Society for Participatory Medicine
e-patients.net blog
e-pts resources, medical records, pt/doc co-care, trends & principles
From Ted Eytan’s blog: “Now Reading: Patients actually want their entire medical record”
An important study just got my attention. Patients and clinicians in different cities were asked questions about concerns and preferences. Titled “Insights for Internists: ‘I Want the Computer to Know Who I Am’,” the study reports: (emphasis added) Patients do keep their own medical records They want access to everything in their record Privacy worries [...]
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#FDASM: + ca change, + c’est la meme chose
The FDA is holding a public hearing on the “Promotion of FDA-Regulated Medical Products Using the Internet and Social Media Tools.” There is a tremendous amount of buzz on Twitter and blogs about this meeting which will hear 60 speakers, some more than once. As ABC News Business division reports this morning “Drug Industry Presses [...]
Read Moree-patient stories, others' e-patient stories, positive patterns, Why PM
From incurable to “We can now call you cured”: Cheryl Greene’s story
Here’s another true e-patient story from one of our team. Cheryl Greene is third from the left in the banner at top of this blog. She’s a long-time friend of our founder “Doc Tom” Ferguson, a board member of the Society for Participatory Medicine, executive producer of DrGreene.com (AMA: “the pioneer physician web site on [...]
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Regina Holliday’s “73 cents” story on NPR
An interview Regina Holliday appeared yesterday on NPR’s All Things Considered. More on this later, but I want to get it posted.
Read Moremedical records, positive patterns, pt/doc co-care, trends & principles, Why PM
Why Participatory Medicine?
For most people, their impetus to be actively engaged in healthcare comes from an experience with serious illness—either their own or a loved one’s. My journey into participatory medicine began during my internal medicine residency at Boston City Hospital, a public urban hospital, in the late 1980s. While there, I had a number of realizations [...]
Read Morepolicy issues
Tell the FDA the whole story, please
I scan menus for keywords (fig, parsnips, salmon…) and it turns out I scan Twitter the same way, looking for anyone who is talking about my favorite topics (data, consumers, information quality…) So when I saw Jonathan Richman‘s tweet the other night, I couldn’t resist it: Anyone ever seen data on the overall accuracy of [...]
Read Morematernity, positive patterns, trends & principles
Low-Tech Models of Participatory Medicine: The Astounding Results of Group Prenatal Care
A signal moment in the history of this blog was the arrival in late summer of a new ally, the birthing movement, represented by Amy Romano, the blogger at Science and Sensibility, the Lamaze International blog. Amy gets it: participatory medicine is not just about the internet – it’s about being empowered and engaged. Her [...]
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