Society for Participatory Medicine
e-patients.net blog
patient networks
Privacy can kill, openness can heal
If you follow Jeff Jarvis on Twitter or read his blog, you know (maybe more than you wanted to) about his fight against prostate cancer. I’ve mostly paid attention to what he’s written about technology and journalism, but check out this excerpt from his post, The German privacy paradox: I prefer to turn the question [...]
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Who are you, DarthMed?
Once the world’s information was put into context, we looked beyond the keyboard, and collectively shifted to people. We focused on social context by asking questions like: Who are you? How are we connected? What is on your mind? What matters to you? Making the Internet more social enabled people to share their real name, [...]
Read Morefound on the net
Pay me now or pay me later.
Alfred Sommer’s Washington Post column: “Tragedy of individual Haitians risks overshadowing chronic health problems” gets to the heart of the power of public health, communications, and the personal choices which make a difference in our lives.
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ER tweet: “If my husband dies, I’m going to go [eff]ing ballistic”
When Benn Rosales had a heart attack in December, his wife Lani, a very active member of the Twitterati, tweeted throughout the experience. Afterward she thought to compile those tweets as a record of Benn’s e-patient experience: “this hospital is understaffed and we’re being sh*t on because of it. if my husband dies i’m going [...]
Read Morenews & gossip, positive patterns, pt/doc co-care, pts as teachers, reforming hc, trends & principles
Participatory Medicine in Time magazine
Re Time‘s article “Group Therapy” in the February 8, 2010 issue, arriving on newsstands now: Time‘s freelance reporter Bonnie Rochman contacted our Susannah Fox to discuss her remarks at the Institute of Medicine last October.
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