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	<title>My Father’s Medical Record FiascoComments on: --</title>
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	<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html</link>
	<description>because health professionals can&#039;t do it alone</description>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-86553</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Sat, 08 Oct 2011 21:23:55 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-86553</guid>
		<description>Yes, you are currently entitled to a copy of your records. If anyone gives you a hard time, ask for their manager and tell them you&#039;ll report them for a HIPAA violation.

But first I suggest saying courteously that you know you&#039;re entitled, under HIPAA, and you insist on getting them.

Two problems: they&#039;re allowed to take a MONTH to deliver it (sometimes more), and they can charge you whatever state law allows. That can be a lot. But many people have gotten waivers by begging and pleading.</description>
		<content:encoded><![CDATA[<p>Yes, you are currently entitled to a copy of your records. If anyone gives you a hard time, ask for their manager and tell them you&#8217;ll report them for a HIPAA violation.</p>
<p>But first I suggest saying courteously that you know you&#8217;re entitled, under HIPAA, and you insist on getting them.</p>
<p>Two problems: they&#8217;re allowed to take a MONTH to deliver it (sometimes more), and they can charge you whatever state law allows. That can be a lot. But many people have gotten waivers by begging and pleading.</p>
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		<title>By: Marta Brand</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-86551</link>
		<dc:creator>Marta Brand</dc:creator>
		<pubDate>Sat, 08 Oct 2011 21:07:33 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-86551</guid>
		<description>Do I have a right to copies of my medical records and is there a time frame in which they must send them to me?  I am frustrated because I&#039;m trying to change doctors and need some immediate medical tests. I prefer for the most part to use alternative doctors whose requests for medical tests are not covered by insurance so I have to go to an &quot;approved&quot; md for an unecessary appt. to get tests ordered. What a wasteful system we have.</description>
		<content:encoded><![CDATA[<p>Do I have a right to copies of my medical records and is there a time frame in which they must send them to me?  I am frustrated because I&#8217;m trying to change doctors and need some immediate medical tests. I prefer for the most part to use alternative doctors whose requests for medical tests are not covered by insurance so I have to go to an &#8220;approved&#8221; md for an unecessary appt. to get tests ordered. What a wasteful system we have.</p>
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		<title>By: Al</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-62510</link>
		<dc:creator>Al</dc:creator>
		<pubDate>Mon, 25 Oct 2010 03:18:18 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-62510</guid>
		<description>Hi, this is so wrong, the hospital should not have given the records up.  In order to release the records to any family member, the patient needs to authorize the release by signing a release form.  This is why EMR has become a fiasco.  Anyway, EMR will move forward and I hope that more strict rules are applied to personal health records.  

Thanks 
Al</description>
		<content:encoded><![CDATA[<p>Hi, this is so wrong, the hospital should not have given the records up.  In order to release the records to any family member, the patient needs to authorize the release by signing a release form.  This is why EMR has become a fiasco.  Anyway, EMR will move forward and I hope that more strict rules are applied to personal health records.  </p>
<p>Thanks<br />
Al</p>
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		<title>By: &#8220;OpenNotes&#8221; project begins: what happens when patients can see the physician&#8217;s visit notes? &#124; e-Patients.net</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-54116</link>
		<dc:creator>&#8220;OpenNotes&#8221; project begins: what happens when patients can see the physician&#8217;s visit notes? &#124; e-Patients.net</dc:creator>
		<pubDate>Sun, 13 Jun 2010 14:26:47 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-54116</guid>
		<description>[...] she does, though as we&#8217;ve written here (sample post from January, &amp; comments), it&#8217;s often difficult. Plus, HIPAA regulations allow 30-60 days for providers to deliver, [...]</description>
		<content:encoded><![CDATA[<p>[...] she does, though as we&#8217;ve written here (sample post from January, &amp; comments), it&#8217;s often difficult. Plus, HIPAA regulations allow 30-60 days for providers to deliver, [...]</p>
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		<title>By: Dave deBronkart</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-52651</link>
		<dc:creator>Dave deBronkart</dc:creator>
		<pubDate>Sat, 24 Apr 2010 04:09:09 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-52651</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@SharingStrength Worse, too many *office staff* don&#039;t know it&#039;s their right!  (See @AViars &amp; comments http://is.gd/bFsIs)&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@SharingStrength Worse, too many *office staff* don&#39;t know it&#39;s their right!  (See @AViars &amp; comments <a href="http://is.gd/bFsIs" rel="nofollow">http://is.gd/bFsIs</a>)</span></span></span></p>
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		<title>By: Alan Viars</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49555</link>
		<dc:creator>Alan Viars</dc:creator>
		<pubDate>Mon, 18 Jan 2010 16:55:10 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49555</guid>
		<description>Health IT standards are a big part of the problem too.  Most health IT format standards are closed, confusing and over-engineered.


