Society for Participatory Medicine
e-patients.net blog
maternity, positive patterns, pt/doc co-care, trends & principles, Why PM
A Lifetime of Participatory Medicine Can Start With Maternity Care
As promised yesterday, here is Amy Romano’s guest post for our series leading up to the Oct. 21 launch of the Journal of Participatory Medicine. Amy is a nurse-midwife and advocate for mother-friendly maternity care. An expert in research analysis, she manages the Science & Sensibility blog for Lamaze International. Follow her on Twitter: @MidwifeAmy. If [...]
Read Morepositive patterns, pt/doc co-care, trends & principles, Why PM
Keep an eye out for tomorrow morning’s post
In our “Why Participatory Medicine” series, leading up to the October 21 launch of the Journal of Participatory Medicine, tomorrow’s guest post will be a special treat for me. It contains a breakthrough insight about participatory medicine, and it’s a perfect example of how social media is enabling a wildfire acceleration of the spread of [...]
Read Morekey people, positive patterns, reforming hc, trends & principles, Why PM
Journal of Participatory Medicine and e-Patients
A guest post by John Sharp of the Cleveland Clinic: If you have not read the e-Patient White Paper, you do not understand the future of medicine. Being an e-Patient is beyond being empowered. The subtitle of the paper, “How they can help us heal healthcare,” describes the potential for a revolution of change. Why [...]
Read Moree-pts resources, hc's problem list, policy issues, trends & principles, Why PM
Social media and healthcare: hospitals lead
A signal moment has happened: When a major business authority with no history in healthcare speaks up about a shift in the wind, it’s worth noting. And this time it’s a great sign for participatory medicine, because the news is that hospitals are engaging with patients. My company’s been working with hospitals the last few [...]
Read Moremedical records, policy issues, reforming hc, trends & principles, Why PM
What Participatory Medicine can learn from a $2,467 phone bill
Fair warning: in the weeks leading up to the October 21 launch of the Journal of Participatory Medicine, just about everything you see here is going to tie in to the society and journal. A fundamental tenet of PM is that patients (ordinary citizens, toi et moi) have more to contribute than we’ve ever thought. [...]
Read Morechapter reviews, general, positive patterns, pt/doc co-care, trends & principles, Why PM
Participatory Medicine around the world: the Seven Preliminary Conclusions reach India
A Google alert popped up today, saying that a participatory physician in India had cited this blog. Don’t we love it when social media let empowering information spread! It’s exactly what our founder “Doc Tom” predicted with his now-famous 1995 triangle slides: the internet gives us access to information and to each other, which puts [...]
Read Morehc's problem list, medical records, policy issues
“HIPAA is SO 1996″
That’s a direct quote from Paul Tang, of the Palo Alto Medical Foundation, at last week’s meeting of the Health IT Policy committee, of which he is vice chair. Dr. Tang was riffing on an e-Patient Dave quote, which I read during my testimony: I want innovation at a rate that resembles the rate of [...]
Read Morepolicy issues, positive patterns, pt/doc co-care, trends & principles, Why PM
Give patients (that’s you) access to all their (your) data – so they can help
Cross-posted from my website, ePatientDave.com – the happy home for my new business! I’ve just returned from Toronto, where I gave the opening keynote at the Medicine 2.0 Congress. It was titled “Gimme My Damn Data,” which is an unconventional title for an opening address, but I meant it. Here’s why. A new world of [...]
Read Moregeneral, hc's problem list, medical records, news & gossip, policy issues, reforming hc
Why Electronic Medical Records Still Leak
I hear it time and time again in the e-health industry: “If only we had everyone on an electronic medical record, all of our security and privacy issues would be solved!” Really? Perhaps I should introduce you to a little something psychologists like to call “human behavior.” Human behavior will always trump technology when it [...]
Read Moregeneral, Why PM
Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!
Matthew Herper’s post about thalidomide treatment of Myeloma is a good example of how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who get involved to this degree in formulating new treatment approaches.
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