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	<title>&#8220;No political power center for regular people&#8221;<br />in health reformComments on: --</title>
	<atom:link href="http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/feed" rel="self" type="application/rss+xml" />
	<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html</link>
	<description>because health professionals can&#039;t do it alone</description>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-50483</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Sat, 27 Jun 2009 05:39:37 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-50483</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Viz. Brian Klepper&#039;s great observation after 8+ yrs in DC &quot;No political power ctr for regular ppl&quot; http://is.gd/1f9PD&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Viz. Brian Klepper&#8217;s great observation after 8+ yrs in DC &#8220;No political power ctr for regular ppl&#8221; <a href="http://is.gd/1f9PD" rel="nofollow">http://is.gd/1f9PD</a></span></span></span></p>
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		<title>By: Dan Hoch</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-38761</link>
		<dc:creator>Dan Hoch</dc:creator>
		<pubDate>Thu, 25 Jun 2009 13:48:24 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-38761</guid>
		<description>Dave, 
glad you added that last comment. The fact of the matter is, the debate on health care is not different from that of civil liberties, justice, food, etc. etc. in this country.</description>
		<content:encoded><![CDATA[<p>Dave,<br />
glad you added that last comment. The fact of the matter is, the debate on health care is not different from that of civil liberties, justice, food, etc. etc. in this country.</p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-38687</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Thu, 25 Jun 2009 02:37:27 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-38687</guid>
		<description>Well, I&#039;ve done a lot more reading and thinking since getting home tonight. Here&#039;s what I have to add now:

There&#039;s a lot to be learned by reading Brian Klepper and David Kibbe&#039;s June 10 post on The Health Care Blog, &lt;a href=&quot;http://www.thehealthcareblog.com/the_health_care_blog/2009/06/the-health-industrys-achilles-heel.html&quot; target=&quot;epd&quot; rel=&quot;nofollow&quot;&gt;The Health Industry&#039;s Achilles Heel&lt;/a&gt;.

After you absorb the intense information in that post, about how sick and dysfunctional and underperforming the system is, then read the comments.  I didn&#039;t see a single one of them discussing that the system is failing us.

I have a good friend who thinks deeply about why things are the way they are. Years ago, talking about a situation far from healthcare but very similar, he said &quot;Dave, this is what you get when you have an aristocracy: people who are living off other people&#039;s money, and who are in a system that&#039;s so bloated that they don&#039;t have to generate any real value. They end up fighting with each other, ignoring the people who created their wealth, even if those people are starving. It always collapses.&quot;</description>
		<content:encoded><![CDATA[<p>Well, I&#8217;ve done a lot more reading and thinking since getting home tonight. Here&#8217;s what I have to add now:</p>
<p>There&#8217;s a lot to be learned by reading Brian Klepper and David Kibbe&#8217;s June 10 post on The Health Care Blog, <a href="http://www.thehealthcareblog.com/the_health_care_blog/2009/06/the-health-industrys-achilles-heel.html" target="epd" rel="nofollow">The Health Industry&#8217;s Achilles Heel</a>.</p>
<p>After you absorb the intense information in that post, about how sick and dysfunctional and underperforming the system is, then read the comments.  I didn&#8217;t see a single one of them discussing that the system is failing us.</p>
<p>I have a good friend who thinks deeply about why things are the way they are. Years ago, talking about a situation far from healthcare but very similar, he said &#8220;Dave, this is what you get when you have an aristocracy: people who are living off other people&#8217;s money, and who are in a system that&#8217;s so bloated that they don&#8217;t have to generate any real value. They end up fighting with each other, ignoring the people who created their wealth, even if those people are starving. It always collapses.&#8221;</p>
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		<title>By: Sherry Reynolds</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-50484</link>
		<dc:creator>Sherry Reynolds</dc:creator>
		<pubDate>Wed, 24 Jun 2009 19:31:59 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-50484</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@ePatientDave luv yr piece “No political power center 4 regular ppl in health reform&quot; http://is.gd/1cgjv hard to focus grassroots power&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@ePatientDave luv yr piece “No political power center 4 regular ppl in health reform&#8221; <a href="http://is.gd/1cgjv" rel="nofollow">http://is.gd/1cgjv</a> hard to focus grassroots power</span></span></span></p>
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		<title>By: Sam Adams</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-55802</link>
		<dc:creator>Sam Adams</dc:creator>
		<pubDate>Wed, 24 Jun 2009 19:28:02 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-55802</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @cindythroop @epatientdave New on e-patients.net: No political power center for regular people to glom on to&quot;  http://is.gd/1bius - true&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @cindythroop @epatientdave New on e-patients.net: No political power center for regular people to glom on to&#8221;  <a href="http://is.gd/1bius" rel="nofollow">http://is.gd/1bius</a> &#8211; true</span></span></span></p>
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		<title>By: Cindy Throop</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-55803</link>
		<dc:creator>Cindy Throop</dc:creator>
		<pubDate>Wed, 24 Jun 2009 14:20:10 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-55803</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @epatientdave New on e-patients.net: &quot;No political power center for regular people to glom on to&quot; [Brian Klepper] http://is.gd/1bius&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @epatientdave New on e-patients.net: &#8220;No political power center for regular people to glom on to&#8221; [Brian Klepper] <a href="http://is.gd/1bius" rel="nofollow">http://is.gd/1bius</a></span></span></span></p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-38575</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Wed, 24 Jun 2009 13:30:13 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-38575</guid>
		<description>Josh, yeah, I realized that the way I worded it, it rather ignores the good work of parties like the National Partnership for Women &amp; Families, the Center for Democracy &amp; Technology, the National eHealth Collaborative, and many many other groups. I love those people!

