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	<title>A family becomes e-patients, of necessity — and succeedsComments on: --</title>
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	<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html</link>
	<description>because health professionals can&#039;t do it alone</description>
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		<title>By: New FDA book: &#8220;Communicating Risks and Benefits: An Evidence-Based User&#8217;s Guide&#8221; &#124; e-Patients.net</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-84100</link>
		<dc:creator>New FDA book: &#8220;Communicating Risks and Benefits: An Evidence-Based User&#8217;s Guide&#8221; &#124; e-Patients.net</dc:creator>
		<pubDate>Wed, 31 Aug 2011 14:40:58 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-84100</guid>
		<description>[...] post by SPM member Gangadhar Sulkunte. We posted his family&#8217;s e-patient story two years [...]</description>
		<content:encoded><![CDATA[<p>[...] post by SPM member Gangadhar Sulkunte. We posted his family&#8217;s e-patient story two years [...]</p>
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		<title>By: Sheila</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-74010</link>
		<dc:creator>Sheila</dc:creator>
		<pubDate>Tue, 22 Feb 2011 14:59:54 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-74010</guid>
		<description>Unfortunately there are many cases like this, and not all of them have an happy ending. This was a happy event that those parents discover the problem on time,today the internet gives us many solutions to our problems, with no costs.</description>
		<content:encoded><![CDATA[<p>Unfortunately there are many cases like this, and not all of them have an happy ending. This was a happy event that those parents discover the problem on time,today the internet gives us many solutions to our problems, with no costs.</p>
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		<title>By: Invitation: crowdsource the definition of &#8220;Patient Centered Outcomes&#8221; &#124; e-Patients.net</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-74007</link>
		<dc:creator>Invitation: crowdsource the definition of &#8220;Patient Centered Outcomes&#8221; &#124; e-Patients.net</dc:creator>
		<pubDate>Tue, 22 Feb 2011 13:47:20 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-74007</guid>
		<description>[...] from SPM member Gangadhar Sulkunte (Twitter @gangadhargs). See also his family&#8217;s intense personal e-patient story from [...]</description>
		<content:encoded><![CDATA[<p>[...] from SPM member Gangadhar Sulkunte (Twitter @gangadhargs). See also his family&#8217;s intense personal e-patient story from [...]</p>
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		<title>By: Will patients be involved in Patient-Centered Outcomes research? &#124; e-Patients.net</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-65611</link>
		<dc:creator>Will patients be involved in Patient-Centered Outcomes research? &#124; e-Patients.net</dc:creator>
		<pubDate>Thu, 02 Dec 2010 16:02:07 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-65611</guid>
		<description>[...] year ago Ganghadar Sulkunte shared his story here about how he and his wife became e-patients of necessity, and succeeded, resolving a significant [...]</description>
		<content:encoded><![CDATA[<p>[...] year ago Ganghadar Sulkunte shared his story here about how he and his wife became e-patients of necessity, and succeeded, resolving a significant [...]</p>
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		<title>By: medXcentral (Jim)</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-49905</link>
		<dc:creator>medXcentral (Jim)</dc:creator>
		<pubDate>Thu, 15 Oct 2009 00:46:10 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-49905</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;A family becomes e-patients, of necessity - and succeeds. ( http://ping.fm/bLMw1 )&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">A family becomes e-patients, of necessity &#8211; and succeeds. ( <a href="http://ping.fm/bLMw1" rel="nofollow">http://ping.fm/bLMw1</a> )</span></span></span></p>
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		<title>By: medXcentral (Jim)</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-49906</link>
		<dc:creator>medXcentral (Jim)</dc:creator>
		<pubDate>Wed, 14 Oct 2009 19:46:10 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-49906</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;A family becomes e-patients, of necessity - and succeeds. ( http://ping.fm/bLMw1 ) http://bit.ly/22I8G0&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">A family becomes e-patients, of necessity &#8211; and succeeds. ( <a href="http://ping.fm/bLMw1" rel="nofollow">http://ping.fm/bLMw1</a> ) <a href="http://bit.ly/22I8G0" rel="nofollow">http://bit.ly/22I8G0</a></span></span></span></p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-49907</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Tue, 13 Oct 2009 02:56:19 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-49907</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Thank YOU for SHARING it! http://is.gd/4gh1n RT @hlogapp: @ePatientDave Thank you for posting our story on your blog!&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Thank YOU for SHARING it! <a href="http://is.gd/4gh1n" rel="nofollow">http://is.gd/4gh1n</a> RT @hlogapp: @ePatientDave Thank you for posting our story on your blog!</span></span></span></p>
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		<title>By: Cindy Throop</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-56024</link>
		<dc:creator>Cindy Throop</dc:creator>
		<pubDate>Tue, 13 Oct 2009 00:55:18 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-56024</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;#whyPM --&gt; Check out @hlogapp&#039;s experience with participatory medicine http://tinyurl.com/yjqa394&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">#whyPM &#8211;&gt; Check out @hlogapp&#39;s experience with participatory medicine <a href="http://tinyurl.com/yjqa394" rel="nofollow">http://tinyurl.com/yjqa394</a></span></span></span></p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-49908</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Sun, 11 Oct 2009 13:55:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-49908</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Rough story w/happy ending: Young family becomes e-patients by necessity; succeeds http://is.gd/4cxtj (e-patients.net)&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Rough story w/happy ending: Young family becomes e-patients by necessity; succeeds <a href="http://is.gd/4cxtj" rel="nofollow">http://is.gd/4cxtj</a> (e-patients.net)</span></span></span></p>
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		<title>By: Amy Romano</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-48164</link>
		<dc:creator>Amy Romano</dc:creator>
		<pubDate>Sun, 11 Oct 2009 13:46:14 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-48164</guid>
		<description>There are so many aspects of this story that are familiar to me. First, the care (or lack thereof) that this family received around the time of their pregnancy loss is quite typical in our system. Although there is very low chance, if any, of saving a baby once a miscarriage has begun, it does not mean women shouldn&#039;t get expert care around this time. For one, there are risks to the mother. For another, patients have very significant emotional and informational needs at this time, not the least of which is reassurance that they didn&#039;t do anything wrong to cause the miscarriage. About 25% of pregnancies end in miscarriage, which amounts to a lot of missed opportunities to give this emotional and informational support. 

