Society for Participatory Medicine
e-patients.net blog
medical records, policy issues, trends & principles
EMRs: “Would you take it if it were FREE?”
Blogger John at the “EMR (EHR) and HIPAA” blog posted a musing that caused my business antennas to twitch. A vigorous discussion has started in the comments.
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Next stage in mapping my hospital’s clinical data to PHRs
John Halamka’s blog has a new post today announcing that the National Library Medicine has mapped 93% of his hospital’s “problem list” codes to the SNOMED CT set of clinical data codes that’s widely used. For more info on data formats see our post on data vocabularies.
Read Moremedical records, policy issues, positive patterns, reforming hc, trends & principles
Consumer Partnership for eHealth’s thoughts on Meaningful Use
Precursor posts: The “meaningful use” debate (my thoughts); the Markle Foundation’s work on the subject Thanks to Josh Seidman of the Information Therapy Blog for steering me to the “meaningful use” work that’s been done by the Consumer Partnership for eHealth – another great group I’d never heard of. I’m loving the way Web 2.0 [...]
Read Moregeneral, hc's problem list, medical records, policy issues, reforming hc
PLEASE, No More Magical Thinking in HIT!
Magical thinking: the ability to draw conclusions that are based on a person’s desire for what reality should be, not necessarily upon what reality actually is. Cargo Cult HIT: Concepts in HIT that follow all the apparent precepts and forms of evidence-based methodologies, but are missing something essential, because no one has checked the real [...]
Read Moree-patient stories, e-pts resources, general, policy issues, pt/doc co-care, pts as teachers, reforming hc, trends & principles
Participatory Medicine as Revolution! Think Critically! Communicate!
My son graduated from college last year and is now in Nepal, visiting schools and writing about rural education under the Maoist regime. He was excited to tell me, when I visited him recently in India, about how a classic book on education, Pedagogy of the Oppressed by Brazilian Paulo Freire, radically influenced and inspired [...]
Read Moree-pts resources, general, medical records, policy issues, positive patterns, pt/doc co-care, reforming hc
The Markle Foundation’s work on Meaningful Use
Last night I posted my own thoughts on the definition of “meaningful use,” a term that will have significant impact on our next-generation medical records systems. To me it’s vital that the term be defined to include full access for you and me (patients) to our own medical data. I’ve come to the conclusion that [...]
Read Moremedical records, policy issues, pt/doc co-care, reforming hc, trends & principles
“Meaningful Use”: a pivotal definition for new-wave medical records systems
I’ve struggled with what to say about this subject for two weeks, because I want to “get it right” but it’s vast. So I’m giving up any hope of being comprehensive, and I’m just going to say what little I know, and what I think, and let any discussion happen from there.
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Democracy and Healthcare
At boingboing, Doug Rushkoff posted a video from C-Span of the Senate Hearings on Healthcare Reform, including a half dozen “peaceful and very articulate” protesters “demanding a seat at the table (where 15 witnesses wait to testify, not one representing the single-payer option).”
Read Moregeneral, key people, policy issues, positive patterns, pt/doc co-care, pts as teachers, reforming hc, trends & principles
AHRQ embraces Participatory Medicine.
The President? Not So Much!
Clinicians, the Government, and many other groups are working hard to improve health care quality, but it’s a team effort. You can improve your care and the care of your loved ones by taking an active role in your health care. Ask questions. Understand your condition. Evaluate your options. Some may think this is the [...]
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Open Access to Publicly-Funded Research: Let Them Eat Cake?
Marketplace aired a story last week entitled, “Publicly funded research for a price,” which echoed the story of Edwin Murphy, who in 1994 had to impersonate his doctor in order to read the risks and benefits of a medical procedure he was considering. (Hat tip to Carol Torgan for alerting me to the story.)
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