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	<title>Why a Patient 2.0 Panel at the Health 2.0 DC conference?Comments on: --</title>
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	<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html</link>
	<description>because health professionals can&#039;t do it alone</description>
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		<title>By: ICMCC News Page &#187; Why a Patient 2.0 Panel at the Health 2.0 DC conference?</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-54079</link>
		<dc:creator>ICMCC News Page &#187; Why a Patient 2.0 Panel at the Health 2.0 DC conference?</dc:creator>
		<pubDate>Sat, 12 Jun 2010 11:06:04 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-54079</guid>
		<description>[...] Article Gilles Frydman, e-patients.net, 9 June 2010 SHARETHIS.addEntry({ title: &quot;Why a Patient 2.0 Panel at the Health 2.0 DC conference?&quot;, url: &quot;http://articles.icmcc.org/2010/06/12/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference/&quot; }); [...]</description>
		<content:encoded><![CDATA[<p>[...] Article Gilles Frydman, e-patients.net, 9 June 2010 SHARETHIS.addEntry({ title: &quot;Why a Patient 2.0 Panel at the Health 2.0 DC conference?&quot;, url: &quot;<a href="http://articles.icmcc.org/2010/06/12/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference/&#038;quot" rel="nofollow">http://articles.icmcc.org/2010/06/12/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference/&#038;quot</a>; }); [...]</p>
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		<title>By: Christine Kraft</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-55761</link>
		<dc:creator>Christine Kraft</dc:creator>
		<pubDate>Fri, 11 Jun 2010 00:54:38 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-55761</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Love this @gfry &quot;... meaningful reform happens  one disease, one problem, one patient at a time&quot; http://bit.ly/bycmfk&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Love this @gfry &quot;&#8230; meaningful reform happens  one disease, one problem, one patient at a time&quot; <a href="http://bit.ly/bycmfk" rel="nofollow">http://bit.ly/bycmfk</a></span></span></span></p>
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		<title>By: Dave deBronkart</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-54015</link>
		<dc:creator>Dave deBronkart</dc:creator>
		<pubDate>Thu, 10 Jun 2010 23:27:23 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-54015</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @SusannahFox: The amazing Patient 2.0 panel was held in a no-tweets bunker. Luckily @gfry is on the case: http://bit.ly/dzQLVH&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @SusannahFox: The amazing Patient 2.0 panel was held in a no-tweets bunker. Luckily @gfry is on the case: <a href="http://bit.ly/dzQLVH" rel="nofollow">http://bit.ly/dzQLVH</a></span></span></span></p>
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		<title>By: SusannahFox</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-54011</link>
		<dc:creator>SusannahFox</dc:creator>
		<pubDate>Thu, 10 Jun 2010 22:35:58 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-54011</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;The amazing Patient 2.0 panel was held in a no-tweets bunker. Luckily @gfry is on the case: http://bit.ly/dzQLVH #health2con&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">The amazing Patient 2.0 panel was held in a no-tweets bunker. Luckily @gfry is on the case: <a href="http://bit.ly/dzQLVH" rel="nofollow">http://bit.ly/dzQLVH</a> #health2con</span></span></span></p>
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		<title>By: MsGreene</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-55762</link>
		<dc:creator>MsGreene</dc:creator>
		<pubDate>Thu, 10 Jun 2010 19:06:45 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-55762</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;DrGreene: RT @sgreene24: RT @jourpm: Why a Patient 2.0 Panel at the Health 2.0 DC conference? http://is.gd/cJ3IJ&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">DrGreene: RT @sgreene24: RT @jourpm: Why a Patient 2.0 Panel at the Health 2.0 DC conference? <a href="http://is.gd/cJ3IJ" rel="nofollow">http://is.gd/cJ3IJ</a></span></span></span></p>
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		<title>By: Lygeia</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-55763</link>
		<dc:creator>Lygeia</dc:creator>
		<pubDate>Thu, 10 Jun 2010 19:04:03 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-55763</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;More thoughtful insights on #health2con by @susannahfox and @gfry http://bit.ly/dzQLVH &amp; video by @technicaljones http://bit.ly/dacIOw&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">More thoughtful insights on #health2con by @susannahfox and @gfry <a href="http://bit.ly/dzQLVH" rel="nofollow">http://bit.ly/dzQLVH</a> &amp; video by @technicaljones <a href="http://bit.ly/dacIOw" rel="nofollow">http://bit.ly/dacIOw</a></span></span></span></p>
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		<title>By: Alan Greene</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-55764</link>
		<dc:creator>Alan Greene</dc:creator>
		<pubDate>Thu, 10 Jun 2010 19:00:27 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-55764</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @sgreene24: RT @jourpm: Why a Patient 2.0 Panel at the Health 2.0 DC conference? http://is.gd/cJ3IJ&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @sgreene24: RT @jourpm: Why a Patient 2.0 Panel at the Health 2.0 DC conference? <a href="http://is.gd/cJ3IJ" rel="nofollow">http://is.gd/cJ3IJ</a></span></span></span></p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-54014</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Thu, 10 Jun 2010 17:55:33 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-54014</guid>
		<description>Agreed, Susannah - great job, Gilles!</description>
		<content:encoded><![CDATA[<p>Agreed, Susannah &#8211; great job, Gilles!</p>
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		<title>By: Susannah Fox</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-54013</link>
		<dc:creator>Susannah Fox</dc:creator>
		<pubDate>Thu, 10 Jun 2010 17:49:36 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-54013</guid>
		<description>Gilles, congratulations on putting together this panel. 