The other familiar aspect is that this family ultimately chose a home birth with a midwife for the birth of their child. I personally believe that this is a healthy choice for healthy women with uncomplicated pregnancies and access to hospital care if the need arises.  I spent most of my midwifery career working in out-of-hospital settings, and I can attest that the best source of business for homebirth and birth center midwives is our dysfunctional hospital-based maternity care system. So many women who never considered having a baby anywhere but the hospital came to us for their subsequent births because they had been traumatized or just simply disappointed in their previous maternity care experiences. Certainly by far the best place to get *participatory* maternity care these days is in a home birth or birth center settings. Unfortunately, not all women can or should give birth in these settings, and they&#039;re too often stuck with the opposite of participatory care. &lt;a href=&quot;http://www.theunnecesarean.com/blog/2009/10/1/page-hospital-in-arizona-threatens-woman-with-court-ordered.html&quot; rel=&quot;nofollow&quot;&gt;The story of a woman&lt;/a&gt; who is fighting to have a vaginal birth after a prior c-section at Page Hospital in Arizona provides a poignant example of this. The hospital is threatening her with court-ordered surgery if she arrives at the hospital in labor (despite the fact that she *had* a VBAC at the same hospital 2 years ago before the hospital had changed their policy). I am told that this particular woman is planning to give birth at a hospital 5 hours away from her home (a hardship, given that she has 3 kids to look after). But an increasing number of women in her situation are choosing to have home births, sometimes without any professional attending them at all.</description>
		<content:encoded><![CDATA[<p>There are so many aspects of this story that are familiar to me. First, the care (or lack thereof) that this family received around the time of their pregnancy loss is quite typical in our system. Although there is very low chance, if any, of saving a baby once a miscarriage has begun, it does not mean women shouldn&#8217;t get expert care around this time. For one, there are risks to the mother. For another, patients have very significant emotional and informational needs at this time, not the least of which is reassurance that they didn&#8217;t do anything wrong to cause the miscarriage. About 25% of pregnancies end in miscarriage, which amounts to a lot of missed opportunities to give this emotional and informational support. </p>
<p>The other familiar aspect is that this family ultimately chose a home birth with a midwife for the birth of their child. I personally believe that this is a healthy choice for healthy women with uncomplicated pregnancies and access to hospital care if the need arises.  I spent most of my midwifery career working in out-of-hospital settings, and I can attest that the best source of business for homebirth and birth center midwives is our dysfunctional hospital-based maternity care system. So many women who never considered having a baby anywhere but the hospital came to us for their subsequent births because they had been traumatized or just simply disappointed in their previous maternity care experiences. Certainly by far the best place to get *participatory* maternity care these days is in a home birth or birth center settings. Unfortunately, not all women can or should give birth in these settings, and they&#8217;re too often stuck with the opposite of participatory care. <a href="http://www.theunnecesarean.com/blog/2009/10/1/page-hospital-in-arizona-threatens-woman-with-court-ordered.html" rel="nofollow">The story of a woman</a> who is fighting to have a vaginal birth after a prior c-section at Page Hospital in Arizona provides a poignant example of this. The hospital is threatening her with court-ordered surgery if she arrives at the hospital in labor (despite the fact that she *had* a VBAC at the same hospital 2 years ago before the hospital had changed their policy). I am told that this particular woman is planning to give birth at a hospital 5 hours away from her home (a hardship, given that she has 3 kids to look after). But an increasing number of women in her situation are choosing to have home births, sometimes without any professional attending them at all.</p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-54643</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Sun, 11 Oct 2009 05:37:16 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-54643</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Rough story, happy ending on e-patients.net: Young family becomes e-patients of necessity, and succeeds http://is.gd/4cxtj&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Rough story, happy ending on e-patients.net: Young family becomes e-patients of necessity, and succeeds <a href="http://is.gd/4cxtj" rel="nofollow">http://is.gd/4cxtj</a></span></span></span></p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/10/a-family-becomes-e-patients-of-necessity-%e2%80%94-and-succeeds.html/comment-page-1#comment-49909</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Sun, 11 Oct 2009 00:37:16 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3449#comment-49909</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Rough story, happy ending on e-patients.net: Young family becomes e-patients of necessity, and succeeds http://is.gd/4cxtj&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Rough story, happy ending on e-patients.net: Young family becomes e-patients of necessity, and succeeds <a href="http://is.gd/4cxtj" rel="nofollow">http://is.gd/4cxtj</a></span></span></span></p>
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