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	<title>A thousand points of painComments on: --</title>
	<atom:link href="http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/feed" rel="self" type="application/rss+xml" />
	<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html</link>
	<description>because health professionals can&#039;t do it alone</description>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-50021</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Fri, 24 Jul 2009 06:07:59 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-50021</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@serious_skeptic Nope, didn&#039;t just wake up... Being facetious, faux amazed. (My realization post 2/09: http://is.gd/1JxWl)&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@serious_skeptic Nope, didn&#8217;t just wake up&#8230; Being facetious, faux amazed. (My realization post 2/09: <a href="http://is.gd/1JxWl" rel="nofollow">http://is.gd/1JxWl</a>)</span></span></span></p>
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		<title>By: slpeterson</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-55907</link>
		<dc:creator>slpeterson</dc:creator>
		<pubDate>Mon, 11 May 2009 20:00:48 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-55907</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Health care reform: a thousand points of pain http://bit.ly/5zxdt&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Health care reform: a thousand points of pain <a href="http://bit.ly/5zxdt" rel="nofollow">http://bit.ly/5zxdt</a></span></span></span></p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-50022</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Sat, 18 Apr 2009 03:07:46 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-50022</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@staticnrg See my Thousand Points of Pain post. http://tinyurl.com/b5rnfr&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@staticnrg See my Thousand Points of Pain post. <a href="http://tinyurl.com/b5rnfr" rel="nofollow">http://tinyurl.com/b5rnfr</a></span></span></span></p>
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		<title>By: Imagine if someone had been managing your data, and then you looked. &#124; e-Patients.net</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-14443</link>
		<dc:creator>Imagine if someone had been managing your data, and then you looked. &#124; e-Patients.net</dc:creator>
		<pubDate>Wed, 01 Apr 2009 14:56:01 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-14443</guid>
		<description>[...] systems, and I assert that the industry ain’t getting’ it done on their own. As I said in my Thousand Points of Pain post (cross-posted on IBM’s Smarter Planet blog), it’s fine with me if industry vendors come [...]</description>
		<content:encoded><![CDATA[<p>[...] systems, and I assert that the industry ain’t getting’ it done on their own. As I said in my Thousand Points of Pain post (cross-posted on IBM’s Smarter Planet blog), it’s fine with me if industry vendors come [...]</p>
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		<title>By: A Business Thinker Asks: What Will It Take To Get Traction? (Guest post from e-Patient Dave) &#124; A Smarter Planet</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-14288</link>
		<dc:creator>A Business Thinker Asks: What Will It Take To Get Traction? (Guest post from e-Patient Dave) &#124; A Smarter Planet</dc:creator>
		<pubDate>Tue, 31 Mar 2009 23:16:07 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-14288</guid>
		<description>[...] http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html [...]</description>
		<content:encoded><![CDATA[<p>[...] <a href="http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html" rel="nofollow">http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html</a> [...]</p>
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		<title>By: Gregg Masters</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-50023</link>
		<dc:creator>Gregg Masters</dc:creator>
		<pubDate>Fri, 27 Feb 2009 00:00:37 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-50023</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @ePatientDave: #ths Dammit, go read Thousand Points of Pain post http://is.gd/jOvl.  If vendors won&#039;t untangle themselves, empower pts!&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @ePatientDave: #ths Dammit, go read Thousand Points of Pain post <a href="http://is.gd/jOvl" rel="nofollow">http://is.gd/jOvl</a>.  If vendors won&#8217;t untangle themselves, empower pts!</span></span></span></p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-50024</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Fri, 27 Feb 2009 00:00:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-50024</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;#ths Dammit, go read Thousand Points of Pain post http://is.gd/jOvl.  If vendors won&#039;t untangle themselves, empower pts!&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">#ths Dammit, go read Thousand Points of Pain post <a href="http://is.gd/jOvl" rel="nofollow">http://is.gd/jOvl</a>.  If vendors won&#8217;t untangle themselves, empower pts!</span></span></span></p>
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		<title>By: Disruption and the healthcare bubble &#124; e-Patients.net</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-8499</link>
		<dc:creator>Disruption and the healthcare bubble &#124; e-Patients.net</dc:creator>
		<pubDate>Sun, 22 Feb 2009 04:24:49 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-8499</guid>
		<description>[...] that definition of bubble again, and you can see why I recently reached the conclusion that the Thousand Points of Pain give us additional motivation to get to work on our own solutions - while doing whatever we can to [...]</description>
		<content:encoded><![CDATA[<p>[...] that definition of bubble again, and you can see why I recently reached the conclusion that the Thousand Points of Pain give us additional motivation to get to work on our own solutions &#8211; while doing whatever we can to [...]</p>
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		<title>By: Christine Gray</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-7789</link>
		<dc:creator>Christine Gray</dc:creator>
		<pubDate>Wed, 18 Feb 2009 16:28:16 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-7789</guid>
		<description>If the legislative system is entangled with entrenched health care interests, as it is, the alternative is publicity, positive and negative, via the Internet.  That is the only other way to move things along.  The system at its worst works only because physicians or clinics or health insurance companies are confident they will not find themselves and their practices accountable on the morning news.  

and btw  regarding &quot;voice&quot;:

Dave, I&#039;m glad that you received excellent healthcare from a responsive and responsible physician, but many of us did not.  There is nothing wrong with writing from the standpoint as an &quot;injured&quot; patient, however, if that is the truth.  To do otherwise when you or a family member has experienced unnecessary damage via the current health care system is to &quot;mask&quot; true feelings, to accommodate, as an exchange for allowing a single portion of your agenda to be heard. This &quot;masking&quot; strategy is laid out in last week&#039;s New York Times book review on Booker T. Washington.   

