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	<title>From incurable to &#8220;We can now call you cured&#8221;: Cheryl Greene&#8217;s storyComments on: --</title>
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	<link>http://e-patients.net/archives/2009/11/from-incurable-to-we-can-now-call-you-cured-cheryl-greenes-story.html</link>
	<description>because health professionals can&#039;t do it alone</description>
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		<title>By: MsGreene</title>
		<link>http://e-patients.net/archives/2009/11/from-incurable-to-we-can-now-call-you-cured-cheryl-greenes-story.html/comment-page-1#comment-55869</link>
		<dc:creator>MsGreene</dc:creator>
		<pubDate>Sun, 15 Nov 2009 00:46:43 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3771#comment-55869</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Thx @JJseidman for RT E-patient epic @MsGreene 1996 participatory patient, from &quot;months to live&quot; to &quot;cured&quot; http://is.gd/4T6RD&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Thx @JJseidman for RT E-patient epic @MsGreene 1996 participatory patient, from &quot;months to live&quot; to &quot;cured&quot; <a href="http://is.gd/4T6RD" rel="nofollow">http://is.gd/4T6RD</a></span></span></span></p>
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		<title>By: Lodewijk Bos</title>
		<link>http://e-patients.net/archives/2009/11/from-incurable-to-we-can-now-call-you-cured-cheryl-greenes-story.html/comment-page-1#comment-48613</link>
		<dc:creator>Lodewijk Bos</dc:creator>
		<pubDate>Fri, 13 Nov 2009 08:29:59 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3771#comment-48613</guid>
		<description>Cheryl, many congratulations and thank you for sharing this story.</description>
		<content:encoded><![CDATA[<p>Cheryl, many congratulations and thank you for sharing this story.</p>
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		<title>By: Gilles Frydman</title>
		<link>http://e-patients.net/archives/2009/11/from-incurable-to-we-can-now-call-you-cured-cheryl-greenes-story.html/comment-page-1#comment-48605</link>
		<dc:creator>Gilles Frydman</dc:creator>
		<pubDate>Thu, 12 Nov 2009 15:25:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3771#comment-48605</guid>
		<description>Cheryl,

I remember too the first time we met, invited by Tom  Ferguson, to start working collaboratively on the e-Patients White Paper and realizing that while we started ACOR because of the wrong diagnosis given to my wife and the absurd treatments the &amp;^%$#@ breast surgeon who played G_d wanted to give a woman with Stage 0 breast cancer, you had been through the almost exact opposite, dealing with an instantly life threatening situation. I have never forgotten! 

Written down the story is even more powerful than what I remembered. I hope many people will read it.</description>
		<content:encoded><![CDATA[<p>Cheryl,</p>
<p>I remember too the first time we met, invited by Tom  Ferguson, to start working collaboratively on the e-Patients White Paper and realizing that while we started ACOR because of the wrong diagnosis given to my wife and the absurd treatments the &#038;^%$#@ breast surgeon who played G_d wanted to give a woman with Stage 0 breast cancer, you had been through the almost exact opposite, dealing with an instantly life threatening situation. I have never forgotten! </p>
<p>Written down the story is even more powerful than what I remembered. I hope many people will read it.</p>
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		<title>By: Joshua Seidman</title>
		<link>http://e-patients.net/archives/2009/11/from-incurable-to-we-can-now-call-you-cured-cheryl-greenes-story.html/comment-page-1#comment-55870</link>
		<dc:creator>Joshua Seidman</dc:creator>
		<pubDate>Thu, 12 Nov 2009 13:29:35 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3771#comment-55870</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;A must-read: RT @ePatientDave E-patient epic @MsGreene 1996 participatory patient,from &quot;months to live&quot; to &quot;cured&quot; http://is.gd/4T6RD #WhyPM&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">A must-read: RT @ePatientDave E-patient epic @MsGreene 1996 participatory patient,from &quot;months to live&quot; to &quot;cured&quot; <a href="http://is.gd/4T6RD" rel="nofollow">http://is.gd/4T6RD</a> #WhyPM</span></span></span></p>
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		<title>By: Joshua Seidman</title>
		<link>http://e-patients.net/archives/2009/11/from-incurable-to-we-can-now-call-you-cured-cheryl-greenes-story.html/comment-page-1#comment-48604</link>
		<dc:creator>Joshua Seidman</dc:creator>
		<pubDate>Thu, 12 Nov 2009 13:25:42 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3771#comment-48604</guid>
		<description>Cheryl,
I vividly remember Alan sharing your story at one of our Ix conferences many years ago and it brought everything together.  Reading it in your own words is even more powerful.  Thanks so much for sharing.
Josh</description>
		<content:encoded><![CDATA[<p>Cheryl,<br />
I vividly remember Alan sharing your story at one of our Ix conferences many years ago and it brought everything together.  Reading it in your own words is even more powerful.  Thanks so much for sharing.<br />
Josh</p>
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		<title>By: Meredith Gould</title>
		<link>http://e-patients.net/archives/2009/11/from-incurable-to-we-can-now-call-you-cured-cheryl-greenes-story.html/comment-page-1#comment-48600</link>
		<dc:creator>Meredith Gould</dc:creator>
		<pubDate>Thu, 12 Nov 2009 11:56:20 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3771#comment-48600</guid>
		<description>Perfect post to read on the morning of the FDA hearings about social media. This paragraph grabbed and held my attention:

&quot;I fully believe that some of the healthiest people in the world are those who are living with a chronic disease and managing it well. Those of us who have gone through a life-changing threat to our existence have sought out information about the world we live in, the food we eat, the air we breathe… we want to do anything and everything we can to regain and maintain our health.&quot;

After reading it I thought, &quot;May we muster the strength, courage, and generosity to share our insights with others.&quot;  Clearly, the contributors here are doing so.</description>
		<content:encoded><![CDATA[<p>Perfect post to read on the morning of the FDA hearings about social media. This paragraph grabbed and held my attention:</p>
<p>&#8220;I fully believe that some of the healthiest people in the world are those who are living with a chronic disease and managing it well. Those of us who have gone through a life-changing threat to our existence have sought out information about the world we live in, the food we eat, the air we breathe… we want to do anything and everything we can to regain and maintain our health.&#8221;</p>
<p>After reading it I thought, &#8220;May we muster the strength, courage, and generosity to share our insights with others.&#8221;  Clearly, the contributors here are doing so.</p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2009/11/from-incurable-to-we-can-now-call-you-cured-cheryl-greenes-story.html/comment-page-1#comment-50119</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Thu, 12 Nov 2009 10:24:22 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=3771#comment-50119</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;E-patient epic: @MsGreene=1996 participatory patient, from &quot;months to live&quot; to &quot;cured&quot; http://is.gd/4T6RD #WhyPM&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">E-patient epic: @MsGreene=1996 participatory patient, from &quot;months to live&quot; to &quot;cured&quot; <a href="http://is.gd/4T6RD" rel="nofollow">http://is.gd/4T6RD</a> #WhyPM</span></span></span></p>
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