I saw this and found it to be on point.
IF AIR TRAVEL WORKED LIKE HEALTH CARE:

http://www.youtube.com/watch?v=5J67xJKpB6c

Sincerely,

Alan</description>
		<content:encoded><![CDATA[<p>Health IT standards are a big part of the problem too.  Most health IT format standards are closed, confusing and over-engineered.</p>
<p>I saw this and found it to be on point.<br />
IF AIR TRAVEL WORKED LIKE HEALTH CARE:</p>
<p><a href="http://www.youtube.com/watch?v=5J67xJKpB6c" rel="nofollow">http://www.youtube.com/watch?v=5J67xJKpB6c</a></p>
<p>Sincerely,</p>
<p>Alan</p>
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		<title>By: Offbeatmammal</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49554</link>
		<dc:creator>Offbeatmammal</dc:creator>
		<pubDate>Mon, 18 Jan 2010 16:41:20 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49554</guid>
		<description>this just seems so wrong.

the medical profession here is so focussed on the bottom line with shareholders and HMOs and insurance companies that they sometimes seem to forget what it&#039;s really all about

I am really hoping that the EHR process is going to makie sure there&#039;s no issue of &quot;custody&quot; of the records because the moment the data is collated for your physician it will also appear in your chosen online EHR provider - be that Dossie, Google Health, Health Vault or others.

The downside is that sometimes understanding the data and corellating it is going to be tough for the general public but that opens up new areas for the online platforms to perform high level interpretation (in partnership with programs like the Mayo Clinic etc) to at least guide a patient to a better understanding of their health and wellness (which surely makes sense for the insurance companies and the healthcare system in the long run?)</description>
		<content:encoded><![CDATA[<p>this just seems so wrong.</p>
<p>the medical profession here is so focussed on the bottom line with shareholders and HMOs and insurance companies that they sometimes seem to forget what it&#8217;s really all about</p>
<p>I am really hoping that the EHR process is going to makie sure there&#8217;s no issue of &#8220;custody&#8221; of the records because the moment the data is collated for your physician it will also appear in your chosen online EHR provider &#8211; be that Dossie, Google Health, Health Vault or others.</p>
<p>The downside is that sometimes understanding the data and corellating it is going to be tough for the general public but that opens up new areas for the online platforms to perform high level interpretation (in partnership with programs like the Mayo Clinic etc) to at least guide a patient to a better understanding of their health and wellness (which surely makes sense for the insurance companies and the healthcare system in the long run?)</p>
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		<title>By: Alan Viars</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49552</link>
		<dc:creator>Alan Viars</dc:creator>
		<pubDate>Mon, 18 Jan 2010 14:23:16 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49552</guid>
		<description>Dennis:

Just to clarify a few points:  
1) I am not calling into question the competency of the hospital physicians in Charleston, WV.  The information from HealthGrades.com represented only a small influence in the decision to transfer.  Surgery is a dangerous and scary undertaking for patients, and it is important for patients to be confident and comfortable heading into the OR.  

2) At the time of his surgery, the patient was stable, felt fine and was not suffering any symptoms.  He was not having a heart attack.  He was, however, slated to undergo open heart surgery and he and his family felt more comfortable moving to a hospital that was more familiar, where he perceived that he would get better care and attention.  Assuming that the hospital team had a good handle on patient records, providing a copy of a cardiac catheterization CD - or any test results - should have been an easy task.  

Your reply seems to indicate that you believe that patients do not have the right to choose his/her hospital. Patients do have decision-making power and the right to exercise choices for their own care.    