I knew bits and pieces of each person&#039;s story, but seeing their presentations and hearing their whole stories was an incredibly opportunity to see participatory medicine in the wild. 

From maternity care to cancer to amputation to neck injury - each unique experience drew us back to the essential lessons: engage, ask questions, connect with other patients and caregivers, don&#039;t give up.

Looking forward to sharing the slides (and hopefully the audio) from the session with a wider audience.</description>
		<content:encoded><![CDATA[<p>Gilles, congratulations on putting together this panel. </p>
<p>I knew bits and pieces of each person&#8217;s story, but seeing their presentations and hearing their whole stories was an incredibly opportunity to see participatory medicine in the wild. </p>
<p>From maternity care to cancer to amputation to neck injury &#8211; each unique experience drew us back to the essential lessons: engage, ask questions, connect with other patients and caregivers, don&#8217;t give up.</p>
<p>Looking forward to sharing the slides (and hopefully the audio) from the session with a wider audience.</p>
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		<title>By: Topic: E-Patients at Welcome to My Blog</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-54000</link>
		<dc:creator>Topic: E-Patients at Welcome to My Blog</dc:creator>
		<pubDate>Thu, 10 Jun 2010 14:04:29 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-54000</guid>
		<description>[...] Often, patients vigorously research their symptoms before even reaching the exam room (&#160;http://e-patients.net/archives/2010/06/w&#8230; [...]</description>
		<content:encoded><![CDATA[<p>[...] Often, patients vigorously research their symptoms before even reaching the exam room (&nbsp;<a href="http://e-patients.net/archives/2010/06/w&#038;#8230" rel="nofollow">http://e-patients.net/archives/2010/06/w&#038;#8230</a>; [...]</p>
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		<title>By: Carol Torgan, Ph.D.</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-55765</link>
		<dc:creator>Carol Torgan, Ph.D.</dc:creator>
		<pubDate>Thu, 10 Jun 2010 02:07:06 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-55765</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;Why a Patient 2.0 Panel at the Health 2.0 DC conference? Outstanding answer by @gfry http://bit.ly/dzQLVH #health2con&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">Why a Patient 2.0 Panel at the Health 2.0 DC conference? Outstanding answer by @gfry <a href="http://bit.ly/dzQLVH" rel="nofollow">http://bit.ly/dzQLVH</a> #health2con</span></span></span></p>
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		<title>By: Gilles Frydman</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-53958</link>
		<dc:creator>Gilles Frydman</dc:creator>
		<pubDate>Wed, 09 Jun 2010 23:51:54 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-53958</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;@healthythinker The Moment connected to Patients 2.0: Why a Patient 2.0 Panel at the Health 2.0 DC conference? http://bit.ly/dzQLVH&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">@healthythinker The Moment connected to Patients 2.0: Why a Patient 2.0 Panel at the Health 2.0 DC conference? <a href="http://bit.ly/dzQLVH" rel="nofollow">http://bit.ly/dzQLVH</a></span></span></span></p>
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		<title>By: Phil Baumann</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-53956</link>
		<dc:creator>Phil Baumann</dc:creator>
		<pubDate>Wed, 09 Jun 2010 23:41:08 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-53956</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT @gfry 1 of 2: Why a Patient 2.0 Panel at the Health 2.0 DC conference? http://bit.ly/dzQLVH #health2con&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT @gfry 1 of 2: Why a Patient 2.0 Panel at the Health 2.0 DC conference? <a href="http://bit.ly/dzQLVH" rel="nofollow">http://bit.ly/dzQLVH</a> #health2con</span></span></span></p>
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		<title>By: Gilles Frydman</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-53954</link>
		<dc:creator>Gilles Frydman</dc:creator>
		<pubDate>Wed, 09 Jun 2010 22:41:07 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-53954</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;1 of 2: Why a Patient 2.0 Panel at the Health 2.0 DC conference? http://bit.ly/dzQLVH #health2con&lt;/span&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">1 of 2: Why a Patient 2.0 Panel at the Health 2.0 DC conference? <a href="http://bit.ly/dzQLVH" rel="nofollow">http://bit.ly/dzQLVH</a> #health2con</span></span></span></p>
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		<title>By: Indu Subaiya</title>
		<link>http://e-patients.net/archives/2010/06/why-a-patient-2-0-panel-at-the-health-2-0-dc-conference.html/comment-page-1#comment-53969</link>
		<dc:creator>Indu Subaiya</dc:creator>
		<pubDate>Wed, 09 Jun 2010 22:35:28 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=6107#comment-53969</guid>
		<description>The Patients 2.0 panel and the video that launched the Moment project gave the Health 2.0 DC event its most unforgettable moments - Regina Holliday, Josh Sommer and others reminded us all why we were there, the huge challenges that lie ahead - access to personal medical data, and better ways of capturing what works for rare (and all) diseases. We&#039;ve all heard the stories and now we&#039;re all accountable for making a difference.</description>
		<content:encoded><![CDATA[<p>The Patients 2.0 panel and the video that launched the Moment project gave the Health 2.0 DC event its most unforgettable moments &#8211; Regina Holliday, Josh Sommer and others reminded us all why we were there, the huge challenges that lie ahead &#8211; access to personal medical data, and better ways of capturing what works for rare (and all) diseases. We&#8217;ve all heard the stories and now we&#8217;re all accountable for making a difference.</p>
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