Health 2.0 Europe: A Moveable FeastComments on: --

By: Chris Jones

Chris Jones — Thu, 12 Aug 2010 06:18:53 +0000

RT @ToughLoveforX "Good read to see the similarities of Health Care & Edu Care" http://ilnk.me/3ba0 .. ironic, #ecosys there last summer

By: Mobile, Social Health at the National Library of Medicine | e-Patients.net

Mobile, Social Health at the National Library of Medicine | e-Patients.net — Thu, 15 Jul 2010 15:29:46 +0000

[...] Health 2.0 Europe was alive with debate about government’s role in health and health care, including some heated exchanges about how to oversee the quality of online information. What if the NLM harnessed American ingenuity and the EU’s information quality focus? One answer: Pillbox [...]

By: SusannahFox

SusannahFox — Mon, 14 Jun 2010 22:34:14 +0000

Extra credit: What's the point of Health 2.0? http://bit.ly/b3hfTY + A Moveable Feast http://bit.ly/aPv7YZ #DCWEEK

By: Phil Baumann

Phil Baumann — Wed, 09 Jun 2010 15:31:18 +0000

RT @SusannahFox Health 2.0: Washington, DC (http://bit.ly/brbrC2) vs. Paris (http://bit.ly/aPv7YZ) #health2con #health2eu

By: Dr. Christian Seebode

Dr. Christian Seebode — Thu, 13 May 2010 18:50:18 +0000

Hi Susannah,
thanks for sharing the data. I posted your slides to my blog
http://patient-centered-it.com/2010/05/13/are-patients-ready-to-use-internet-services/.

I definitely share your opinion about the readiness of some patients using internet services. However these are either not existing or of poor quality. Good examples aside.

Cheers Christian

By: David Harlow

David Harlow — Thu, 29 Apr 2010 18:56:12 +0000

Reading (better late than never) @SusannahFox: My take on Health 2.0 Europe: A Moveable Feast http://bit.ly/aPv7YZ #health2eu #hcsmeu #hcsm

By: Health 2.0 News: Social Networking in Academia and IBM ads « ScienceRoll

Health 2.0 News: Social Networking in Academia and IBM ads « ScienceRoll — Tue, 27 Apr 2010 15:55:02 +0000

[...] Health 2.0 Europe: A Moveable Feast (E-Patients.net): The slides Susannah Fox used at Health 2.0 Paris: [...]

By: Susannah Fox

Susannah Fox — Mon, 26 Apr 2010 15:30:07 +0000

Thank you, Colleen! That’s quite a wish list, but attainable given the energy we see in the patient community around already-existing social media tools and online communities.

By: Susannah Fox

Susannah Fox — Mon, 26 Apr 2010 14:09:35 +0000

Found a YouTube clip of my remarks in Paris in case you can’t wait for the non-handheld version:

http://www.youtube.com/watch?v=12Yagai-d0o

(Thanks r0wsbud, whoever you are!)

By: Colleen Young

Colleen Young — Fri, 23 Apr 2010 23:53:50 +0000

Susannah, thank you for posting your presentation and sage words here for us to contemplate again. Indeed I was a sponge at the Health2.0 conference in Paris. There was so much valuable information being freely shared.

I feel that the comments from Indu Subaiya and Françoise Soros are perfect dovetails to your post.

I already see my wish list coming true as Health2.0 evolves:
1. That healthcare professionals and patients (and those who love them) work together as equal partners.
2. That the collective knowledge of patients sharing in online communities is being recognized and harvested as valuable data.
3. That, with Internet access, patients can reach out to others and not be isolated with their illness.
4. That accessibility and transparency continue to improve.

By: John Sharp

John Sharp — Wed, 21 Apr 2010 06:08:20 +0000

RT @SusannahFox: Inspired by patient networks led by @accarmichael @patientslikeme @healthcentral @gfry to say: Evolve http://bit.ly/aPv7YZ

By: matasanos

matasanos — Wed, 21 Apr 2010 04:03:05 +0000

RT @bacigalupe: Health 2.0 Europe: A Moveable Feast http://is.gd/bzsvi by @SusannahFox (via @luisluque) #hcsmeu #hcsm

By: Denise Silber

Denise Silber — Wed, 21 Apr 2010 00:42:28 +0000

D’avoir invité Gilles en France à parler du “e-patient” même si le terme n’existait pas encore, en 2002, j’attends avec impatience que nous puissions exprimer notre vécu croisé de Français aux Etats-Unis et Américaine en France, et qui démontrera que l’être humain a les mêmes besoins et compétences de part et d’autre de l’Atlantique…”Demain Scarlett…” ;-)

Having invited Gilles to speak in France in 2002 of “e-patients” before the term even existed in the US, I am impatiently waiting for us to express together our “reverse” experience as a Frenchman in the US and an American in France, experience which demonstrates that the human being has the same needs and competencies on both sides of the Atlantic…”tomorrow”Scarlett ;-)

By: Andrew Spong

Andrew Spong — Wed, 21 Apr 2010 00:06:11 +0000

RT @SusannahFox: My take on Health 2.0 Europe: A Moveable Feast http://bit.ly/aPv7YZ #health2eu #WhyPM #hcsmeu

By: bacigalupe

bacigalupe — Tue, 20 Apr 2010 23:01:24 +0000

Health 2.0 Europe: A Moveable Feast http://is.gd/bzsvi by @SusannahFox (via @luisluque) #hcsmeu #hcsm

By: Gilles Frydman

Gilles Frydman — Tue, 20 Apr 2010 22:02:25 +0000

Without the Internet most people suffering from a rare disease would never meet another patient with the same disease in their lifetime.

I suppose that for many of the orphan disease patients the main effect of the Internet is improved longevity because they can get the information that neither their family, friends or doctors know. As usual when it relates to orphan diseases, though, I have no hard data to validate this opinion.

By: SusannahFox

SusannahFox — Tue, 20 Apr 2010 21:43:34 +0000

Inspired by patient networks led by @accarmichael @patientslikeme @healthcentral @gfry to say: Evolve http://bit.ly/aPv7YZ

By: Wellescent Health Blog

Wellescent Health Blog — Tue, 20 Apr 2010 21:27:01 +0000

The internet is really an immeasurable resource for those with chronic conditions because it enables them to find so much health information and to find other people with the same medical issues. Especially for those with more rare conditions, the ability to relate to someone and share first hand information is of considerable value. Without the internet, these relationships would only infrequently occur.

By: SusannahFox

SusannahFox — Tue, 20 Apr 2010 21:26:55 +0000

My take on Health 2.0 Europe: A Moveable Feast http://bit.ly/aPv7YZ #health2eu #WhyPM #hcsmeu

By: Gilles Frydman

Gilles Frydman — Tue, 20 Apr 2010 21:22:16 +0000

Bonsoir Francoise!

Et merci pour ce commentaire! L’acces et l’utilisation des informations medicales en ligne pour tous reste un des grands problemes poses par l’explosion de l’internet et les tres grandes differences de facilites d’acces qui malheureusement suivent en parallele la situation socio-economique des individus.

C’est, a mon avis, un probleme suffisamment important et difficile qu’il necessite l’intervention des gouvernements et des changements dans les legislations nationales. Nous sommes tres conscients du probleme avec Susannah et quelques grands scientifiques specialises dans le domaine de la sante publique.

Peut-etre reussirons nous a ecrire un blog post sur le sujet chez Denise dans le futur relativement proche.