The unfortunate reality of the situation is that the system is set up to keep the patient from gaining access to their information, to keep the patient ignorant and dependent.  I&#039;m not blaming providers specifically; they are rightfully worried about exposure to litigation and staying ahead of the competition.  

I am currently trying to gain access to my own medical records from several different sources.  I&#039;ll write an entry about this experience too, but as you might guess I&#039;m getting a lot of push back from most providers.  

Americans have a right to choose their doctors and have a right to their data (except in special circumstance such as mental health information).  Having an advocate can prevent medical error and save your life.  

Respectfully,

-Alan</description>
		<content:encoded><![CDATA[<p>Dennis:</p>
<p>Just to clarify a few points:<br />
1) I am not calling into question the competency of the hospital physicians in Charleston, WV.  The information from HealthGrades.com represented only a small influence in the decision to transfer.  Surgery is a dangerous and scary undertaking for patients, and it is important for patients to be confident and comfortable heading into the OR.  </p>
<p>2) At the time of his surgery, the patient was stable, felt fine and was not suffering any symptoms.  He was not having a heart attack.  He was, however, slated to undergo open heart surgery and he and his family felt more comfortable moving to a hospital that was more familiar, where he perceived that he would get better care and attention.  Assuming that the hospital team had a good handle on patient records, providing a copy of a cardiac catheterization CD &#8211; or any test results &#8211; should have been an easy task.  </p>
<p>Your reply seems to indicate that you believe that patients do not have the right to choose his/her hospital. Patients do have decision-making power and the right to exercise choices for their own care.    </p>
<p>The unfortunate reality of the situation is that the system is set up to keep the patient from gaining access to their information, to keep the patient ignorant and dependent.  I&#8217;m not blaming providers specifically; they are rightfully worried about exposure to litigation and staying ahead of the competition.  </p>
<p>I am currently trying to gain access to my own medical records from several different sources.  I&#8217;ll write an entry about this experience too, but as you might guess I&#8217;m getting a lot of push back from most providers.  </p>
<p>Americans have a right to choose their doctors and have a right to their data (except in special circumstance such as mental health information).  Having an advocate can prevent medical error and save your life.  </p>
<p>Respectfully,</p>
<p>-Alan</p>
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		<title>By: Dennis</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49543</link>
		<dc:creator>Dennis</dc:creator>
		<pubDate>Sun, 17 Jan 2010 22:26:16 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49543</guid>
		<description>I looked up the Healthgrades reports for Charleston, WV hospitals.  Only one does bypass, and it has a better than predicted mortality and performs a large volume of procedures.  Chippenham looks like it may be marginally better, but it isn&#039;t a slam dunk.

On the other hand, you imply that you needed the medical record because your father was in urgent need of bypass surgery. I can&#039;t think of any cardiologist who would condone a 300+ mile transport for someone in urgent need of bypass surgery when the patient is already in a competent center.

Bottom line, either your father didn&#039;t have an urgent need for the records to go with him to Richmond, or you and your family endangered him by moving him 300 miles with unstable coronary disease.

