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	<title>E-Patient Discovers Significant Flaws in System, Spin Doctors Get to WorkComments on: --</title>
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	<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html</link>
	<description>because health professionals can&#039;t do it alone</description>
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		<title>By: Post Mortem &#171; Open Book Medicine</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-78675</link>
		<dc:creator>Post Mortem &#171; Open Book Medicine</dc:creator>
		<pubDate>Wed, 27 Apr 2011 08:08:58 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-78675</guid>
		<description>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</description>
		<content:encoded><![CDATA[<p>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</p>
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		<title>By: Rest in Peace: Personal Health Records (PHRs) &#171; health care commentaries from around the world</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-78111</link>
		<dc:creator>Rest in Peace: Personal Health Records (PHRs) &#171; health care commentaries from around the world</dc:creator>
		<pubDate>Mon, 18 Apr 2011 17:48:29 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-78111</guid>
		<description>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</description>
		<content:encoded><![CDATA[<p>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</p>
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		<title>By: Rest in Peace: Personal Health Records (PHRs) &#124; Health &#38; Fitness GOALS!</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-78032</link>
		<dc:creator>Rest in Peace: Personal Health Records (PHRs) &#124; Health &#38; Fitness GOALS!</dc:creator>
		<pubDate>Sat, 16 Apr 2011 03:03:58 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-78032</guid>
		<description>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</description>
		<content:encoded><![CDATA[<p>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</p>
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		<title>By: Rest in Peace: Personal Health Records (PHRs) &#124; LifeStyleEasy</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-78012</link>
		<dc:creator>Rest in Peace: Personal Health Records (PHRs) &#124; LifeStyleEasy</dc:creator>
		<pubDate>Fri, 15 Apr 2011 12:36:23 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-78012</guid>
		<description>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</description>
		<content:encoded><![CDATA[<p>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</p>
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		<title>By: Rest in Peace: Personal Health Records (PHRs) &#124; Health Care Jobs in Arizona</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-77996</link>
		<dc:creator>Rest in Peace: Personal Health Records (PHRs) &#124; Health Care Jobs in Arizona</dc:creator>
		<pubDate>Thu, 14 Apr 2011 17:05:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-77996</guid>
		<description>[...] haven’t undergone real-world testing withreal-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of thelargest companies in the technology world with some of the brightestengineering [...]</description>
		<content:encoded><![CDATA[<p>[...] haven’t undergone real-world testing withreal-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of thelargest companies in the technology world with some of the brightestengineering [...]</p>
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		<title>By: Rest in Peace: Personal Health Records (PHRs) &#124; The Health Care Blog</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-77993</link>
		<dc:creator>Rest in Peace: Personal Health Records (PHRs) &#124; The Health Care Blog</dc:creator>
		<pubDate>Thu, 14 Apr 2011 14:43:25 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-77993</guid>
		<description>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</description>
		<content:encoded><![CDATA[<p>[...] haven’t undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don’t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</p>
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		<title>By: Rest in Peace: Personal Health Records (PHRs) &#124; e-Patients.net</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-77895</link>
		<dc:creator>Rest in Peace: Personal Health Records (PHRs) &#124; e-Patients.net</dc:creator>
		<pubDate>Tue, 12 Apr 2011 11:07:06 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-77895</guid>
		<description>[...] undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don&#8217;t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</description>
		<content:encoded><![CDATA[<p>[...] undergone real-world testing with real-world data. As we discussed back in April 2009, PHRs simply don&#8217;t work as intended with real-world data. If one of the largest companies in the technology world with some of the brightest engineering [...]</p>
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		<title>By: Don&#8217;t Give Up on The Personal Health Record &#124; WorldHealthCareBlog.org</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-31574</link>
		<dc:creator>Don&#8217;t Give Up on The Personal Health Record &#124; WorldHealthCareBlog.org</dc:creator>
		<pubDate>Tue, 02 Jun 2009 01:41:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-31574</guid>
		<description>[...] Dave had written about. John Grohol at e-patients.net described Jay&#8217;s assessment as &#8220;Hitting one out of the park&#8220;. However, I don&#8217;t share Jay&#8217;s [...]</description>
		<content:encoded><![CDATA[<p>[...] Dave had written about. John Grohol at e-patients.net described Jay&#8217;s assessment as &#8220;Hitting one out of the park&#8220;. However, I don&#8217;t share Jay&#8217;s [...]</p>
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		<title>By: Housedoc</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-18038</link>
		<dc:creator>Housedoc</dc:creator>
		<pubDate>Sat, 18 Apr 2009 23:00:29 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-18038</guid>
		<description>The problem is that most of these systems are too complicated and requires having to sort through all sorts of irrelevant information. That&#039;s why we developed an easy to use, HIPAA compliant, on line site, www.housedoc.us, that lets patients list their medications, and include only the important medical information. Its also lets doctors and patients communicate with each other by email.</description>
		<content:encoded><![CDATA[<p>The problem is that most of these systems are too complicated and requires having to sort through all sorts of irrelevant information. That&#8217;s why we developed an easy to use, HIPAA compliant, on line site, <a href="http://www.housedoc.us" rel="nofollow">http://www.housedoc.us</a>, that lets patients list their medications, and include only the important medical information. Its also lets doctors and patients communicate with each other by email.</p>
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		<title>By: Kate Christensen</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-17245</link>
		<dc:creator>Kate Christensen</dc:creator>
		<pubDate>Wed, 15 Apr 2009 06:12:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-17245</guid>
		<description>Current meds, allergies and imms.  No conditions or procedures available yet, from my EHR system.  I can change/edit the data if I want, which changes the signature to mine.</description>
		<content:encoded><![CDATA[<p>Current meds, allergies and imms.  No conditions or procedures available yet, from my EHR system.  I can change/edit the data if I want, which changes the signature to mine.</p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-17214</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Wed, 15 Apr 2009 04:44:30 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-17214</guid>
		<description>Thanks, Kate. 

