Society for Participatory Medicine
e-patients.net blog
We often say here “Gimme my damn data,” referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, “Nothing about me without me.”
And where, we might ask, is that more vital than in the heart?
SPM member Hugo Campos (Twitter @HugoOC) has a cardiac condition that makes him vulnerable to sudden cardiac arrest. Fortunately he has a device, an ICD – implanted cardiac defibrillator – a magical gadget that helps prevent arrest. That’s good. But he’s also a geek – a data fiend – who would really like to make use of all the data in the ICD, and he can’t get at it. After all, he has a digital pedometer, Zeo sleep system, digital everything, and he tracks all that data – isn’t it ironic that the most important data is hidden from view?
So last fall at TEDx Cambridge, he gave this nine minute talk that makes the case – compellingly, I think – for letting him do as much as he can to use his heart’s data to save his own life. And tells the TEDx world about SPM, and e-patients “shifting from being mere passengers to responsible drivers of their health.” Spread the word!
[...] Article e-Patient Dave, e-patients.net [...]
[...] News Page » Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator Edition on Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator EditionThe Rise of the e-Patient: Slideshow « ScienceRoll on The Rise of the e-PatientJessie Gruman [...]
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[...] quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR’s On The Media on 1/20, and now he’s [...]
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[...] (See the photo, right, taken two weeks ago in San Francisco with the amazing Hugo Campos, whose “gimme my data” TEDx talk is the recent darling of the e-patient world. He Photoshopped a background of numbers into it [...]
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