Society for Participatory Medicine
e-patients.net blog
general
Shared Decision Making: Informed Consent v. Informed Choice
This guest post, presenting the view point of Howard Luks ( @hjluks on Twitter). Howard is an orthopedic surgeon. He serves as the Chief of Sports Medicine, Arthroscopy and Knee Replacement at Westchester Medical Center, in Westchester County, NY. Asked about participatory medicine and patient engagement, Howard told me “I am infinitely intrigued by the possible [...]
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Terrorized By The ‘War On Cancer’
How a Three-Word Mantra Has Undermined America’s Ability To Make Sound Healthcare Decisions with apologies to Zbigniew Brzezinski In his original article about the war on terror Brzezinski argues that the use of the term War on Terror was intended to generate a culture of fear deliberately because it “obscures reason, intensifies emotions and makes it [...]
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Engage With Grace
Alexandra Drane and her team have a new post on The Health Care Blog about how to put this holiday to work in a new way. Here’s a snippet: Some conversations are easier than others Our original mission – to get more and more people talking about their end of life wishes – hasn’t changed. [...]
Read Moree-pts resources, positive patterns, understanding statistics
A new blog worth noting: “Evidence In Medicine”
Understanding medical research, at some level, is a fundamental e-patient skill. As we start digging for reliable new information, we have to learn to separate quality from questionable. (If you think medical journals are academically pure, you’ve got learning to do.) A new blogger has emerged who’ll be a big help: David Rind, MD.
Read Moregeneral, hc's problem list, policy issues, reforming hc
Woman Loses Health Insurance Due to Facebook
Imagine a world you live in where every insurance offering is accompanied by a creepy set of Big Brother-like ongoing investigations into your life. Everything will be used as evidence against you. Yes, even your Facebook profile. That world is here. Well, not right here, but up north in Canada. Yes, a Canadian insurance company [...]
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The Pew Internet/Health FAQ
A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your questions and answers in the comments: What are you curious [...]
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A Mission 2 End Diabetes
I like to invite all students, teachers, researchers, and entrepreneurs within the ‘earshot’ of this announcement to ‘listen’ carefully. If you have an idea (conceptual or a working model) of a way to help educate, treat, and/or diagnosis diabetes in rural areas with an annual budget of $200,000.00, then I need to talk with you [...]
Read Moree-pts resources, pts as teachers, Why PM
ICMCC: Perhaps the single most valuable e-patient info site
In last weekend’s post about “patients want all their data” I said I wished I’d known about the article (published mid-May) during last summer’s health data debates in Washington. Incredible Dutch e-patient Lodewijk Bos tweaked me, saying he’d posted it the day it was released. That led me to ask him to offer email subscriptions. [...]
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Participatory medicine and health data rights on NPR
NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on [...]
Read Moreethics, hc's problem list, positive patterns, pt/doc co-care, reforming hc, Why PM
MITSS: Much-needed support after medical errors
Ten years ago this week, 11/18/99, Linda Kenney was scheduled for ankle replacement surgery. She woke up three days later in the ICU. Her chest had been cut open. She was in the hospital ten days. And nobody talked about what had happened. What had happened is that the nerve block administered to her ankle (a [...]
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