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	<title>Open Access to Publicly-Funded Research: Let Them Eat Cake?Comments on: --</title>
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	<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html</link>
	<description>because health professionals can&#039;t do it alone</description>
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		<title>By: Leo</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-48891</link>
		<dc:creator>Leo</dc:creator>
		<pubDate>Thu, 03 Dec 2009 00:38:36 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-48891</guid>
		<description>Redalyc is an online open access library which makes available for its users more than 550 scientific magazines with a total of 119805 wide text articles which can be downloaded, read, criticized and and cited by users.</description>
		<content:encoded><![CDATA[<p>Redalyc is an online open access library which makes available for its users more than 550 scientific magazines with a total of 119805 wide text articles which can be downloaded, read, criticized and and cited by users.</p>
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		<title>By: Silvia  Duchi</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-48876</link>
		<dc:creator>Silvia  Duchi</dc:creator>
		<pubDate>Tue, 01 Dec 2009 21:28:07 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-48876</guid>
		<description>Under Open Access philosophy, Redalyc aims to contribute to the editorial scientific activity produced in and about Ibero-America making available for public consultation the contents of 550 scientific journals of different knowledge areas: &lt;a href=&quot;http://redalyc.uaemex.mx/&quot; rel=&quot;nofollow&quot;&gt;http://redalyc.uaemex.mx&lt;/a</description>
		<content:encoded><![CDATA[<p>Under Open Access philosophy, Redalyc aims to contribute to the editorial scientific activity produced in and about Ibero-America making available for public consultation the contents of 550 scientific journals of different knowledge areas: <a href="http://redalyc.uaemex.mx/" rel="nofollow"></a><a href="http://redalyc.uaemex.mx&lt;/a" rel="nofollow">http://redalyc.uaemex.mx&lt;/a</a></p>
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		<title>By: The Videntity Blog &#187; Should Health Care Standards be Open Source?</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-24276</link>
		<dc:creator>The Videntity Blog &#187; Should Health Care Standards be Open Source?</dc:creator>
		<pubDate>Wed, 13 May 2009 13:53:33 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-24276</guid>
		<description>[...] of health transformation.  I&#8217;ve been following a article/thread I&#8217;ve been following by @SusannahFox on e-patients.com talking about Open Access to Publicly funded works. Someone posted a TED talk there of, HTML inventor, Tim Berners Lee talking about the importance of [...]</description>
		<content:encoded><![CDATA[<p>[...] of health transformation.  I&#8217;ve been following a article/thread I&#8217;ve been following by @SusannahFox on e-patients.com talking about Open Access to Publicly funded works. Someone posted a TED talk there of, HTML inventor, Tim Berners Lee talking about the importance of [...]</p>
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		<title>By: Headlines for May 3- May 8 &#124; Health Content Advisors</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22917</link>
		<dc:creator>Headlines for May 3- May 8 &#124; Health Content Advisors</dc:creator>
		<pubDate>Fri, 08 May 2009 16:49:31 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22917</guid>
		<description>[...] » Open Access to Publicly-Funded Research: Let Them Eat Cake? &#124; e-Patients.net [...]</description>
		<content:encoded><![CDATA[<p>[...] » Open Access to Publicly-Funded Research: Let Them Eat Cake? | e-Patients.net [...]</p>
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		<title>By: Sarah Greene</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22798</link>
		<dc:creator>Sarah Greene</dc:creator>
		<pubDate>Thu, 07 May 2009 23:25:44 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22798</guid>
		<description>It was my good fortune to be present at the ‘founding’ lunch that led to open access in the U.S.&#160; &lt;a href=&quot;http://poynder.blogspot.com/2006/05/interview-with-vitek-tracz.html&quot; rel=&quot;nofollow&quot;&gt;Vitek Tracz&lt;/a&gt;, my former business partner (BioMedNet, HMS Beagle, Praxis Press) and UK publishing entrepreneur extraordinaire, met with David Lipman of NLM back in 1999/2000 (?) presenting his conviction that OA &lt;em&gt;must&lt;/em&gt; be implemented &lt;em&gt;now&lt;/em&gt;, for the reasons cited in this blog. After 3 hours of debate, Lipman agreed to approach then NIH-director Harold Varmus to approve the initiative.