Do you have conditions and procedures you could upload?

Was it medication history or just current ones?  

(Nosy, ain&#039;t I?  Well, you know, you don&#039;t have to answer anything you don&#039;t want.)</description>
		<content:encoded><![CDATA[<p>Thanks, Kate. </p>
<p>Do you have conditions and procedures you could upload?</p>
<p>Was it medication history or just current ones?  </p>
<p>(Nosy, ain&#8217;t I?  Well, you know, you don&#8217;t have to answer anything you don&#8217;t want.)</p>
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		<title>By: Kate Christensen</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-17212</link>
		<dc:creator>Kate Christensen</dc:creator>
		<pubDate>Wed, 15 Apr 2009 04:37:35 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-17212</guid>
		<description>Here&#039;s another user experience - I uploaded my allergy list, medication list, and immunizations onto HealthVault, and they appeared as exact replicas of what was in my record.  There isn&#039;t much I can do with it there except pass it along, but at least it came across accurately.</description>
		<content:encoded><![CDATA[<p>Here&#8217;s another user experience &#8211; I uploaded my allergy list, medication list, and immunizations onto HealthVault, and they appeared as exact replicas of what was in my record.  There isn&#8217;t much I can do with it there except pass it along, but at least it came across accurately.</p>
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		<title>By: Lodewijk Bos</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-55811</link>
		<dc:creator>Lodewijk Bos</dc:creator>
		<pubDate>Tue, 14 Apr 2009 22:31:14 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-55811</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@ePatientDave great article from John! http://tinyurl.com/cx98ox&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@ePatientDave great article from John! <a href="http://tinyurl.com/cx98ox" rel="nofollow">http://tinyurl.com/cx98ox</a></span></span></span></p>
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		<title>By: Dr. John Grohol</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-50069</link>
		<dc:creator>Dr. John Grohol</dc:creator>
		<pubDate>Tue, 14 Apr 2009 21:13:54 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-50069</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;It takes a real patient to find the significant problems in Google Health/hospitals (like BIDMC) elec medical records: http://bit.ly/eYcC0&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">It takes a real patient to find the significant problems in Google Health/hospitals (like BIDMC) elec medical records: <a href="http://bit.ly/eYcC0" rel="nofollow">http://bit.ly/eYcC0</a></span></span></span></p>
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		<title>By: Gilles Frydman</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-17054</link>
		<dc:creator>Gilles Frydman</dc:creator>
		<pubDate>Tue, 14 Apr 2009 20:04:36 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-17054</guid>
		<description>The more I digg into this story the more I am, very strangely, becoming a big fan of Google Health and Microsoft HealthVault. These may be our only possibility to grab our health data and do somethinh constructive with it. 

