: bff

bff — Sun, 01 Feb 2009 19:58:26 +0000

Nancy, http://www.zweenahealth.com is a brand new company. As a reporter, I did an article on it and promptly signed up to be a beta tester. The client gives Zweena the contact info for the doctors, and Zweena elicits your medical records. A Zweena RN takes care of scanning or typing them in. The client doesn’t have to do that (a big plus). The client gets the access code to see ALL the records. For each doctor visit, the client notifies Zweena, and the circle continues.

I am no longer reporting on Zweena, now that I am a client.

By: Nancy Finn

Nancy Finn — Mon, 01 Dec 2008 14:25:07 +0000

BFF,

Sorry it has taken me so long to get back to you. I agree it is very difficult to get people to keep their PHR up to date. Thanks for mentioning Zweena. It is a service I had not come across and is very interesting. Can you give me more detail on how it works for you?

By: bff

bff — Tue, 18 Nov 2008 02:46:34 +0000

Nancy says “One would hope that the patient would be sincere and meticulous in creating the PHR and keeping it up to date.” I can count on myself to be sincere, but not I can’t count on myself to be meticulous. So I would rather pay for a service like Zweena, where trained professionals keep my records up to date for me.

By: Nancy Finn

Nancy Finn — Mon, 17 Nov 2008 20:05:08 +0000

Christine,

In answer to your questions:

1. There is no more guarantee that the information in an iHealth PHR is accurate than there is a guarantee that a patient’s medical history taken by a healthcare provider is accurate. One would hope that the patient would be sincere and meticulous in creating the PHR and keeping it up to date but that is never a sure thing.

2. I am not sure whether or not there are legal ramifications if the PHR is not accurate. It has to be viewed by the healthcare professional treating the patient as one information source among many including a real time interview with the patient. This is going to be a key question as more patients have PHRs whether through iHealth record, or other vendors who are entering this landscape.

By: Nancy Finn

Nancy Finn — Mon, 17 Nov 2008 19:50:42 +0000

Dave,

iHealthRecord is a good place where individuals can create their own PHR and keep it up to date. The objective is to get the doctor to join iHealth Record and add to PHR but that is not always feasible as many docs are resistent. As an early PHR solution for individual healthcare consumers the iHealth Record works well. With the advent of Google Health, Microsoft HealthVault and Dossia, the PHR world has now turned on its axis and it will be interesting to watch the many solutions unfold.

By: e-Patient Dave

e-Patient Dave — Mon, 17 Nov 2008 18:26:39 +0000

Thanks for the pointer to iHealthRecord. I hadn’t heard about that one, and I’m going to look into it.

By: ICMCC Newspage » Blog Archive » Your Health Information at Your Fingertips

Mon, 17 Nov 2008 15:31:14 +0000

[...] that she had not run into a patient with a PHR before and that she was clearly impressed.” Article Nancy Finn/Susannah Fox, e-patients.net, 16 November [...]

By: Christine Gray

Christine Gray — Sun, 16 Nov 2008 18:55:39 +0000

Thanks. I loved this post, being new to PHR’s and all.

Two questions:

1. What is the guarantee that the record is accurate?

2. What are the legal ramfications if something on the record is NOT accurate?