I&#039;m glad your father did well.  You just haven&#039;t convinced me that it (1) was in his best interest to delay the surgery and take him on a 300 mile trip, or that (2) your sister was justified in throwing a fit in the medical records department demanding that her needs came ahead of the other several hundred patients in the hospital.</description>
		<content:encoded><![CDATA[<p>I looked up the Healthgrades reports for Charleston, WV hospitals.  Only one does bypass, and it has a better than predicted mortality and performs a large volume of procedures.  Chippenham looks like it may be marginally better, but it isn&#8217;t a slam dunk.</p>
<p>On the other hand, you imply that you needed the medical record because your father was in urgent need of bypass surgery. I can&#8217;t think of any cardiologist who would condone a 300+ mile transport for someone in urgent need of bypass surgery when the patient is already in a competent center.</p>
<p>Bottom line, either your father didn&#8217;t have an urgent need for the records to go with him to Richmond, or you and your family endangered him by moving him 300 miles with unstable coronary disease.</p>
<p>I&#8217;m glad your father did well.  You just haven&#8217;t convinced me that it (1) was in his best interest to delay the surgery and take him on a 300 mile trip, or that (2) your sister was justified in throwing a fit in the medical records department demanding that her needs came ahead of the other several hundred patients in the hospital.</p>
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		<title>By: Access to Your Medical Records &#171; The Videntity Blog</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49516</link>
		<dc:creator>Access to Your Medical Records &#171; The Videntity Blog</dc:creator>
		<pubDate>Fri, 15 Jan 2010 18:23:00 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49516</guid>
		<description>[...] http://e-patients.net/archives/2010/01/my-father%E2%80%99s-medical-record-fiasco.html [...]</description>
		<content:encoded><![CDATA[<p>[...] <a href="http://e-patients.net/archives/2010/01/my-father%E2%80%99s-medical-record-fiasco.html" rel="nofollow">http://e-patients.net/archives/2010/01/my-father%E2%80%99s-medical-record-fiasco.html</a> [...]</p>
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		<title>By: Alan C. Viars</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-55796</link>
		<dc:creator>Alan C. Viars</dc:creator>
		<pubDate>Fri, 15 Jan 2010 00:41:59 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-55796</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@elizcohencnn blog link in article is wrong. URL is: http://e-patients.net/archives/2010/01/my-father%E2%80%99s-medical-record-fiasco.html&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@elizcohencnn blog link in article is wrong. URL is: <a href="http://e-patients.net/archives/2010/01/my-father%E2%80%99s-medical-record-fiasco.html" rel="nofollow">http://e-patients.net/archives/2010/01/my-father%E2%80%99s-medical-record-fiasco.html</a></span></span></span></p>
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		<title>By: Lesley H.</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49487</link>
		<dc:creator>Lesley H.</dc:creator>
		<pubDate>Wed, 13 Jan 2010 18:02:09 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49487</guid>
		<description>The failure to disclose the results of the prior EKG and report to the patient his prior heart attack is inexcusable.  At the very least he is entitled to have his records reviewed by a malpractice attorney who in all likelihood (in most states) is required to consult with an MD (in this case a cardiologist). This strikes me as prima facie negligence that resulted in the deterioration of the patient&#039;s health requiring surgery that might otherwise have been unnecessary or less invasive and probably has also resulted in a much poorer prognosis going forward and shortening his life.  I am glad he didn&#039;t lose his life as well but make no mistake - he has been damaged through the professional negligence of the hospital and its physicians and staff.  The pain, suffering, surgery, aftermath, and medical expenses and possibly shorter life span he incurred as a result are compensable. Most people don&#039;t actually like to sue and the rate of these types of cases has gone down steadily every year. But some cases cry out for it and I think this sounds like one of them. I am not a lawyer by the way but I know something about this area of the law.</description>
		<content:encoded><![CDATA[<p>The failure to disclose the results of the prior EKG and report to the patient his prior heart attack is inexcusable.  At the very least he is entitled to have his records reviewed by a malpractice attorney who in all likelihood (in most states) is required to consult with an MD (in this case a cardiologist). This strikes me as prima facie negligence that resulted in the deterioration of the patient&#8217;s health requiring surgery that might otherwise have been unnecessary or less invasive and probably has also resulted in a much poorer prognosis going forward and shortening his life.  I am glad he didn&#8217;t lose his life as well but make no mistake &#8211; he has been damaged through the professional negligence of the hospital and its physicians and staff.  The pain, suffering, surgery, aftermath, and medical expenses and possibly shorter life span he incurred as a result are compensable. Most people don&#8217;t actually like to sue and the rate of these types of cases has gone down steadily every year. But some cases cry out for it and I think this sounds like one of them. I am not a lawyer by the way but I know something about this area of the law.</p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49482</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Wed, 13 Jan 2010 03:46:06 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49482</guid>
		<description>Chloe, do you have any evidence for your assertions about HealthGrades? I&#039;ve never been persuaded by blanket accusations of &quot;it&#039;s all crooked&quot; based only on suspicion.

Can you give us the names of the doctors in their database who no longer practice? (And why would those doctors still be making those alleged payments if they&#039;re out of business?)</description>
		<content:encoded><![CDATA[<p>Chloe, do you have any evidence for your assertions about HealthGrades? I&#8217;ve never been persuaded by blanket accusations of &#8220;it&#8217;s all crooked&#8221; based only on suspicion.</p>
<p>Can you give us the names of the doctors in their database who no longer practice? (And why would those doctors still be making those alleged payments if they&#8217;re out of business?)</p>
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		<title>By: Alan Viars</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49481</link>
		<dc:creator>Alan Viars</dc:creator>
		<pubDate>Wed, 13 Jan 2010 01:50:24 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49481</guid>
		<description>Thank you all for all the wonderful comments.  The fact that this is such a common story is the scariest thing.

