Society for Participatory Medicine
e-patients.net blog
general
Patient Stories on Health Web Sites Can Not Always Be Trusted
Guest post from Lisa Gualtieri, PhD, ScM, Adjunct Clinical Professor in the Health Communication Program at Tufts University School of Medicine. Lisa teaches Online Consumer Health and Web Strategies for Health Communication. A social media user herself, Lisa (Twitter, LinkedIn) blogs on health and is Editor-in-Chief of eLearn Magazine, where she blogs on education. “On the [...]
Read Moremedical records, trends & principles, Why PM
Is Your Healthcare Practice Patient-centered?
Yesterday I was at a monthly TelePresence meeting of the Person Centered Health initiative, a group that started in Canada that’s closely aligned with the Society for Participatory Medicine. At this meeting, some expressed concern that the memes of “person-centered health,” “patient-centered healthcare,” “participatory medicine,” and the like are becoming so overused as to become [...]
Read Morept/doc co-care, Why PM
Calling All Physicians: Support the Participatory Medicine Movement
Participatory Medicine is a new paradigm in healthcare, one that promises to enhance healthcare efficiency, transform the experience for both the patient and their providers, and improve healthcare outcomes. This cultural shift requires adaptation among healthcare professionals (including physicians) as well as patients and caregivers. And yet changing culture amongst physicians remains challenging, for a [...]
Read Morematernity, research issues
Are consumers at the bottom of the evidence pyramid?
We’re pleased to present another guest post by Amy Romano, which first appeared on the phenomenal maternity blog Science and Sensibility. See also her newest post, last night, here – including a terrific BlogTalkRadio interview in which she expresses herself on the virtues of Participatory Medicine. I have argued (here and here on e-patients.net, and [...]
Read Morept/doc co-care, Why PM
Patient to doctor: “Why aren’t you harder on me?”
A joint post by e-Patient Dave and Dr. Danny Sands, written from alternating points of view. Danny: An important moment happened a few months ago during office hours – important because it brought a profound shift in Dave’s view of the doctor-patient relationship. And that’s a vital part of participatory medicine.
Read Moremedical records
VA data glitch mimics MIT’s
Bob Brewin writes today in NextGov that the VA discovered a glitch in a system interface that could display the wrong patient’s information under peak load circumstances. The VA handled it in an exemplary fashion: they immediately issued a safety alert and shut down the connection; the bug (a memory leak) has reportedly been fixed [...]
Read Morenews & gossip, reforming hc, Why PM
Healthcare journalists point out difficulty of using Joint Commission’s hospital quality site
Empowered patients know they’re responsible for their choice of care providers. We usually follow our clinicians’ advice, but we take responsibility for it. That’s hard when a quality agency obscures its findings. So I object to a reality reported this week by AHCJ, the Association of Health Care Journalists: Joint Commission site obscures information. Excerpt: (emphasis added)
Read Moretrends & principles
All Together Now: The Internet Does Not Replace Health Professionals
The March 4 issue of the New England Journal of Medicine includes a letter from Brad Hesse, Richard Moser, and Lila Rutten, three National Cancer Institute researchers whose work is a continual inspiration to me. Their analysis of data from the Health Information National Trends Survey (HINTS) shows that the vast majority of Americans, “despite [...]
Read Morepositive patterns
Designing for Better Health
This is a banner week for people who think good design contributes to better health. On Monday, DiabetesMine and the California HealthCare Foundation launched the 2010 DiabetesMine Design Challenge. Last year the contest garnered more than 150 entries and awarded a grand prize, a “most creative” prize, and a kids’ category prize. I can’t wait [...]
Read Morefound on the net
E-Patient Erin Proves a Point
Erin Turner recently wrote: When I arrived at the Mayo Clinic in Rochester, Minnesota a few weeks ago, I was asked: “Who referred you to us?” My answer was not traditional: “Twitter.” (Read her full story on the SpectrumScience blog. And take that, 2.0 doubters!)
Read More
