Society for Participatory Medicine
e-patients.net blog
found on the net
Medicine Goes Digital: Special Report from the Economist
It couldn’t have been published at a better time! The economist has a new special report on health care and technology. It states: “The convergence of biology and engineering is turning health care into an information industry. That will be disruptive [...] but also hugely beneficial to patients.” There is an interesting article entitled “HIT [...]
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Remembering Doc Tom
I never knew “Doc Tom” Ferguson; he died three years ago this week, April 14, 2006. That was nine months before my diagnosis and 21 months before I discovered the movement that he founded. That team, with later additions, is here. Tom, I think of you often. Somehow I think you’re not the type to be [...]
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Participatory Democracy, Participatory Medicine
A sneak preview of my remarks at the “Health 2.0 meets Information Therapy” conference appears on the IxCenterBlog: Participatory Democracy, Participatory Medicine. A good discussion of the issues has already begun there and on The Health Care Blog.
Read Moree-pts resources, hc's problem list, medical records, positive patterns, pt/doc co-care, reforming hc, trends & principles
Quick update on moving my data
A few items before I head off to the day job:
Read Moree-patient stories, general, hc's problem list, news & gossip, reforming hc
E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work
It is absolutely amazing to watch the unfolding saga the moment a real patient enters real data into Google Health from his hospital’s medical records. The way the marketing folks tell us, this is a seamless exercise that gets you up and running on personal health records (PHRs) like Google Health instantly. The reality, as [...]
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Electronic Health Records Raise Doubt
The Boston Globe takes note of the morass that is Google Health when connecting it to your medical records, as recounted earlier by our own e-Patient Dave here on e-patients.net.
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Encoding information is a key part of I.T.
Do you know what’s in your medical record? Does it contain mistakes or omissions? The extraordinary response to our April 1 post about data transfer from PatientSite to Google Health (86 comments so far) made us realize that the time has come for patients to take responsibility for their personal medical data. Toward that end, [...]
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Surprise: doc finds it’s useful having records online
NY Times: Rural Doctor Finds Benefits in Electronics. I know all the experts have a thousand reasons why “it’s not that simple,” but I do this stuff all the time in my day job and I don’t know what’s such a big freakin mystery.
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The I in IT stands for Information
I’ve been thinking a lot about where to take the discussion that’s exploded on my post about moving my data from PatientSite into Google Health. I’m hardly an IT guru, but as I said, I do work with data at my day job. And before we proceed, there’s something I think is a foundation level [...]
Read Moregeneral, policy issues, pt/doc co-care, reforming hc, trends & principles
When is “Information Therapy” Simply Learning?
I sometimes wonder whether we complicate things that are pretty simple, by assigning more labels and new terms to things that have perfectly good labels already. For instance, I once thought I knew what “information therapy” meant. It meant a doctor or other healthcare professional “prescribed” certain information for you to read, so you could [...]
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