Found on the Net: “Why Steve Jobs will be the ultimate e-patient”

I have a Google Alert for “e-patient,” and sometimes I’m surprised what it catches. Tonight it was this:

3 Reasons Steve Jobs Will Be The Ultimate e-Patient
Steve Jobs’ medical leave sets the stage for the upcoming revolution in the production and delivery of medical information at time of diagnosis. 3 things you need to know.

So I’m thinking, oh, migod: is the term “e-patient” going mainstream??

That would be a hoot, because indeed the Society for Participatory Medicine is engaged in spreading the word.


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Comments

8 Responses to “Found on the Net: “Why Steve Jobs will be the ultimate e-patient””

  1. Mark Boguski says:

    The media continues to propagate the erroneous diagnosis of Steve Jobs “pancreatic cancer.” This is a tremendous disservice to the public and misleading to Apple shareholders and a striking example of the need for increased health literacy and medical knowledge among consumers (and reporters and journalists).

    The tumor that Mr. Jobs had has a very different prognosis and treatment options than the cancer which has lead to the deaths of many other public figures (e.g. http://bit.ly/erRX9Q).
    We have written a series of articles on Jobs’ real diagnosis and treatment. Here’s one: http://bit.ly/haTh24

  2. maria Gonzalez says:

    As a person with carcinoid, I agree with writer Mark Boguski re. the “selective” reporting of Mr. Job’s cancer. He could help those of us floundering for research monies, recognition of this cancer by physicians and the general public if he “came out”. Conversely, I also understand where he is coming from as, unfortunately, the stigma of cancer is alive and well and as a business man, he would suffer.
    I appreciate the article written about Mr. Job’s neuroendocrine cancer. Can’t help but wonder if it is our business to “out” Mr. Jobs! Where does one draw the line??????

  3. Thank you for the link to our post “3 Reasons Steve Jobs Will Be The Ultimate e-Patient.” As the author of the post, I can tell you that yes, e-patient is used constantly, particularly at the pharmaceutical conferences I attend. (In fact, at one of these conferences, your name and your site came up during an informal lunch discussion of patient-centric care)

    As someone who narrowly survived a run-in with the healthcare system (12 physicians, 2 lawyers) I can honestly say that had it not been for sites like this and advocacy efforts like Society for Participatory Medicine, I wouldn’t be here today.

  4. Mark Boguski says:

    For those interested in carcinoid tumors, you will find these two articles helpful:

    http://www.medpagetoday.com/Blogs/24519
    and
    http://www.medpagetoday.com/Blogs/24671

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