Participatory Medicine: Blending Traditional Medicine with “Health 2.0″Comments on: --

By: Kathy Kanavos

Kathy Kanavos — Fri, 19 Jun 2009 20:37:21 +0000

I am such a strong beleiver in mixing holistic and conventional medicine. Why should we limit ourselves to one over the other when we can use both and have twice the chance of surviving. Listen to your body, then cross-check what you intuitively know with science. I had cancer twice and survived because I listened to myself when conventional tests didn’t find the cancer and then begged for different medical tests that finally did find it. Speaking with other people on-line can be the best way of bouncing thise ideas around and collecting support.

By: Judy Feder

Judy Feder — Wed, 17 Jun 2009 14:48:51 +0000

This is a great point — self evident to us e-patients, perhaps, but apparently not to the world at large. In recent weeks I’ve had at least two discussion with pharma types who have questioned the wisdom — even the safety — of patients discussing things like dosages of chemotherapy drugs online. I pointed out that, even if a patient is gathering info or opining about dosages that deviate from the package insert, they are hardly in a position to write themselves a scrip! Rather, they should bring such discussions to the attention of their docs. And their docs should then look for evidence that the discussion has some merit behind it. If it does, let’s hope the doctor is flexible enough to prescribe an alternate dosage, if it’s still effective, but maybe able to improve a patient’s quality of life. I don’t consider this radical or subsersive. It’s essential (because docs simply do not have time to figure it all out) and life-enhancing (and if you think I’m exaggerating, you try some of these drugs at their “recommended” dosing levels!!!)

By: ICMCC Website - Articles » Blog Archive » Participatory Medicine: Blending Traditional Medicine with “Health 2.0″

Tue, 16 Jun 2009 14:06:21 +0000

[...] Article Charlie Smith, e-patients.net, 16 June 2009 SHARETHIS.addEntry({ title: “Participatory Medicine: Blending Traditional Medicine with “Health 2.0″”, url: “http://articles.icmcc.org/2009/06/16/participatory-medicine-blending-traditional-medicine-with-%e2%80%9chealth-20%e2%80%b3/” }); [...]