HIT Journalist becomes patient advocate after seeing the danger of uncoordinated care and poorly designed workflows

Neil Versel, a HIT journalist, relates a very touching story of his father’s care at two different hospitals: one was uncoordinated and prone to errors and near misses, another one was quite a good experience. Unfortunately Neil’s father had a rare poorly known disease (MSA) and he died from it. The whole story with details is here:

http://www.meaningfulhitnews.com/2012/05/17/mark-versel-1944-2012/

An extract of the post below:

I am now vowing to dedicate my own career to educating as many people about MSA as possible and about the danger of uncoordinated care and poorly designed workflows. Interestingly, one of the last stories I wrote before my father passed and before I took leave was a piece in InformationWeek about patient engagement. I love the mantra of the Society for Participatory Medicine that I mentioned in the story: “Nothing about me without me.”

We send our condolences to Neil and thank him for writing about the Society for Participatory Medicine and our Meaningful Use Stage 2 comments in his Information Week article.

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Posted in: e-patient stories | end of life | others' e-patient stories | pts as teachers

 

 

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2 Responses to “HIT Journalist becomes patient advocate after seeing the danger of uncoordinated care and poorly designed workflows”

  1. [...] Kudos to our search team. Also, read Neil Versel’s excellent interview with Barbara in today’s MobiHealthNews. Neil “gets” the importance of participatory medicine at a personal level – see our post about his story last year, HIT Journalist becomes patient advocate…. [...]

  2. [...] Kudos to our search team:co-founder and treasurer John Grohol,president Sarah Krug,secretary Nancy Finn,president-elect Michael Millenson. Tead Neil Versel’s excellent interview with Barbara in today’s MobiHealthNews. Neil “gets”the importance of participatory medicine at a personal level –see our post about his story last year, HIT Journalist becomes patient advocate…. [...]

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