Society for Participatory Medicine
e-patients.net blog
net-friendly docs, positive patterns, pt/doc co-care, trends & principles, Why PM
Video message to medical students learning Medicine 2.0
Last week we posted a request from Dr. Bertalan Meskó for video messages from e-patients to his “Medicine 2.0″ course. Here’s my submission. (This is my first “vlog” (video blog) so the quality’s not great – like everything “e,” it’ll improve with experience.) He’ll welcome further submissions for viewing anytime. Post them to YouTube with [...]
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Healthcare’s Privacy Problem (Hint: It’s Not What You Think It Is )
Lygeia Riccardi’s post today on The Health Care Blog begins: I recently applied for life insurance. The broker, whom I’ve never met, asked about my health history. “So you’ve just had a baby,” he began. I asked him how he knew. “You’re on Twitter.” Read her whole post
Read Morepatient networks, understanding statistics
Chronic Disease in Data and Narrative
For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a heart condition, lung condition, high blood pressure, diabetes, and/or cancer has an [...]
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Librarians and ePatients as Partners
I am thrilled to bring another guest post, this time from Luke Rosenberger, a medical librarian who has forcefully embraced social media & participatory medicine, as you’ll see. Libraries & librarians have always held a special place in helping other gain access to information that is hard to find. Even now, in the age of [...]
Read Moregeneral, policy issues, pt/doc co-care, trends & principles, Why PM
NPSF’s magnificent Universal Patient Compact
One of my personal pleasures in the first year of the Society for Participatory Medicine has been discovering people in other parts of the “patient culture” who’ve been doing wonderful, empowering, participatory things for years – and who’ve already been producing valuable results for years. Example: the patient safety movement. On Paul Levy’s blog I [...]
Read Moreresearch issues, trends & principles, Why PM
Why is participatory medicine such a tough sell?
Kevin A. Clauson, Pharm.D. is an associate professor at the College of Pharmacy and adjunct associate professor at the College of Medicine – Biomedical Informatics Program at Nova Southeastern University in Fort Lauderdale, FL. He teaches a course on Consumer Health Informatics and Web 2.0 in Healthcare and blogs and conducts research about related topics. [...]
Read Moree-patient stories, pt/doc co-care, pts as teachers, Why PM
e-Patients, send video messages to @Berci’s med students
If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious Best Medical Technologies/Informatics Weblog for the second year in a row. @Berci, [...]
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EHR Etiquette and the Importance of Eye Contact in Clinician-Patient Communication
Another guest post from Lisa Gualtieri, PhD, ScM, following her much-commented earlier post. Lisa is Adjunct Clinical Professor in the Health Communication Program at Tufts University School of Medicine. Lisa teaches Online Consumer Health and Web Strategies for Health Communication. A social media user herself, Lisa (Twitter, LinkedIn) blogs on health and is Editor-in-Chief of eLearn [...]
Read Morept/doc co-care, Why PM
What would a checklist for patients look like?
This springs up from a Twitter discussion this morning. It’s Atul Gawande’s fault, for his book “Checklists.” :-) Forward-thinking clinicians are doing it; participatory patients should to. Let’s get to work.
Read Moremedical records, policy issues, Why PM
Second wave of comments on Health IT safety issues
Last month I posted the testimony I submitted to the Adoption/Certification Workgroup of the Health IT Policy Committee. (I urge interested parties to review the links to other resources in that post.) Today Paul Egerman, chair of that team, circulated a preliminary draft of recommendations from that meeting. Here is my response tonight, edited a [...]
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