2009 April | e-Patients.net

e-pts resources, trends & principles

Immediate data requested. Please share with breast cancer patients everywhere.

e-Patient Dave | April 30, 2009

Chapter 5 of the e-Patient White Paper is E-Patients as Medical Researchers. It details how, in the absence of sufficient medical data for their cases, patients and parents have conducted extraordinary research, time after time, often stunning the medical professionals. A key sentence in Chapter 5 is “One of the great benefits of patient-initiated research [...]

general

Health 2.0 / Ix Conference: What About Minority Representation?

Gilles Frydman | April 30, 2009

As you have seen in my last post I have really enjoyed the conference. Exhilarating is the best way to describe the feeling. But I am a white male in his early 50s. That makes me, statistically, the equivalent of the majority of attendees at the conference. And so I have to call for a [...]

found on the net

Patients first. Doctors second.

Gilles Frydman | April 30, 2009

An Op-Ed piece at the healthcare blog, written by 2 MDs from Harvard Medical School is pretty clear! For those of us who believe the time has come for participatory medicine, the following quote is particularly interesting: Empowering patients should be the first step in transforming American healthcare. The central question that policy makers should [...]

general

Health 2.0 meets Ix: The Rise of the Patient Voices

Gilles Frydman | April 29, 2009

I have been following with real interest the notes and discussions about the Health 2.0/Ix conference that took place in Boston last week.

e-patient stories, net-friendly docs, others' e-patient stories, trends & principles

An e-Patient is Born: Elyse Chapman’s story

e-Patient Dave | April 26, 2009

One of the key learnings of my first year as a student of the e-patient movement, studying how healthcare is evolving, is this: People get radicalized when it gets personal. This is one such story: it’s the e-patient awakening of a long-time personal friend of mine. Facing a painful medical crisis, she asked questions and [...]

trends & principles

Mobile could be a game-changer – but only for those who get in the game.

Susannah Fox | April 23, 2009

Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes brought out during the conference in bold) “Is Health IT the answer? Only if [...]

medical records, reforming hc, trends & principles

The Parable of the Wicked EMR
(guest post by David Kibbe)

e-Patient Dave | April 21, 2009

Preface by e-Patient Dave: This is a story of bad data gone wild, wrong info that spreads. It starts with a story from the 1600s, which applies all too aptly to our EMR situation today, in which there are inadequate controls on data quality, and errors that leak can be impossible to contain.

hc's problem list, medical records, policy issues, reforming hc, trends & principles

Applying Participatory Principles to EHRs/PHRs

Gilles Frydman | April 20, 2009

Neither health professionals nor patients can do it alone. Let’s make no mistake: We are here to participate and to help! e-Patient Dave original story of the health data transfer from his hospital EHR to Google Health PHR is remarkable in many ways and shows why participatory medicine could well be one of the fastest [...]

e-pts resources, hc's problem list, medical records, pt/doc co-care, reforming hc, trends & principles

Completing my list of billing code errors

e-Patient Dave | April 19, 2009

This post will complete (I hope!) the list of errors that I discovered in the billing data that forms part of my medical records. The original post is here.