And yet we&#039;re left with the reality that Brian mentioned: we the people are simply not at the center of the discussion. We&#039;re mentioned as detached victims: the faceless 48 million with no coverage, etc etc.

Much to think about here. Grousing gets us nowhere. Except sometimes it can raise awareness. But IMO there needs to be constructive suggestion, *creating* something. That&#039;s part of why I like the Declaration: it creates a new platform from which to view things, and to see old things from a new perspective.

I have another note to write tonight after some more thinking about a private note I received overnight. But for now, it&#039;s off to the marketing data day job.</description>
		<content:encoded><![CDATA[<p>Josh, yeah, I realized that the way I worded it, it rather ignores the good work of parties like the National Partnership for Women &#038; Families, the Center for Democracy &#038; Technology, the National eHealth Collaborative, and many many other groups. I love those people!</p>
<p>And yet we&#8217;re left with the reality that Brian mentioned: we the people are simply not at the center of the discussion. We&#8217;re mentioned as detached victims: the faceless 48 million with no coverage, etc etc.</p>
<p>Much to think about here. Grousing gets us nowhere. Except sometimes it can raise awareness. But IMO there needs to be constructive suggestion, *creating* something. That&#8217;s part of why I like the Declaration: it creates a new platform from which to view things, and to see old things from a new perspective.</p>
<p>I have another note to write tonight after some more thinking about a private note I received overnight. But for now, it&#8217;s off to the marketing data day job.</p>
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		<title>By: Joshua Seidman</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-38573</link>
		<dc:creator>Joshua Seidman</dc:creator>
		<pubDate>Wed, 24 Jun 2009 13:13:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-38573</guid>
		<description>Dave, it&#039;s certainly an important point, and I agree.

I do think that the Consumer Partnership for eHealth (CPeH) has become an important and influential voice for the interests of patients and families (although I admit that &quot;regular patients&quot; are not part of the daily work of the coalition).  CPeH is a coalition of many consumer advocacy organizations and non-profit organizations focused on the consumer-facing side of health information technology -- and, really, for better, more efficient health care more generally.  

If you&#039;re interested in finding out more, start with the June 16 post at www.IxCenterBlog.org.</description>
		<content:encoded><![CDATA[<p>Dave, it&#8217;s certainly an important point, and I agree.</p>
<p>I do think that the Consumer Partnership for eHealth (CPeH) has become an important and influential voice for the interests of patients and families (although I admit that &#8220;regular patients&#8221; are not part of the daily work of the coalition).  CPeH is a coalition of many consumer advocacy organizations and non-profit organizations focused on the consumer-facing side of health information technology &#8212; and, really, for better, more efficient health care more generally.  </p>
<p>If you&#8217;re interested in finding out more, start with the June 16 post at <a href="http://www.IxCenterBlog.org" rel="nofollow">http://www.IxCenterBlog.org</a>.</p>
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		<title>By: SusannahFox</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-50485</link>
		<dc:creator>SusannahFox</dc:creator>
		<pubDate>Wed, 24 Jun 2009 12:57:30 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-50485</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Or to quote @ePatientDave re health care reform &quot;Where the hell is the voice of the patient?&quot; http://is.gd/1bius&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Or to quote @ePatientDave re health care reform &#8220;Where the hell is the voice of the patient?&#8221; <a href="http://is.gd/1bius" rel="nofollow">http://is.gd/1bius</a></span></span></span></p>
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		<title>By: Charles Martin</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-50486</link>
		<dc:creator>Charles Martin</dc:creator>
		<pubDate>Wed, 24 Jun 2009 05:52:45 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-50486</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;“No political power center for regular people” in health reform ... http://tinyurl.com/nnwpfg&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">“No political power center for regular people” in health reform &#8230; <a href="http://tinyurl.com/nnwpfg" rel="nofollow">http://tinyurl.com/nnwpfg</a></span></span></span></p>
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		<title>By: Social Media</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-50487</link>
		<dc:creator>Social Media</dc:creator>
		<pubDate>Wed, 24 Jun 2009 04:48:39 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-50487</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;“No political power center for regular people” in health reform ... http://bit.ly/12juiH&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">“No political power center for regular people” in health reform &#8230; <a href="http://bit.ly/12juiH" rel="nofollow">http://bit.ly/12juiH</a></span></span></span></p>
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		<title>By: Alex_Zubarev</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-50488</link>
		<dc:creator>Alex_Zubarev</dc:creator>
		<pubDate>Wed, 24 Jun 2009 04:28:58 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-50488</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;“No political power center for regular people” in health reform ...: It was a provocative talk, because although.. http://bit.ly/TiJAk&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">“No political power center for regular people” in health reform &#8230;: It was a provocative talk, because although.. <a href="http://bit.ly/TiJAk" rel="nofollow">http://bit.ly/TiJAk</a></span></span></span></p>
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		<title>By: Christopher Smith</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-50489</link>
		<dc:creator>Christopher Smith</dc:creator>
		<pubDate>Wed, 24 Jun 2009 04:15:27 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-50489</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;“No political power center for regular people” in health reform ... http://tinyurl.com/nnwpfg&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">“No political power center for regular people” in health reform &#8230; <a href="http://tinyurl.com/nnwpfg" rel="nofollow">http://tinyurl.com/nnwpfg</a></span></span></span></p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/06/no-political-power-center-for-regular-people.html/comment-page-1#comment-50490</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Wed, 24 Jun 2009 00:38:34 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=2718#comment-50490</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;New on e-patients.net: &quot;No political power center for regular people to glom on to&quot; [Brian Klepper] http://is.gd/1bius&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">New on e-patients.net: &quot;No political power center for regular people to glom on to&quot; [Brian Klepper] <a href="http://is.gd/1bius" rel="nofollow">http://is.gd/1bius</a></span></span></span></p>
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