It’s been disappointing, nearly a decade later, despite Tracz’s and Lipman’s energetic efforts, that NIH has been unable to stipulate full open access for all publications indexed in PubMed/Medline. The watered-down version of the plan is opt-in, though fortunately scientists have put tremendous pressure on publishers over the years so that most journals have a form of OA (e.g., OA 6 months after publication – not&#160; much help to e-patients). 

The business model promoted by Tracz and that has been profitable for his &lt;a href=&quot;http://biomedcentral.com&quot; rel=&quot;nofollow&quot;&gt;BioMedCentral&lt;/a&gt; journals (founded in 2000, now with 180+ OA titles) involves the research institution or the funding source (scientists include the cost in their grant proposal budget) paying for the article.&#160; Traditionally, most journals charge a page fee as well as fees for color illustrations, at rates close to the $500 charged by BMC journals for submission (the rate has increased now, but remains much lower than the amount charged by PloS).

Here’s a statement from major UK funder Wellcome Trust: 

&lt;blockquote&gt;Expects authors of research papers to maximise the opportunities to make their results available for free and, where possible, to retain their copyright.

Will provide Grant Holders with additional funding to cover the costs of page processing charges levied by publishers who support the open access model.
&lt;/blockquote&gt;

&lt;a href=&quot;http://en.wikipedia.org/wiki/Jan_Velterop&quot; rel=&quot;nofollow&quot;&gt;Jan Velterop&lt;/a&gt;, former director and publisher of BioMedCentral and lead crusader for Open Access, has many powerpoint presentations on OA that can be googled and downloaded.&#160; Here’s&#160; an &lt;a href=&quot;http://www.ulb.ac.be/unica/docs/Sch-com-2002-slides_Velterop.ppt&quot; rel=&quot;nofollow&quot;&gt;early presentation&lt;/a&gt; that simply and powerfully spells out the costs and benefits.

As testimony to the business model, and indication that the big players are coming ‘round, BioMedCentral was recently purchased by journal publishing giant Springer.&#160; 


Derk Haank, CEO of Springer Science+Business Media said:

&lt;blockquote&gt;This acquisition reinforces the fact that we see open access publishing as a sustainable part of STM publishing, and not an ideological crusade.&#160; We have gained considerable positive experience since starting Springer Open Choice in 2004, and BioMed Central’s activities are complementary to what we are doing.

BioMed Central’s flagship journals include&lt;em&gt; Journal of Biology&lt;/em&gt;,&lt;em&gt; BMC Biology&lt;/em&gt;,&lt;em&gt; BMC Medicine&lt;/em&gt;,&lt;em&gt; Malaria Journal&lt;/em&gt;,&lt;em&gt; BMC Bioinformatics&lt;/em&gt; and&lt;em&gt; Genome Biology&lt;/em&gt;.&#160; BioMed Central has revenues of approximately  EUR 15 million per year.&#160; The company is based in London, with a second office in Liverpool, and has approximately 150 employees.&lt;/blockquote&gt;

