Society for Participatory Medicine
e-patients.net blog
The Quantified Self (aka “QS”) is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional “Show&Tell” meet-ups, with elbow-rubbing and a series of quick talks, 10-15 minutes each.
A few weeks ago I was in town for a talk at the northern California chapter of HIMSS on personal health records. Matthew Holt of Health 2.0 and The Health Care Blog told me QS was meeting that Monday, at the headquarters of Wired magazine.
I registered, and at the end it asked “You wanna present?” I never say no to that, though I didn’t know what I’d talk about.
Turns out host Gary Isaac Wolf was really interested in the little spreadsheet where I’d tracked my tumor sizes as my treatment progressed. :–) So in the context of “quantified self,” my topic became “the quantified patient.”
This is an informal production – audio from a camcorder (no mic) blended with my slides and a few other images. It was fun: a responsive, engaged audience. Thanks to the QS gang for the opportunity.
Related notes -
- QS is a project of Wired‘s Gary Isaac Wolf (Associate Editor) and Kevin Kelly (Founding Executive Editor). “KK,” as he’s known, is also on the advisory board of our Journal of Participatory Medicine.
- KK’s videos on Vimeo include several others from that night. (Arg: the room was so full the camera had to shoot the speakers from the side – no slides!)
- Among the other presenters that night:
- Spectacular e-patient and #getupandmove entrepreneur Jen McCabe
- Spectacular human and entrepreneur Esther Dyson, also on JoPM’s advisory board.
RT @ePatientDave: New on e-patients.net: "The Quantified Patient" – my talk at Quantified Self 12/7/09 http://is.gd/5DoHF
Adding hashtag #qs New on e-patients.net: "The Quantified Patient" – my talk at Quantified Self 12/7/09 http://is.gd/5DoHF
“The Quantified Patient”: great @ePatientDave talk at Quantified Self http://bit.ly/55XgMF #qs
@paulroemer Videos. :) (This talk http://is.gd/5DoHF at the moment; probably some vidcasts.)
RT @ePatientDave: New on e-patients.net: "The Quantified Patient" -Dave talks at Quantified Self 12/7/09 (good stuff!) http://is.gd/5DoHF
A true inspiration: 'The Quantified Patient': @ePatientDave 's talk at “Quantified Self” show&tell, December 2009 ~ http://bit.ly/4Nn160
Well done Dave! You are a true inspiration and effective spokesperson for this promising movement.
Loving "Why Not Google Earth for my Body?" line from @epatientdave in his blogpost http://is.gd/5EgoS
Good idea. RT @pfanderson: Loving "Why Not Google Earth for my Body?" line from @epatientdave in his blogpost http://is.gd/5EgoS
RT @2healthguru The Quantified Patient: @ePatientDave http://bit.ly/4Nn160 [brilliant & concise, don't miss audio present]
[...] ePatientDave Story 2009 December 28 by poikonen Here is a good presentation and the short version of the story of ePatientDave. If you have not heard of him, you need to. “Why not Google Earth for my body?” This is an example of his insight to participatory medicine in the very near future. Enjoy. Source Web site is – http://e-patients.net/archives/2009/12/the-quantified-patient-my-talk-at-quantified-self-showtell-de… [...]
Popcorn-worthy peek at a possible future for health care: @ePatientDave's talk at Quantified Self http://is.gd/5DoHF #qs
RT @SusannahFox: Popcorn-worthy peek at a possible future for health care: @ePatientDave's talk at Quantified Self http://is.gd/5DoHF #qs
[...] ePatientDave Story 2009 December 28 by poikonen Here is a good presentation and the short version of the story of ePatientDave. If you have not heard of him, you need to. “Why not Google Earth for my body?” This is an example of his insight to participatory medicine in the very near future. Enjoy. Source Web site is – http://e-patients.net/archives/2009/12/the-quantified-patient-my-talk-at-quantified-self-showtell-de… [...]
RT @SusannahFox: a possible future for health care: @ePatientDave's talk at Quantified Self http://is.gd/5DoHF #qs
[...] Het beste voorbeeld van Personal Informatics is misschien ePatient Dave. Door middel van zijn eigen data heeft hij om het zorgstelsel geholpen aan extra data! Personal Informatics als verrijking voor de data waartoe de doktor toegang had. De presentatie in het Engels heeft gegeven illustreert zijn werkwijze en kan je hier bekijken. [...]
That’s a nifty application. Much better than the rudimentary skeleton in my high school biology class.
Wow. RT @s4pm “The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009 | e-Patients.net http://bit.ly/7oqcop
[...] suggest you watch this video on this page: The Quantified Patient. One man talks about his journey obtaining medical information and treatment for his kidney cancer. [...]
[...] Ξεκινάω ανάποδα με τις ομιλίες ενός κυρίου, πρωτοστάτη στα θέματα για τα οποία γράφω σήμερα. Μιλάω για τον Dave deBronkart aka “e-patient Dave” (δεύτερο blog). Η πρώτη ομιλία, “e-Patient Dave: Authentic Value: Being Known in e-Patient Communities (Part 1 of 2)” & “e-Patient Dave: Authentic Value: Being Known in e-Patient Communities (Part 2 of 2)“, έγινε στο e-Patient Connections Conference 2009 και η δεύτερη έγινε σε μια συνάντηση της ομάδας The Quantified Self (aka “QS”), στα γραφεία του περιοδικού Wired. [...]
[...] e-Patient Dave’s presentation at the Quantified Self show on December 7, 2009, at Wired magazine headquarters. Blog post here [...]
[...] epatients.net: The quantified patient [...]