Society for Participatory Medicine
e-patients.net blog
general
Social Healthcare: “Medicine in the Age of Twitter”
Physician Pauline Chen writes about “Medicine in the Age of Twitter” for the New York Times. The article suggests the need for our upcoming peer-reviewed Journal of Participatory Medicine: …a quick scan through peer-reviewed journals reveals only a handful of articles, and no evidence-based guidelines, to guide doctors on the use of social media. It [...]
Read Moredemographics, trends & principles
The Social Life of Health Information
The Pew Internet/California HealthCare Foundation report, The Social Life of Health Information, is packed with new findings from a survey of 2,253 adults, including 502 cell-phone interviews, conducted in either English or Spanish. We spent a bundle of money on making this a random sample of the U.S. population, but guess who got a call [...]
Read Moree-patient stories, news & gossip, positive patterns
“Moms, do not give up.”
This item from ABC News nearly brought tears to my eyes. The first signs that something was wrong with 11-year-old Connor Teare came when he was a toddler. His muscles were growing increasingly rigid and becoming more difficult to move. He went from leg braces to a walker and, finally, a wheelchair by the time [...]
Read Moreethics, general, hc's problem list, medical records, news & gossip, policy issues
Dossia, Microsoft HealthVault & Google Health:
Illegal in NJ?
In the last few days the announcement of a proposed NJ state law has made the Internet rounds. “· On or after January 1, 2011, no person or entity is permitted to sell, offer for sale, give, furnish, or otherwise distribute to any person or entity in this State a health information technology product that [...]
Read Moremedical records, policy issues, pt/doc co-care, reforming hc, trends & principles
“Give us our data”:
my talk at the NeHC board meeting
Last Tuesday, June 2, I was on a consumer panel at a board meeting of the National eHealth Collaborative. This is a heady group to be addressing; as this press release says, nine of these people are on the advisory committees that are working directly with David Blumenthal, Obama’s National Coordinator for Health IT, to [...]
Read Moreethics, general, hc's problem list, medical records, policy issues, reforming hc, trends & principles
e-Patients Demand: Put An End To
Data-Hugging Disorder
“Statistics should be the intellectual sidewalks of a society, and people should be able to build businesses and operate on the side of them” This quote from Hans Rosling is part of a speech where he presented the following: Database-hugging disorder (Dbhd): A well known ailment, Dbhd is the statisticians’ tendency to guard their data [...]
Read Moregeneral, hc's problem list, medical records
For Want of a Surge Protector…
It seems somewhere between highly unlikely and impossible for this to happen in this day and age, but Methodist Hospital in Indianapolis had to turn away patients when a power surge took down its electronic medical records system. Yes, that’s right — our computers are down, and we can’t keep up with the paperwork backlog [...]
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