Society for Participatory Medicine
e-patients.net blog
trends & principles
What’s the point of Health 2.0?
…The remaining 95% of “patients” out there are not motivated to become informed, or invest the time/energy/money in using any of these tools. These are the folks that know that fast food isn’t healthy, but are just too tired to choose differently. Some (emphasis on some) will do a standard google search when they receive [...]
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Health Sites: Some Are More Equal Than Others
Update: Roni Zeiger of Google Health emailed me and gave permission for me to post the following statement, which I think is a helpful addition to the conversation: Health information is obviously an important category of information users are looking for. For this health search feature we decided to offer users one source each from [...]
Read Morept/doc co-care, Why PM
Unleash the Hot Talent: A Letter from a Patient
This is a guest post from Christine Kraft, Twitter friend @ChristineKraft. She’s a pensive, musey blogger at CocoVillage, and “wicked smaht,” as we say in Boston. She’s also the one who introduced us to Regina Holliday last year. She recognizes talent when she sees it – and here, she plays the role of patient as ingenue, [...]
Read Morepositive patterns, reforming hc, trends & principles, Why PM
Health 2.010: New Year, New Era
This is a guest post by Lucien Engelen (Dutch Twitter friend @Zorg20), who was featured in October’s The internet is changing healthcare – video from Reshape09. Here, he takes it to the next step, moving from health 2.0 to “health 2.010”. I love it! – Dave
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Video: If Air Travel Worked Like Health Care
Back in September, Jonathan Rauch of the National Journal wrote a terrific (fact-based!) send-up of our archaic, arcane, not-customer-centric healthcare system, titled “If Air Travel Worked Like Health Care.” I wish I’d known about it then, but I only learned of it recently, because a couple called “The New Altons” have made a great home-brew [...]
Read Morepolicy issues
Health data rights on CNN
Elizabeth Cohen, CNN Senior Medical Correspondent, captured the zeitgeist of the health data rights movement in today’s must-read article, Patients demand: ‘Give us our damned data’. An e-patients all-star team is quoted in the story: Jen McCabe, Regina Holliday, e-Patient Dave, Alan Viars.
Read Morepolicy issues, reforming hc, trends & principles, Why PM
The Invisible Stakeholder:
Why America Needs a Patient-in-Chief
The following is the proposal I submitted Tuesday, to speak at O’Reilly / TechWeb’s Government 2.0 Expo, May 25–27 in Washington. ______________________________ The Invisible Stakeholder: Why America Needs a Patient-in-Chief “These are exciting and very promising times for the widespread application of information technology to improve the quality of healthcare delivery, while also reducing costs, but there [...]
Read Moree-patient stories, general, medical records, policy issues, reforming hc, Why PM
My Father’s Medical Record Fiasco
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to embarrass particular hospitals or physicians. The issues I raise are [...]
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