Superheroes and rock stars at the Institute of MedicineComments on: --

By: Healthcare Out Loud | e-Patients.net

Healthcare Out Loud | e-Patients.net — Fri, 25 Feb 2011 15:05:32 +0000

[...] data with insights gathered in an online survey of people living with rare conditions. Talk about superheroes – I have been floored by the stories I’ve been reading, both in our survey and in a new [...]

By: SusannahFox

SusannahFox — Sat, 05 Jun 2010 00:01:12 +0000

IOM book is based on a cancer research symposium including @gfry @jamie_heywood and many others. Background: http://bit.ly/451kHW

By: SusannahFox

SusannahFox — Wed, 07 Apr 2010 20:30:40 +0000

@lostonroute66 @epatientdave More Ken Buetow quotes http://bit.ly/Pbtf2 #eNLM

By: Cariunciani

Cariunciani — Wed, 10 Feb 2010 05:11:49 +0000

Hi, as you can see this is my first post here.
Hope to get any help from you if I will have some quesitons.
Thanks and good luck everyone! ;)

By: Participatory Medicine in Time magazine | e-Patients.net

Participatory Medicine in Time magazine | e-Patients.net — Mon, 01 Feb 2010 12:56:43 +0000

[...] Time’s freelance reporter Bonnie Rochman contacted our Susannah Fox to discuss her remarks at the Institute of Medicine last October. [...]

By: What’s the point of Health 2.0? | e-Patients.net

What’s the point of Health 2.0? | e-Patients.net — Mon, 01 Feb 2010 02:58:13 +0000

[...] questions, and speak at conferences where people either know too much about what I study or know so little that I come off as some kind of oracle from the [...]

By: ePatientDave

ePatientDave — Fri, 29 Jan 2010 19:56:36 +0000

Coverage of October IOM mtg: RT @SusannahFox: You heard it first on e-pts.net: http://bit.ly/Pbtf2 :: Time's version: http://is.gd/7eThu

By: SusannahFox

SusannahFox — Fri, 29 Jan 2010 14:24:26 +0000

You heard it here first: http://bit.ly/Pbtf2 :: Time magazine's version: http://is.gd/7eThu

By: A Personal Appeal from ACOR Founder Gilles Frydman » ACOR Blog

A Personal Appeal from ACOR Founder Gilles Frydman » ACOR Blog — Sat, 19 Dec 2009 18:17:13 +0000

[...] those who are building the medical system we will all use tomorrow. Just over a month ago I testified at the Institute of Medicine, demonstrating to CEOs of the largest cancer centers the importance of [...]

By: links for 2009-10-21 « Working Notes 2.0

links for 2009-10-21 « Working Notes 2.0 — Wed, 21 Oct 2009 20:07:41 +0000

[...] Superheroes and rock stars at the Institute of Medicine | e-Patients.net "The Institute of Medicine’s recent workshop on building a rapid-learning system for cancer became, for an hour or so, a seminar on participatory medicine." Useful model for KX and LTCs? (tags: learning socialmedia health2.0 example) [...]

By: cynthia manley

cynthia manley — Thu, 15 Oct 2009 21:15:23 +0000

Kudos on a nice blog post at http://www.e-patients.net, @SusannahFox! http://ow.ly/uB78

By: Susannah Fox

Susannah Fox — Thu, 15 Oct 2009 16:09:52 +0000

Lindsey, thanks for introducing yourself at the meeting – always nice to meet a Twitter avatar in person :) I’m glad to hear that you’re optimistic, too – I wonder if all attendees feel the same?

Susan, thanks for sharing that link and for one of the best compliments possible: that my summary is the next best thing to being there. We can’t be everywhere at once, but that’s what social media is for.

By: Susannah Fox

Susannah Fox — Thu, 15 Oct 2009 16:03:50 +0000

Carol, thanks so much – it was your idea that I write this post!

I was feeling whipsawed last week between the established ways (Institute of Medicine) and new ways (Health 2.0). I haven’t yet sorted out my impressions and conclusions from Health 2.0, but The Health Care Blog (http://www.thehealthcareblog.com/) is showcasing some great round-ups and icyou has posted speech excerpts and interviews (http://www.icyou.com/channel/health-2-0s-channel).

By: Jerry Fahrni

Jerry Fahrni — Thu, 15 Oct 2009 15:58:43 +0000

RT @JourPM: #WhyPM Information and knowledge are living processes. Learning systems require constant iterative updates. http://bit.ly/2MitmL

By: Alan Greene

Alan Greene — Thu, 15 Oct 2009 15:49:43 +0000

Positive sea change: Participatory Medicine at the Institute of Medicine: http://bit.ly/gIsJN by @SusannahFox

By: Susan Promislo

Susan Promislo — Thu, 15 Oct 2009 14:01:27 +0000

I wouldn’t have predicted the linkage between rapid learning and social media, but now that it’s been made, it’s a beautiful thing. Lynn Etheredge has written more on the potential for rapid learning systems to transform medical knowledge and health care delivery here: http://www.rwjf.org/pr/product.jsp?id=15544.

Wish I could have made the meeting, but this summary is the next best thing! Thanks, Susannah.

-Susan

By: arthurwlane

arthurwlane — Thu, 15 Oct 2009 13:40:28 +0000

Superheroes and rock stars at the Institute of Medicine (e-patients): http://bit.ly/3SG5lR

By: Lindsey Hoggle

Lindsey Hoggle — Thu, 15 Oct 2009 13:16:11 +0000

Susannah,

Having been to many like conferences over the years,this was one of the most refreshing yet. The moderator comment at the end summed it up beautifully–”We brought these two groups together (researchers and Health 2.0) to see if further discussion/collaboration is warranted. By the response of the crowd, we can see that it is.” Keep up the great work, thanks for providing a fantastic synopsis and kudos for stressing that both groups have to learn about each other (which sometimes prompts very basic questions.)A powerful day of hope.
Lindsey

By: Gilles Frydman

Gilles Frydman — Thu, 15 Oct 2009 11:15:51 +0000

#WhyPM Information and knowledge are living processes. Learning systems inherently require constant iterative updates. http://bit.ly/2MitmL

By: Carol Torgan, Ph.D.

Carol Torgan, Ph.D. — Thu, 15 Oct 2009 02:45:39 +0000

Susannah –

Thank you for sharing your experience – and the raw data set (the tweets!). To paraphrase you, “The philosophies driving participatory medicine will only transform health care if everyone will…participate.”

Carol