Know your rights and demand your data!

RE: Chloe Taylor&#039;s comments about healthgrades.com  

1.) I didn&#039;t pay for the reports. I used the free information which included morbidity rates.

2.) I know very little about how health grades came up with their numbers or rankings.  I would be interested in knowing how the information is collected and all the criteria that goes into the scores.  As a general principle, I think this sort of information should be very public and transparent.</description>
		<content:encoded><![CDATA[<p>Thank you all for all the wonderful comments.  The fact that this is such a common story is the scariest thing.</p>
<p>Know your rights and demand your data!</p>
<p>RE: Chloe Taylor&#8217;s comments about healthgrades.com  </p>
<p>1.) I didn&#8217;t pay for the reports. I used the free information which included morbidity rates.</p>
<p>2.) I know very little about how health grades came up with their numbers or rankings.  I would be interested in knowing how the information is collected and all the criteria that goes into the scores.  As a general principle, I think this sort of information should be very public and transparent.</p>
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		<title>By: chloe taylor</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49480</link>
		<dc:creator>chloe taylor</dc:creator>
		<pubDate>Wed, 13 Jan 2010 01:25:40 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49480</guid>
		<description>If you are taking you hospital ratings from Healthgrades you are being ripped off.Healthgrades is a scam. They are in the business of making money period. they &quot;sell&quot; those high grades to the highet bidder. Just look at their marketing materials aimed ay hospitals and doctors. If you pay, you get a good rating, if not you don&#039;t. They doon&#039;t verify anything. I have found doctors in their database who don&#039;t even practice medicine anymore, the ones they do have, the chances are all of the educational information is wrong. Healthgrades is a RIP OFF!! Steer clear.</description>
		<content:encoded><![CDATA[<p>If you are taking you hospital ratings from Healthgrades you are being ripped off.Healthgrades is a scam. They are in the business of making money period. they &#8220;sell&#8221; those high grades to the highet bidder. Just look at their marketing materials aimed ay hospitals and doctors. If you pay, you get a good rating, if not you don&#8217;t. They doon&#8217;t verify anything. I have found doctors in their database who don&#8217;t even practice medicine anymore, the ones they do have, the chances are all of the educational information is wrong. Healthgrades is a RIP OFF!! Steer clear.</p>
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		<title>By: ePatientDave</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49889</link>
		<dc:creator>ePatientDave</dc:creator>
		<pubDate>Sat, 09 Jan 2010 01:43:17 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49889</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@judsondunn Have you been following the data access horror stories on @Aviars post? http://is.gd/5VvTt&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@judsondunn Have you been following the data access horror stories on @Aviars post? <a href="http://is.gd/5VvTt" rel="nofollow">http://is.gd/5VvTt</a></span></span></span></p>
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		<title>By: Jonena</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49432</link>
		<dc:creator>Jonena</dc:creator>
		<pubDate>Fri, 08 Jan 2010 16:42:43 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49432</guid>
		<description>Alan,
Thank you for sharing the truth about medical records being &quot;held hostage&quot;. Since my husband got cancer six years ago and then an unknown virus that caused damage to his heart, brain and stomach as well as other medical conditions, I&#039;ve gone through many similar situations as you, your father and sister.

We&#039;ve changed tending physicians, hospitals and labs because of either &quot;lost or unavailable” records, x-rays, etc.  It&#039;s only because I stood my ground and insisted on getting a copy of all my husband’s records that they miraculously appeared and that he is alive today.  On several occasions to hospitals and physician visits, the only records or x-rays available were the ones I carried with me. 