So how much longer will we have to wait for mainstream publishers to jump on board with OA?&#160; The results are in; there should no longer be cries for a sustainable business model.</description>
		<content:encoded><![CDATA[<p>It was my good fortune to be present at the ‘founding’ lunch that led to open access in the U.S.&nbsp; <a href="http://poynder.blogspot.com/2006/05/interview-with-vitek-tracz.html" rel="nofollow">Vitek Tracz</a>, my former business partner (BioMedNet, HMS Beagle, Praxis Press) and UK publishing entrepreneur extraordinaire, met with David Lipman of NLM back in 1999/2000 (?) presenting his conviction that OA <em>must</em> be implemented <em>now</em>, for the reasons cited in this blog. After 3 hours of debate, Lipman agreed to approach then NIH-director Harold Varmus to approve the initiative.</p>
<p>It’s been disappointing, nearly a decade later, despite Tracz’s and Lipman’s energetic efforts, that NIH has been unable to stipulate full open access for all publications indexed in PubMed/Medline. The watered-down version of the plan is opt-in, though fortunately scientists have put tremendous pressure on publishers over the years so that most journals have a form of OA (e.g., OA 6 months after publication – not&nbsp; much help to e-patients). </p>
<p>The business model promoted by Tracz and that has been profitable for his <a href="http://biomedcentral.com" rel="nofollow">BioMedCentral</a> journals (founded in 2000, now with 180+ OA titles) involves the research institution or the funding source (scientists include the cost in their grant proposal budget) paying for the article.&nbsp; Traditionally, most journals charge a page fee as well as fees for color illustrations, at rates close to the $500 charged by BMC journals for submission (the rate has increased now, but remains much lower than the amount charged by PloS).</p>
<p>Here’s a statement from major UK funder Wellcome Trust: </p>
<blockquote><p>Expects authors of research papers to maximise the opportunities to make their results available for free and, where possible, to retain their copyright.</p>
<p>Will provide Grant Holders with additional funding to cover the costs of page processing charges levied by publishers who support the open access model.
</p></blockquote>
<p><a href="http://en.wikipedia.org/wiki/Jan_Velterop" rel="nofollow">Jan Velterop</a>, former director and publisher of BioMedCentral and lead crusader for Open Access, has many powerpoint presentations on OA that can be googled and downloaded.&nbsp; Here’s&nbsp; an <a href="http://www.ulb.ac.be/unica/docs/Sch-com-2002-slides_Velterop.ppt" rel="nofollow">early presentation</a> that simply and powerfully spells out the costs and benefits.</p>
<p>As testimony to the business model, and indication that the big players are coming ‘round, BioMedCentral was recently purchased by journal publishing giant Springer.&nbsp; </p>
<p>Derk Haank, CEO of Springer Science+Business Media said:</p>
<blockquote><p>This acquisition reinforces the fact that we see open access publishing as a sustainable part of STM publishing, and not an ideological crusade.&nbsp; We have gained considerable positive experience since starting Springer Open Choice in 2004, and BioMed Central’s activities are complementary to what we are doing.</p>
<p>BioMed Central’s flagship journals include<em> Journal of Biology</em>,<em> BMC Biology</em>,<em> BMC Medicine</em>,<em> Malaria Journal</em>,<em> BMC Bioinformatics</em> and<em> Genome Biology</em>.&nbsp; BioMed Central has revenues of approximately  EUR 15 million per year.&nbsp; The company is based in London, with a second office in Liverpool, and has approximately 150 employees.</p></blockquote>
<p>So how much longer will we have to wait for mainstream publishers to jump on board with OA?&nbsp; The results are in; there should no longer be cries for a sustainable business model.</p>
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		<title>By: Marcia Zorn</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22443</link>
		<dc:creator>Marcia Zorn</dc:creator>
		<pubDate>Wed, 06 May 2009 22:02:39 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22443</guid>
		<description>Judy, downloading a PDF for personal educational use (&quot;fair use&quot; ) is not necessarily stealing. Conditions are explained at  http://www.lib.umn.edu/copyright/fairuse.phtml
Or did I misunderstand your thought about downloading pdfs from the Internet?</description>
		<content:encoded><![CDATA[<p>Judy, downloading a PDF for personal educational use (&#8220;fair use&#8221; ) is not necessarily stealing. Conditions are explained at  <a href="http://www.lib.umn.edu/copyright/fairuse.phtml" rel="nofollow">http://www.lib.umn.edu/copyright/fairuse.phtml</a><br />
Or did I misunderstand your thought about downloading pdfs from the Internet?</p>
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		<title>By: Judy Feder</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22419</link>
		<dc:creator>Judy Feder</dc:creator>
		<pubDate>Wed, 06 May 2009 21:22:51 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22419</guid>
		<description>Really important conversation.  A couple of thoughts:
1. The e-patients I know shamelessly adhere to the &quot;steal that PDF&quot; philosophy of peer-reviewed literature.  I&#039;m not proud of that, but when your life depends on it, the niceties of copyright seem to take a back seat to open source.  And, given the fact that we HAVE already paid for so much of this research as taxpayers, I guess my guilt can be assuaged.
2. No, it&#039;s not easy, but many public libraries (the garden variety community type) subscribe to extensive online subscription services such as ProQuest, which have the full text of many scientific journals.  Library members can access these at the library, or even remotely if they have a library card number.  I&#039;ve found this to be a lifeline when all else fails.
3. Regarding the layman&#039;s ability to comprehend professional literature, I readily admit that I do not always understand every word of every article.  However, it is really not rocket science to understand an abstract, which typically contains the highlights of findings and results.  I can certainly understand enough to know whether I should bring the full article to my doctor as, I daresay, do many e-patients.</description>
		<content:encoded><![CDATA[<p>Really important conversation.  A couple of thoughts:<br />
1. The e-patients I know shamelessly adhere to the &#8220;steal that PDF&#8221; philosophy of peer-reviewed literature.  I&#8217;m not proud of that, but when your life depends on it, the niceties of copyright seem to take a back seat to open source.  And, given the fact that we HAVE already paid for so much of this research as taxpayers, I guess my guilt can be assuaged.<br />
2. No, it&#8217;s not easy, but many public libraries (the garden variety community type) subscribe to extensive online subscription services such as ProQuest, which have the full text of many scientific journals.  Library members can access these at the library, or even remotely if they have a library card number.  I&#8217;ve found this to be a lifeline when all else fails.<br />
3. Regarding the layman&#8217;s ability to comprehend professional literature, I readily admit that I do not always understand every word of every article.  However, it is really not rocket science to understand an abstract, which typically contains the highlights of findings and results.  I can certainly understand enough to know whether I should bring the full article to my doctor as, I daresay, do many e-patients.</p>
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		<title>By: SusannahFox</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-50158</link>
		<dc:creator>SusannahFox</dc:creator>
		<pubDate>Wed, 06 May 2009 17:37:21 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-50158</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@hcolelewis @BoraZ @ctorgan Thx for contributing to the open-access discussion - the hive is educating me http://is.gd/wZfE&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@hcolelewis @BoraZ @ctorgan Thx for contributing to the open-access discussion &#8211; the hive is educating me <a href="http://is.gd/wZfE" rel="nofollow">http://is.gd/wZfE</a></span></span></span></p>
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		<title>By: Marcia Zorn</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22314</link>
		<dc:creator>Marcia Zorn</dc:creator>
		<pubDate>Wed, 06 May 2009 14:37:48 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22314</guid>
		<description>Hi, all--

