Society for Participatory Medicine
e-patients.net blog
found on the net
e-Patient Connections 2010
Kevin Kruse and his team have put together another incredible event in Philadelphia: e-Patient Connections 2010. Follow the tweets by searching for #epatcon or read the excellent summaries being written in real-time by Leigh Householder and Seth Quillin on the blog What’s Your Digital IQ? Definitely watch the curtain-raiser video, starring our own e-Patient Dave: [...]
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“Another Devastating Diagnosis”: JoPM Editor Jessie Gruman undergoes surgery for a fourth cancer
Jessie Gruman, PhD, Co-Editor-in-Chief of our Journal of Participatory Medicine, underwent surgery today in New York to address the fourth cancer-related diagnosis of her life. Today she released a blog post about it. Jessie has been a natural choice to co-lead our Journal. She is founder and president of the Center for Advancing Health; as [...]
Read Morepositive patterns, reforming hc
What is the ROI on love?
Last week’s Mayo Transform symposium was a two-day excursion into the world of science, data, design, and the secret ingredient to health: love. Patch Adams, MD, kicked things off in grand style. If you’ve never seen him speak, treat yourself to a hit of his energy: In 1971, he and his compatriots opened a 24×7 [...]
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Article: The Rise of the Empowered Patient
Pathways, a Scientific American magazine, has a long new article The Rise of the Empowered Patient. It quotes, among others, our friend Lucien Engelen (@Zorg20, which is Dutch for Health 2.0). I’m starting an all day meeting so I can’t absorb yet – please discuss!
Read Morepts as teachers
What can surgeons learn from patients?
I’m going to be on a panel at the American College of Surgeons 96th Annual Clinical Congress on October 5 in Washington, DC. The session title is pretty provocative: To Tweet or Become Extinct?: Why Surgeons Need to Understand Social Networking and my part of it uses the “e” word that I recently tried to [...]
Read Moree-pts resources, pt/doc co-care, Why PM
Journal of Participatory Medicine Releases New Content
The Journal of Participatory Medicine (JoPM), the online peer-reviewed, open access publication of the Society for Participatory Medicine, has released new content for its 2010 volume. The journal’s mission is to transform the culture of medicine from a delivery system driven by clinicians to a shared enterprise, by publishing content that demonstrates whether and how patient participation [...]
Read Moree-pts resources
Truth is stranger than fiction – and deceptive websites are all too plentiful
By Lisa Neal Gualtieri. (Her earlier much-commented post on this subject is here.) The Boston Globe reported this month on the sentencing of a former US Airways Express pilot, Stephen Sharp, “for selling a powdered drink mix over the Internet that he claimed was ’100 percent’ effective in helping drug-using truck drivers, pilots, and train [...]
Read Morept/doc co-care, Why PM
Informed Medical Decision-Making: the challenges of doctor-patient communication
You can’t be well empowered if you hear advice wrong. That’s why, in a participatory relationship, an essential skill is accurate handoff of information. The Foundation for Informed Medical Decision Making, catchily pronounced “fimdim,” has been working for years to improve patients’ knowledge of options and alternatives. In today’s Boston Globe Liz Cooney talks with people [...]
Read Moree-patient stories, trends & principles, Why PM
The Unwilling E-Patient: Learning to use my mother-of-a-patient voice
One of the essential enablers of participatory medicine is that the internet brings patients together with information and with each other. Sometimes those connections seem improbable, such as when an acute cancer patient finds much in common with patients who have a chronic condition such as rheumatoid arthritis. Kelly Young, “Rheumatoid Arthritis Warrior,” blogs at [...]
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The Power of Mobile (Video)
The video of my Mayo Transform 2010 speech, The Power of Mobile, is now up on the conference site as well as on YouTube. It was an honor to be part of this event. Many thanks to David Rosenman and his team for inviting me!
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