Society for Participatory Medicine
e-patients.net blog
medical records, policy issues, reforming hc
Health IT Policy: E-patients want access
What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information. Many will find what they need, many will not. You can help.
Read Moremedical records, policy issues, pt/doc co-care, trends & principles
Dennis Quaid on Electronic Medical Records (CBS Sunday Morning)
Actor Dennis Quaid has become an advocate for electronic medical records. In 2007 his 12 day old twins received a massive accidental overdose (10,000 units of heparin instead of 10 units), a near-fatal error that could have been prevented by the kind of bar code technology that the VA has been using for decades. (Yes, folks, [...]
Read Morepolicy issues
HIPAA’s Broken Promise
If you hate HIPAA, it’s your lucky day. Paul Ohm is handing you ammunition in his article, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” His argument: our current information privacy structure is a house built on sand. “Computer scientists…have demonstrated they can often ‘reidentify’ or ‘deanonymize’ individuals hidden in anonymized data [...]
Read Moree-patient stories, key people, reforming hc
Regina Holliday’s mural is in the BMJ
We’ve written here before about Regina Holliday (follow her blog), whose husband Fred died June 17. In today’s edition of the British Medical Journal, her mural is the picture of the week: Ted Eytan MD took the picture and posted it on Flickr. Today he sent this email to Reggie: ====== Dear Regina, You made [...]
Read Moree-pts resources, net-friendly docs, patient networks, positive patterns, pt/doc co-care, pts as teachers, reforming hc, trends & principles
e-Patients and Participatory Physicians Creating Podcasts
I can barely contain my happiness (oh heck, I’ll let it spill) at this: participatory patients and physicians creating educational content, using free internet software tools, and posting it for people to read (free) around the world. I’m a member of the ACOR kidney cancer patient listserv, and a patient at Boston’s Beth Israel Deaconess [...]
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