Thank you, Susannah, for that introduction.  

Actually, I fell behind in providing lists for the Coalition Web site at http://www.healthcommunication.net/ where they were being archived.  

The lists have always been a PERSONAL (not NLM) project. I still do them so I can try to keep track of health communication-related sites.  But I quit sharing them because I didn&#039;t have time to check all the sites and edit if needed.</description>
		<content:encoded><![CDATA[<p>Hi, all&#8211;</p>
<p>Thank you, Susannah, for that introduction.  </p>
<p>Actually, I fell behind in providing lists for the Coalition Web site at <a href="http://www.healthcommunication.net/" rel="nofollow">http://www.healthcommunication.net/</a> where they were being archived.  </p>
<p>The lists have always been a PERSONAL (not NLM) project. I still do them so I can try to keep track of health communication-related sites.  But I quit sharing them because I didn&#8217;t have time to check all the sites and edit if needed.</p>
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		<title>By: Susannah Fox</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22309</link>
		<dc:creator>Susannah Fox</dc:creator>
		<pubDate>Wed, 06 May 2009 14:20:27 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22309</guid>
		<description>Thank you, everyone, for the comments. The &quot;hive mind&quot; is working overtime to educate me and others on this issue!

Let me take this opportunity to say that e-patients.net welcomes posts from new contributors: if you have something to say that won&#039;t fit in a comment, please contact me or anyone else on the &quot;About&quot; page.

Also, just a quick introduction and welcome to Marcia Zorn, a reference librarian at the National Library of Medicine who for many years has curated an ongoing index of health communication websites and resources, all of which are archived at http://www.healthcommunication.net/ When I could keep up with them, her emails were a beacon in my inbox!</description>
		<content:encoded><![CDATA[<p>Thank you, everyone, for the comments. The &#8220;hive mind&#8221; is working overtime to educate me and others on this issue!</p>
<p>Let me take this opportunity to say that e-patients.net welcomes posts from new contributors: if you have something to say that won&#8217;t fit in a comment, please contact me or anyone else on the &#8220;About&#8221; page.</p>
<p>Also, just a quick introduction and welcome to Marcia Zorn, a reference librarian at the National Library of Medicine who for many years has curated an ongoing index of health communication websites and resources, all of which are archived at <a href="http://www.healthcommunication.net/" rel="nofollow">http://www.healthcommunication.net/</a> When I could keep up with them, her emails were a beacon in my inbox!</p>
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		<title>By: Marcia Zorn</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22304</link>
		<dc:creator>Marcia Zorn</dc:creator>
		<pubDate>Wed, 06 May 2009 13:55:34 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22304</guid>
		<description>Another blog to search for scholarly publishing/open access vs. not open access news is Gunther Eysenbach&#039;s
http://gunther-eysenbach.blogspot.com/search?q=open+access</description>
		<content:encoded><![CDATA[<p>Another blog to search for scholarly publishing/open access vs. not open access news is Gunther Eysenbach&#8217;s<br />
<a href="http://gunther-eysenbach.blogspot.com/search?q=open+access" rel="nofollow">http://gunther-eysenbach.blogspot.com/search?q=open+access</a></p>
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		<title>By: Christine Kraft</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-55843</link>
		<dc:creator>Christine Kraft</dc:creator>
		<pubDate>Wed, 06 May 2009 13:53:04 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-55843</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Outstanding dialog re: public access to research. Do not miss the comments here:  http://bit.ly/wcsBC&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Outstanding dialog re: public access to research. Do not miss the comments here:  <a href="http://bit.ly/wcsBC" rel="nofollow">http://bit.ly/wcsBC</a></span></span></span></p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22263</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Wed, 06 May 2009 11:43:01 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22263</guid>
		<description>Culinary?