Our medical records are rightfully ours.  Keep spreading the word! Jonena</description>
		<content:encoded><![CDATA[<p>Alan,<br />
Thank you for sharing the truth about medical records being &#8220;held hostage&#8221;. Since my husband got cancer six years ago and then an unknown virus that caused damage to his heart, brain and stomach as well as other medical conditions, I&#8217;ve gone through many similar situations as you, your father and sister.</p>
<p>We&#8217;ve changed tending physicians, hospitals and labs because of either &#8220;lost or unavailable” records, x-rays, etc.  It&#8217;s only because I stood my ground and insisted on getting a copy of all my husband’s records that they miraculously appeared and that he is alive today.  On several occasions to hospitals and physician visits, the only records or x-rays available were the ones I carried with me. </p>
<p>Our medical records are rightfully ours.  Keep spreading the word! Jonena</p>
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		<title>By: New Years eHealth proposal &#171; Clarity Healthcare</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49420</link>
		<dc:creator>New Years eHealth proposal &#171; Clarity Healthcare</dc:creator>
		<pubDate>Thu, 07 Jan 2010 23:53:02 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49420</guid>
		<description>[...] New Years eHealth&#160;proposal By Saverio Rinaldi  From 1997 to 2001 I experienced first hand the shortcomings of the Canadian healthcare system. Over this period my family saw the death of three close relatives. We experienced the fragmentation of the Ontario health care system. From community hospital to academic health sciences centre, private homecare and nursing care, cancer care centers and palliative care, each doctor and hospital maintained a health record, yet none had access to the information from the previous location. Blood work done one day would be repeated because the lab results were not shared between providers. New specialists would conduct the same interview done the previous day or just the same morning in a different clinic. The only full health record was what we, as a family, maintained. It kept us involved in the care process and we were able to inform new clinical staff with the details from previous visits saving time and money for us and the healthcare system. We were that the first family to experience nor the last, other have expressed similar frustration w... [...]</description>
		<content:encoded><![CDATA[<p>[...] New Years eHealth&nbsp;proposal By Saverio Rinaldi  From 1997 to 2001 I experienced first hand the shortcomings of the Canadian healthcare system. Over this period my family saw the death of three close relatives. We experienced the fragmentation of the Ontario health care system. From community hospital to academic health sciences centre, private homecare and nursing care, cancer care centers and palliative care, each doctor and hospital maintained a health record, yet none had access to the information from the previous location. Blood work done one day would be repeated because the lab results were not shared between providers. New specialists would conduct the same interview done the previous day or just the same morning in a different clinic. The only full health record was what we, as a family, maintained. It kept us involved in the care process and we were able to inform new clinical staff with the details from previous visits saving time and money for us and the healthcare system. We were that the first family to experience nor the last, other have expressed similar frustration w&#8230; [...]</p>
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		<title>By: Jonathan Gershater</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49385</link>
		<dc:creator>Jonathan Gershater</dc:creator>
		<pubDate>Tue, 05 Jan 2010 20:50:22 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49385</guid>
		<description>I had a less traumatic, but similarly frustrating time with a medical record transfer. I got copies of my medical records, but sending them to a Dr necessitated driving there and personal delivery.
http://gershater.wordpress.com/2010/01/05/transferring-30-printed-pages-of-medical-records-to-my-doctor/</description>
		<content:encoded><![CDATA[<p>I had a less traumatic, but similarly frustrating time with a medical record transfer. I got copies of my medical records, but sending them to a Dr necessitated driving there and personal delivery.<br />
<a href="http://gershater.wordpress.com/2010/01/05/transferring-30-printed-pages-of-medical-records-to-my-doctor/" rel="nofollow">http://gershater.wordpress.com/2010/01/05/transferring-30-printed-pages-of-medical-records-to-my-doctor/</a></p>
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		<title>By: bobcoffield</title>
		<link>http://e-patients.net/archives/2010/01/my-father%e2%80%99s-medical-record-fiasco.html/comment-page-1#comment-49890</link>
		<dc:creator>bobcoffield</dc:creator>
		<pubDate>Tue, 05 Jan 2010 01:04:09 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=4318#comment-49890</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@aviars shares his West Virginia e-patient story. My Father&#039;s Medical Record Fiasco: http://tinyurl.com/yd2hpxw&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@aviars shares his West Virginia e-patient story. My Father&#39;s Medical Record Fiasco: <a href="http://tinyurl.com/yd2hpxw" rel="nofollow">http://tinyurl.com/yd2hpxw</a></span></span></span></p>
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