Society for Participatory Medicine
e-patients.net blog
general
What’s in your… bucket queue?
Prolog: Cheryl said she wasn’t sure whether this post belonged on the e-patient blog. It sure does: When lives are prolonged by medical success, we get to do all kinds of things we wouldn’t have. It also belongs here because this short little piece contains a terrific and empowering “mind pop” at the end. Enjoy. [...]
Read Moremedical records, policy issues, trends & principles, Why PM
“The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009
The Quantified Self (aka “QS”) is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional “Show&Tell” meet-ups, with elbow-rubbing and a series of quick talks, 10-15 minutes each. A few weeks ago I was in town for a [...]
Read Moredemographics
Access is (almost) everything
Or: Why health geeks should pay attention to internet access geeks. The Pew Research Center’s Hispanic Project and Internet Project just released an in-depth look at internet penetration across racial and ethnic categories in the U.S.: Latinos Online, 2006-2008 From 2006 to 2008, internet use among Latino adults rose by 10 percentage points, from 54% to 64%. [...]
Read Morenews & gossip, pt/doc co-care, trends & principles, Why PM
PeoplesPharmacy.com in NYTimes: “Not All Drugs Are the Same After All”
We’re thrilled to see our Joe and Terry Graedon, of PeoplesPharmacy.com, in the New York Times (“Not All Drugs Are the Same After All”) telling a truth that the FDA hasn’t figured out: generics don’t always work the same as the brand name drug. Joe and Terry exemplify the participatory medicine movement. He’s a pharmacologist, and she’s a PhD [...]
Read Moremedical records, policy issues, reforming hc, trends & principles
“Concern that sharing information with patients may cause sustained psychological distress is probably unfounded”
Cross-posted, with prolog, from the blog of Ted Eytan MD. Yesterday the Institute for Healthcare Improvement’s “WIHI” series hosted a terrific webcast on the Open Notes project that’s being funded by the Robert Wood Johnson Foundation. (I need to dig up the link to the event’s archive, but I’m in a hurry.) Speakers were Dr. [...]
Read Morenet-friendly docs
Ahem. :-)
I am about to punk my well-known doctor. :–) Me being me, I just had my annual physical. Great visit and all that. Yesterday I got a letter about my lab results. My cholesterol and weight are trending unfavorably, so the good doctor said “you need to take lifestyle changes more seriously to reduce your [...]
Read Morehc's problem list, medical records, policy issues, pt/doc co-care
What part of “Give us our damn data” do you not understand?
Yesterday I attended “How Access to Information Can Empower Patients and their Caregivers,” conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no web site of its own – it’s just a Partnership for Consumer eHealth (duh), convening to [...]
Read Moregeneral
2010: The Year of Open Streams & Fax Machines
I started writing this post while watching a livestream of the LeWeb09 conference in Paris and finished it while watching a livestream of TEDxSV. Open Streams are of many kinds and shapes. They are completely changing how we consume information, news & entertainment. .. It could be a joke and it could be funny! Instead, it [...]
Read Morefound on the net
Journal of Participatory Medicine cited on Scientific American blog
Scientific American writer Robin Lloyd (Twitter: @RobinLloyd99) has written a nice, clear, hit-the-nail-on-the-head post on their blog about our Journal of Participatory Medicine.
Read Morefound on the net
Stupid Cancer Show
Listen in at 9pm Eastern on Monday, 12/14, to The Stupid Cancer Show. Host Matthew Zachary will interview Edward Shin, MD, founder of Healogica, Inc., Jane Sarasohn-Kahn, a health economist and blogger, and… me!
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