And: are you saying that the intent of the NIH is to cover all the costs of operating a JOURNAL, such that any income the journal receives is gravy?  It&#039;s hard for me to believe that, but I&#039;ve been saying that a lot, this past year.</description>
		<content:encoded><![CDATA[<p>Culinary?</p>
<p>And: are you saying that the intent of the NIH is to cover all the costs of operating a JOURNAL, such that any income the journal receives is gravy?  It&#8217;s hard for me to believe that, but I&#8217;ve been saying that a lot, this past year.</p>
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		<title>By: Gilles Frydman</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22203</link>
		<dc:creator>Gilles Frydman</dc:creator>
		<pubDate>Wed, 06 May 2009 08:16:42 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22203</guid>
		<description>Ah! I knew it! Straight from the NIH FAQ:

&quot;Will NIH pay for publication costs?

Yes. The NIH will reimburse publication costs, including author fees, for grants and contracts on three conditions: (1) such costs incurred are actual, allowable, and reasonable to advance the objectives of the award; (2) costs are charged consistently regardless of the source of support; (3) all other applicable rules on allowability of costs are met.&quot;

And then one last fact. When asked in his congressional testimony about the costs of publicly financed research, NIH director Elias Zerhouni spoke against the bill. Zerhouni explained that the NIH spent an average of $300,000 in taxpayer money for every paper produced, and that he sought to maximize the return on that investment for the public, and for scientists. 

&quot;This is not an issue of economic impact. This is not an issue of peer review,&quot; he argued.

So, is it just a culinary issue, after all?</description>
		<content:encoded><![CDATA[<p>Ah! I knew it! Straight from the NIH FAQ:</p>
<p>&#8220;Will NIH pay for publication costs?</p>
<p>Yes. The NIH will reimburse publication costs, including author fees, for grants and contracts on three conditions: (1) such costs incurred are actual, allowable, and reasonable to advance the objectives of the award; (2) costs are charged consistently regardless of the source of support; (3) all other applicable rules on allowability of costs are met.&#8221;</p>
<p>And then one last fact. When asked in his congressional testimony about the costs of publicly financed research, NIH director Elias Zerhouni spoke against the bill. Zerhouni explained that the NIH spent an average of $300,000 in taxpayer money for every paper produced, and that he sought to maximize the return on that investment for the public, and for scientists. </p>
<p>&#8220;This is not an issue of economic impact. This is not an issue of peer review,&#8221; he argued.</p>
<p>So, is it just a culinary issue, after all?</p>
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		<title>By: Dirk Stanley, MD</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-55844</link>
		<dc:creator>Dirk Stanley, MD</dc:creator>
		<pubDate>Wed, 06 May 2009 03:11:35 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-55844</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @modulist: Real data now! right on, guys.... what the New Transparency is all about. It&#039;s not an &quot;if&quot; but a &quot;when&quot;. http://bit.ly/wcsBC&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @modulist: Real data now! right on, guys&#8230;. what the New Transparency is all about. It&#8217;s not an &#8220;if&#8221; but a &#8220;when&#8221;. <a href="http://bit.ly/wcsBC" rel="nofollow">http://bit.ly/wcsBC</a></span></span></span></p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22110</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Wed, 06 May 2009 03:02:59 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22110</guid>
		<description>I&#039;m just watching the Berners-Lee video again. I only remembered &quot;Raw data now!&quot; but looky here.