The e-patient movement did not begin because everything was hunky dory.  To paraphrase, it began because it could -- the Internet offers vast possibilities for shining a light in dark places -- and due to a sense of outrage over what was going on.  Over the last eight years or more, Americans have become dulled to the possibility of outrage and therefore protest due to mass media and complacency, basic lack of education, and the fact that the workings of government, like the workings of the healthcare system, are made deliberately opaque to the general public so as to allow corporate interests to go about their work in peace and prosperity. 

And look where it&#039;s got us.

No one really protested the Iraqu War, even though the costs surpass that of the stimulus package. Now, apparently, finally, there is a citizens&#039; movement to protest housing foreclosure and eviction -- to make it public -- to shine the light on the folks and institutions BEHIND the financial maneuvering.  I cannot imagine anything more convoluted than to be evicted by a bank or lending company which uses your tax money to stay in business while refusing to extend or alter credit.  

Nice gig if you can get it.     

The first step in health care reform is shining the light where the sun has not heretofore shined.  Most folks don&#039;t have a CLUE about billing codes, that they are the secondary payor, etc.  The New York Times editorial today speaks of rating physicians, i.e., transparency, which has the profession in a panic.  That ought to tell you something.</description>
		<content:encoded><![CDATA[<p>If the legislative system is entangled with entrenched health care interests, as it is, the alternative is publicity, positive and negative, via the Internet.  That is the only other way to move things along.  The system at its worst works only because physicians or clinics or health insurance companies are confident they will not find themselves and their practices accountable on the morning news.  </p>
<p>and btw  regarding &#8220;voice&#8221;:</p>
<p>Dave, I&#8217;m glad that you received excellent healthcare from a responsive and responsible physician, but many of us did not.  There is nothing wrong with writing from the standpoint as an &#8220;injured&#8221; patient, however, if that is the truth.  To do otherwise when you or a family member has experienced unnecessary damage via the current health care system is to &#8220;mask&#8221; true feelings, to accommodate, as an exchange for allowing a single portion of your agenda to be heard. This &#8220;masking&#8221; strategy is laid out in last week&#8217;s New York Times book review on Booker T. Washington.   </p>
<p>The e-patient movement did not begin because everything was hunky dory.  To paraphrase, it began because it could &#8212; the Internet offers vast possibilities for shining a light in dark places &#8212; and due to a sense of outrage over what was going on.  Over the last eight years or more, Americans have become dulled to the possibility of outrage and therefore protest due to mass media and complacency, basic lack of education, and the fact that the workings of government, like the workings of the healthcare system, are made deliberately opaque to the general public so as to allow corporate interests to go about their work in peace and prosperity. </p>
<p>And look where it&#8217;s got us.</p>
<p>No one really protested the Iraqu War, even though the costs surpass that of the stimulus package. Now, apparently, finally, there is a citizens&#8217; movement to protest housing foreclosure and eviction &#8212; to make it public &#8212; to shine the light on the folks and institutions BEHIND the financial maneuvering.  I cannot imagine anything more convoluted than to be evicted by a bank or lending company which uses your tax money to stay in business while refusing to extend or alter credit.  </p>
<p>Nice gig if you can get it.     </p>
<p>The first step in health care reform is shining the light where the sun has not heretofore shined.  Most folks don&#8217;t have a CLUE about billing codes, that they are the secondary payor, etc.  The New York Times editorial today speaks of rating physicians, i.e., transparency, which has the profession in a panic.  That ought to tell you something.</p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-50025</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Tue, 17 Feb 2009 13:22:49 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-50025</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@rilescat Your donkey / pachy morons need to read the Thousand Points of Pain http://is.gd/jOvl. Pts must start to DIY :)&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@rilescat Your donkey / pachy morons need to read the Thousand Points of Pain <a href="http://is.gd/jOvl" rel="nofollow">http://is.gd/jOvl</a>. Pts must start to DIY :)</span></span></span></p>
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		<title>By: Rare Disease Day</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-55908</link>
		<dc:creator>Rare Disease Day</dc:creator>
		<pubDate>Mon, 16 Feb 2009 16:02:33 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-55908</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;&quot;A thousand points of pain&quot; - e-patients.net on Healing the US health system (cites #rare disease) http://tinyurl.com/b5rnfr&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">&#8220;A thousand points of pain&#8221; &#8211; e-patients.net on Healing the US health system (cites #rare disease) <a href="http://tinyurl.com/b5rnfr" rel="nofollow">http://tinyurl.com/b5rnfr</a></span></span></span></p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-7359</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Sun, 15 Feb 2009 23:30:22 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-7359</guid>
		<description>Paul,

If legislative solutions are difficult to accomplish, what&#039;s the alternative for creating change, other than waiting around helplessly hoping?</description>
		<content:encoded><![CDATA[<p>Paul,</p>
<p>If legislative solutions are difficult to accomplish, what&#8217;s the alternative for creating change, other than waiting around helplessly hoping?</p>
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		<title>By: Paul Levy</title>
		<link>http://e-patients.net/archives/2009/02/a-thousand-points-of-pain.html/comment-page-1#comment-7324</link>
		<dc:creator>Paul Levy</dc:creator>
		<pubDate>Sun, 15 Feb 2009 13:24:28 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1336#comment-7324</guid>
		<description>As a wise person in Washington once said, &quot;One person&#039;s costs are another person&#039;s income.&quot;  This explains why legislative solutions are difficult to accomplish.</description>
		<content:encoded><![CDATA[<p>As a wise person in Washington once said, &#8220;One person&#8217;s costs are another person&#8217;s income.&#8221;  This explains why legislative solutions are difficult to accomplish.</p>
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