I am becoming convinced that we got blindsinded by the privacy issues (yes they are real) and never questioned the data quality in existing EHRs. So what if these are fully protected by HIPAA, if they transmit useless or worse, erroneous data. 

We assume that Dave&#039;s problems were specific to Google but we don&#039;t now if transfer of data from BIDMC to another institution would be of a higher caliver or not. Lots of unanswered questions!</description>
		<content:encoded><![CDATA[<p>The more I digg into this story the more I am, very strangely, becoming a big fan of Google Health and Microsoft HealthVault. These may be our only possibility to grab our health data and do somethinh constructive with it. </p>
<p>I am becoming convinced that we got blindsinded by the privacy issues (yes they are real) and never questioned the data quality in existing EHRs. So what if these are fully protected by HIPAA, if they transmit useless or worse, erroneous data. </p>
<p>We assume that Dave&#8217;s problems were specific to Google but we don&#8217;t now if transfer of data from BIDMC to another institution would be of a higher caliver or not. Lots of unanswered questions!</p>
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		<title>By: Andy Press</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-17040</link>
		<dc:creator>Andy Press</dc:creator>
		<pubDate>Tue, 14 Apr 2009 19:18:50 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-17040</guid>
		<description>Yes Google should just give up its business in EMR. We don&#039;t need a 800 pound business Guerrila to keep people&#039;s EMR.</description>
		<content:encoded><![CDATA[<p>Yes Google should just give up its business in EMR. We don&#8217;t need a 800 pound business Guerrila to keep people&#8217;s EMR.</p>
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		<title>By: ICMCC Website - Articles &#187; Blog Archive &#187; E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-17006</link>
		<dc:creator>ICMCC Website - Articles &#187; Blog Archive &#187; E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work</dc:creator>
		<pubDate>Tue, 14 Apr 2009 17:28:26 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-17006</guid>
		<description>[...] that gets you up and running on personal health records (PHRs) like Google Health instantly.&#8221; Article John Grohol, e-Patients.net, 14 April [...]</description>
		<content:encoded><![CDATA[<p>[...] that gets you up and running on personal health records (PHRs) like Google Health instantly.&#8221; Article John Grohol, e-Patients.net, 14 April [...]</p>
]]></content:encoded>
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		<title>By: Google Health Will Not Belly Flop but You Have to Take Charge &#124; CloudAve</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-16966</link>
		<dc:creator>Google Health Will Not Belly Flop but You Have to Take Charge &#124; CloudAve</dc:creator>
		<pubDate>Tue, 14 Apr 2009 14:43:12 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-16966</guid>
		<description>[...] E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work [...]</description>
		<content:encoded><![CDATA[<p>[...] E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work [...]</p>
]]></content:encoded>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/04/e-patient-discovers-significant-flaws-in-system-spin-doctors-get-to-work.html/comment-page-1#comment-50070</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Tue, 14 Apr 2009 14:13:46 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=1930#comment-50070</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@DocJohnG e-patients.net post on how media are fouling up coverage of PHR/Google story. Please fix!  http://bit.ly/w541S&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@DocJohnG e-patients.net post on how media are fouling up coverage of PHR/Google story. Please fix!  <a href="http://bit.ly/w541S" rel="nofollow">http://bit.ly/w541S</a></span></span></span></p>
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