11:13 &quot;You have no idea the number of excuses people come up with to hang onto their data and not give it to you &#8211; even though you&#039;ve paid for it, as a taxpayer.&quot; Ha!</description>
		<content:encoded><![CDATA[<p>I&#8217;m just watching the Berners-Lee video again. I only remembered &#8220;Raw data now!&#8221; but looky here.</p>
<p>11:13 &#8220;You have no idea the number of excuses people come up with to hang onto their data and not give it to you &ndash; even though you&#8217;ve paid for it, as a taxpayer.&#8221; Ha!</p>
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		<title>By: Carol Torgan</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-22107</link>
		<dc:creator>Carol Torgan</dc:creator>
		<pubDate>Wed, 06 May 2009 02:59:36 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-22107</guid>
		<description>Susannah –

Great post and great comments. As a scientist I’ve peer reviewed journal articles for free, and helped pay for them through author page charges and professional membership dues. As a writer, I’ve paid from my pocket for access, and also obtained them via contacting the author or getting a copy from a press office. 

One of the biggest advocates of open access is former NIH director Harold Varmus – see his editorial in PLoS, an open access journal http://tinyurl.com/cf4ty2. This debate is far from over, but the good news is that we are in fact discussing public access. Knowledge is power. In the mean time, individuals have free access to many articles via PubMed Central http://www.pubmedcentral.nih.gov/. For those with a medical or science library around, they are a pretty great place to hang out.</description>
		<content:encoded><![CDATA[<p>Susannah –</p>
<p>Great post and great comments. As a scientist I’ve peer reviewed journal articles for free, and helped pay for them through author page charges and professional membership dues. As a writer, I’ve paid from my pocket for access, and also obtained them via contacting the author or getting a copy from a press office. </p>
<p>One of the biggest advocates of open access is former NIH director Harold Varmus – see his editorial in PLoS, an open access journal <a href="http://tinyurl.com/cf4ty2" rel="nofollow">http://tinyurl.com/cf4ty2</a>. This debate is far from over, but the good news is that we are in fact discussing public access. Knowledge is power. In the mean time, individuals have free access to many articles via PubMed Central <a href="http://www.pubmedcentral.nih.gov/" rel="nofollow">http://www.pubmedcentral.nih.gov/</a>. For those with a medical or science library around, they are a pretty great place to hang out.</p>
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		<title>By: BoraZ</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-50159</link>
		<dc:creator>BoraZ</dc:creator>
		<pubDate>Wed, 06 May 2009 02:57:03 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-50159</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @SusannahFox  I posted to e-patients.net about open-access - thx for the inspiration &amp; input http://is.gd/wZfE&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @SusannahFox  I posted to e-patients.net about open-access &#8211; thx for the inspiration &#038; input <a href="http://is.gd/wZfE" rel="nofollow">http://is.gd/wZfE</a></span></span></span></p>
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		<title>By: Robin</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-55845</link>
		<dc:creator>Robin</dc:creator>
		<pubDate>Wed, 06 May 2009 02:47:34 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-55845</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @modulist: Real data now!right on....this is what the New Transparency is all about. It&#039;s not an &quot;if&quot; but a &quot;when&quot;. http://bit.ly/wcsBC&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @modulist: Real data now!right on&#8230;.this is what the New Transparency is all about. It&#8217;s not an &#8220;if&#8221; but a &#8220;when&#8221;. <a href="http://bit.ly/wcsBC" rel="nofollow">http://bit.ly/wcsBC</a></span></span></span></p>
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		<title>By: claudio luís vera</title>
		<link>http://e-patients.net/archives/2009/05/open-access-to-publicly-funded-research-let-them-eat-cake.html/comment-page-1#comment-55846</link>
		<dc:creator>claudio luís vera</dc:creator>
		<pubDate>Wed, 06 May 2009 02:39:02 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2199#comment-55846</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Real data now! right on, guys.... this is what the New Transparency is all about. It&#039;s not an &quot;if&quot; but a &quot;when&quot;. http://bit.ly/wcsBC&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Real data now! right on, guys&#8230;. this is what the New Transparency is all about. It&#8217;s not an &#8220;if&#8221; but a &#8220;when&#8221;. <a href="http://bit.ly/wcsBC" rel="nofollow">http://bit.ly/wcsBC</a></span></span></span></p>
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