Society for Participatory Medicine
e-patients.net blog
found on the net
Nice summary of definitions of “Health 2.0″ etc
Tom Van De Belt @Tom_Zorg20, Lucien Engelen @Zorg20 and others have published a nice “line in the sand” article in JIMR (the Journal of Internet Medical Research), surveying the scientific and “gray” (Web) literature to collect definitions of Health 2.0 and Medicine 2.0. They describe their methods including the search terms they used, and in [...]
Read Morehc's problem list, pt/doc co-care, research issues, understanding statistics, Why PM
e-Patients and doctors both, wise up. If you haven’t already.
I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being unscientific: ignoring evidence. That’s always hazardous, and it becomes insidious when [...]
Read Moregeneral
Why a Patient 2.0 Panel at the Health 2.0 DC conference?
This is the first of two posts about the inspiring Patients 2.0 panel I helped organized at Health 2.0 DC. This one will explain the rationale for organizing such a panel. The second will provide a link to all the presentations and to the panelist biographies. A while back, while he entire country was wondering [...]
Read Morepatient networks, policy issues
Health 2.0 DC: Passion and Execution at Scale
I think conferences are deeply affected by the spirit of their host city. San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it has passion and execution — at scale. Leave it to others to point [...]
Read Moree-patient stories, hc's problem list, others' e-patient stories, positive patterns, reforming hc, Why PM
Great news from “Mama Lion” Engelman and daughter
Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly needed a mitral valve replacement, vs the much [...]
Read Morenews & gossip, policy issues, positive patterns, reforming hc, research issues, trends & principles
Community Health Data Initiative: vast amounts of health data, freed for innovators to mash up!
A big deal happened in Washington Wednesday – something I barely knew was happening: The Community Health Data Initiative (CHDI) was announced at the Institute of Medicine. It’s exciting to me, because at long last we’re getting the chance to let innovators get at vast amounts of government data. The data already exists, but now [...]
Read Moretrends & principles
Making Health Data Sing (Even If It’s A Familiar Song)
Todd Park is determined to make health data hot. He is leading the U.S. Department of Health & Human Service’s effort to make more of their data sets publicly available, from nursing home quality ratings to the food environmental atlas (view the full list of available downloads). As he says, HHS doesn’t want to choreograph [...]
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