Rheumatoid e-Patients Share the Spotlight at Medical Conferences

The Journal of Participatory Medicine has published a narrative by Kelly Young entitled “Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology.” Young describes how the Rheumatoid Patient Foundation evolved from her and other e-patients’ efforts to better understand their condition through online research and networking, and how the organization came to win recognition from the American College of Rheumatology as an authority on rheumatoid patient needs and patient care.


Posted in: found on the net | how I became an e-patient | JoPM | positive patterns | pts as teachers




2 Responses to “Rheumatoid e-Patients Share the Spotlight at Medical Conferences”

  1. Just did an interview with Dr. Ronan Kavanagh, rheumatologist, about how he is using social media. http://scienceroll.com/2012/02/27/a-rheumatologists-view-on-social-media-interview/

  2. Marianne Marden says:

    Kelly Young has empowered my life as a rheumatoid patient. I was never more grateful to her than when my rheumatologist discussed with me an article that Kelly had written. That’s patient power!

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