Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator Edition

We often say here “Gimme my damn data,” referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, “Nothing about me without me.”

And where, we might ask, is that more vital than in the heart?

SPM member Hugo Campos (Twitter @HugoOC) has a cardiac condition that makes him vulnerable to sudden cardiac arrest. Fortunately he has a device, an ICD – implanted cardiac defibrillator – a magical gadget that helps prevent arrest.  That’s good. But he’s also a geek – a data fiend – who would really like to make use of all the data in the ICD, and he can’t get at it. After all, he has a digital pedometer, Zeo sleep system, digital everything, and he tracks all that data – isn’t it ironic that the most important data is hidden from view?

So last fall at TEDx Cambridge, he gave this nine minute talk that makes the case – compellingly, I think – for letting him do as much as he can to use his heart’s data to save his own life. And tells the TEDx world about SPM, and e-patients “shifting from being mere passengers to responsible drivers of their health.” Spread the word!


Posted in: e-patient stories | medical records




11 Responses to “Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator Edition”

  1. […] News Page » Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator Edition on Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator EditionThe Rise of the e-Patient: Slideshow « ScienceRoll on The Rise of the e-PatientJessie Gruman […]

  2. […] quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR’s On The Media on 1/20, and now he’s […]

  3. […] (See the photo, right, taken two weeks ago in San Francisco with the amazing Hugo Campos, whose “gimme my data” TEDx talk is the recent darling of the e-patient world. He Photoshopped a background of numbers into it […]

  4. […] lack of cooperation, he created a little self-tracking form (as described in his excellent 8 minute TEDx talk) and figured out that scotch whiskey gives him atrial […]

  5. […] and Amanda Hubbard.  Campos, famous for his quip, “Dude, Gimme My Damn Data” at a January, 2012 TEDx Cambridge speech, leads a group of activist patients demanding access to their medical device data from medical […]

  6. […] has hypertrophic cardiomyopathy, the enlarged heart-muscle condition that Hugo Campos has made famous. He’s never heard of Hugo, nor has he heard of the AliveCor, but he sure […]

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