Society for Participatory Medicine
e-patients.net blog
positive patterns, pt/doc co-care, trends & principles
“Physicians are coaches. Patients are players.”
I don’t know who Stanley Feld is, but he just became my friend, with a terrific post on doctor as coach, patient as player. It starts: The role of patients with chronic diseases and their physicians must be clear to both patients and physicians. Physicians are coaches. Patients are players. This resonates with what’s become [...]
Read Moree-patient stories, positive patterns, reforming hc
Patient Voices at CHCF’s Chronic Disease Care Conference
This is the second in a series of posts about the California HealthCare Foundation’s Chronic Disease Care conference (the first was Happy Dogs in a Pile of Sticks). Patient Voices: Managing Chronic Conditions, Living our Lives Ted Eytan snapped a photo that captured this session: Patient Involvement Makes People Smile Here is each person’s story:
Read Moredemographics, e-patient stories
Women and Health Care Disparities: Who Dies and Who Profits?
Are women dying of cancer in the same way they die of heart disease, because physicians trivialize their complaints and they are powerless to get second opinions? How many decades has it taken for cardiologists, practitioners at the apex of medicine, to acknowledge that symptoms of heart disease for women may differ from those for men, and [...]
Read Morefound on the net
Malpractice cost impact
Your perspectives please? On my own blog a somewhat surprising discussion has started about the cost impact of malpractice issues, as part of the total American healthcare budget. I cited some Congressional Budget Office data and some newcomers have shown up. I’d very much appreciate further data; I’ll summarize here.
Read Moree-patient stories, hc's problem list, policy issues, reforming hc, understanding statistics
In the Spin II: You and Your Billing Code
Pass the Valium! Previously on e-Patients.net I recounted the crazy-making quest for a second opinion on an abnormal mammogram (microcalicifications) as per the advice of New York Times health columnist Jane E. Brody, a breast cancer survivor. The gynecologist who ordered the mammogram refused to authorize a second opinion, deferring to the radiologist, who referred [...]
Read Moredemographics, hc's problem list
NIH Summit on Health Disparities
NIH is sponsoring a summit this week, The Science of Eliminating Health Disparities. I heard about it from Mary Brophy Marcus’s article in USA Today and I found this press release online, but I haven’t seen other coverage of the event. If you spot stories about the summit in the news, on blogs, on Twitter, [...]
Read Morepatient networks, positive patterns, trends & principles
NeuroTalk Parkinson’s Group Brings About Change at Michael J. Fox Foundation
Our savvy e-patients over at NeuroTalk noticed the launch of a new service by the Michael J. Fox Foundation, one of the leading Parkinson’s disease advocacy and research organizations. The new service, called PD Online Research, is billed as a “new web community of scientists, industry professionals, grantmakers and financial investors dedicated to advancing the [...]
Read Morekey people, net-friendly docs
Breaking News at Hematology Meeting – for Patients
Andrew Schorr is the founder of Patient Power, LLC, and shares this dispatch, his second for e-patients.net: I had a whirlwind weekend at the Moscone Center in San Francisco where I broadcast five and a half hours of live interviews with leading hematologists and hematologist/oncologists on the latest news in a variety of chronic conditions. [...]
Read Morepolicy issues
Personalized Medicine, the Next Frontier
Nancy B. Finn is a journalist with an expertise in the implementation of digital communications in health care. This is her second guest post on e-patients.net: When an individual patient visits his or her doctor with a problem, traditional clinical diagnosis is made and treatment is administered based on the patient’s symptoms, medical and family [...]
Read Moregeneral, positive patterns, reforming hc
Saving Lives, Old-School Style
What if there was a simple, old-school style procedure that could save tens of thousands of lives every year? Better yet, what if it could be implemented at minuscule costs (about $3 million to rollout nationwide), and would require very little change in anyone’s procedure or daily lives? What if that procedure was something as [...]
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