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Chronic Disease in Data and Narrative

For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a...

Librarians and ePatients as Partners

I am thrilled to bring another guest post, this time from Luke Rosenberger, a medical librarian who has forcefully embraced social media & participatory medicine, as you’ll see. Libraries & librarians have always held a special place in helping other...

NPSF’s magnificent Universal Patient Compact

Updated 3/12/2014 with new links at bottom. One of my personal pleasures in the first year of the Society for Participatory Medicine has been discovering people in other parts of the “patient culture” who’ve been doing wonderful, empowering,...

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