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	<title>1 Million VA Patients Can Now Access Their Complete Health RecordComments on: --</title>
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	<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html</link>
	<description>because health professionals can&#039;t do it alone</description>
	<lastBuildDate>Mon, 20 May 2013 07:54:30 +0000</lastBuildDate>
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		<title>By: Merle Bushkin</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-117227</link>
		<dc:creator>Merle Bushkin</dc:creator>
		<pubDate>Sat, 26 Jan 2013 22:08:23 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-117227</guid>
		<description><![CDATA[Lygeia, 

Not sure I understand what you mean when you write &quot;you–as the patient–can be the one to compile and share distinct pieces of your health information among your healthcare providers.&quot;

If you mean that the patient must post info from their providers rather than the provider posting the info/notes, you will seriously undermine the value of the data.  In my experience, docs want to know what docs say/write, not the patient&#039;s interpretation of what the doc told him or her. Also, most patients won&#039;t do it.

Additionally, I understand your enthusiasm for the potential of Blue Button but, in all candor, the reality isn&#039;t even close to what you describe. 

Eg., the information you get when you download your Medicare records using Blue Button is virtually useless to both patient and doc. It is insurer-type info listing the date, the provider you saw, the &quot;Submitted Amount,&quot; the amount Medicare allowed for the visit, etc.  The text in &quot;Procedure Code/Description&quot; and the &quot;Modifier Description&quot; are generic boiler plate. The only substantive data are the &quot;Diagnostic Codes&quot; - which are meaningless numbers to patients and most providers.]]></description>
		<content:encoded><![CDATA[<p>Lygeia, </p>
<p>Not sure I understand what you mean when you write &#8220;you–as the patient–can be the one to compile and share distinct pieces of your health information among your healthcare providers.&#8221;</p>
<p>If you mean that the patient must post info from their providers rather than the provider posting the info/notes, you will seriously undermine the value of the data.  In my experience, docs want to know what docs say/write, not the patient&#8217;s interpretation of what the doc told him or her. Also, most patients won&#8217;t do it.</p>
<p>Additionally, I understand your enthusiasm for the potential of Blue Button but, in all candor, the reality isn&#8217;t even close to what you describe. </p>
<p>Eg., the information you get when you download your Medicare records using Blue Button is virtually useless to both patient and doc. It is insurer-type info listing the date, the provider you saw, the &#8220;Submitted Amount,&#8221; the amount Medicare allowed for the visit, etc.  The text in &#8220;Procedure Code/Description&#8221; and the &#8220;Modifier Description&#8221; are generic boiler plate. The only substantive data are the &#8220;Diagnostic Codes&#8221; &#8211; which are meaningless numbers to patients and most providers.</p>
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		<title>By: e-Patient Dave</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-117222</link>
		<dc:creator>e-Patient Dave</dc:creator>
		<pubDate>Sat, 26 Jan 2013 21:12:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-117222</guid>
		<description><![CDATA[Lygeia, thanks - any thoughts (Sue too) on Merle&#039;s question about Blue Button data &quot;porting forward&quot; to non-VA providers?]]></description>
		<content:encoded><![CDATA[<p>Lygeia, thanks &#8211; any thoughts (Sue too) on Merle&#8217;s question about Blue Button data &#8220;porting forward&#8221; to non-VA providers?</p>
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		<title>By: Lygeia Ricciardi</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-117218</link>
		<dc:creator>Lygeia Ricciardi</dc:creator>
		<pubDate>Sat, 26 Jan 2013 19:16:59 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-117218</guid>
		<description><![CDATA[Congratulations to the VA for continuing to show great leadership with Blue Button! Fortunately for all of us, the Office of the National Coordinator for Health IT (ONC) in the Department of Health and Human Services is now working to take Blue Button nationwide. 


We&#039;re building Blue Button patient access to data into the &quot;Meaningful Use&quot; incentive program for providers and hospitals --  that means that within about a year all participating healthcare providers (the majority of providers in the US) will have the capability to enable their patients to view, download, and share their data electronically with others. One of the benefits of exporting data (in response to Merle Buskin) is that you--as the patient--can be the one to compile and share distinct pieces of your health information among your healthcare providers so you and they can get a more complete picture of your health. 


Another benefit is that you can feed your health data into apps and tools that let you do cool stuff with it -- understand it better, visualize where your health is relative to your goals, and check for (and address) errors or omissions in your medical record. To turbocharge development of great consumer applications, we&#039;re writing technical guidance for providers and programmers that evolves some of the standards that support Blue Button. And we&#039;re doing it with input from about 70 organizations. Through &quot;Blue Button +&quot; standards, patients will be able to get regular automatic updates of their health information electronically. That means programmers can build even better tools that really make the information useful. 


There&#039;s a lot going on with Blue Button--including a Pledge Program to support Data Holders who want to share their data: http://healthIT.gov/pledge, technical standards work: http://wiki.siframework.org/Automate+Blue+Button+Initiative, a design challenge to make the information usable (and beautiful): http://healthdesignchallenge.com, and a video challenge for members of the public http://bluebuttonvideo.challenge.gov


Follow the latest on Blue Button via http://healthIT.gov/bluebutton]]></description>
		<content:encoded><![CDATA[<p>Congratulations to the VA for continuing to show great leadership with Blue Button! Fortunately for all of us, the Office of the National Coordinator for Health IT (ONC) in the Department of Health and Human Services is now working to take Blue Button nationwide. </p>
<p>We&#8217;re building Blue Button patient access to data into the &#8220;Meaningful Use&#8221; incentive program for providers and hospitals &#8212;  that means that within about a year all participating healthcare providers (the majority of providers in the US) will have the capability to enable their patients to view, download, and share their data electronically with others. One of the benefits of exporting data (in response to Merle Buskin) is that you&#8211;as the patient&#8211;can be the one to compile and share distinct pieces of your health information among your healthcare providers so you and they can get a more complete picture of your health. </p>
<p>Another benefit is that you can feed your health data into apps and tools that let you do cool stuff with it &#8212; understand it better, visualize where your health is relative to your goals, and check for (and address) errors or omissions in your medical record. To turbocharge development of great consumer applications, we&#8217;re writing technical guidance for providers and programmers that evolves some of the standards that support Blue Button. And we&#8217;re doing it with input from about 70 organizations. Through &#8220;Blue Button +&#8221; standards, patients will be able to get regular automatic updates of their health information electronically. That means programmers can build even better tools that really make the information useful. </p>
<p>There&#8217;s a lot going on with Blue Button&#8211;including a Pledge Program to support Data Holders who want to share their data: <a href="http://healthIT.gov/pledge" rel="nofollow">http://healthIT.gov/pledge</a>, technical standards work: <a href="http://wiki.siframework.org/Automate+Blue+Button+Initiative" rel="nofollow">http://wiki.siframework.org/Automate+Blue+Button+Initiative</a>, a design challenge to make the information usable (and beautiful): <a href="http://healthdesignchallenge.com" rel="nofollow">http://healthdesignchallenge.com</a>, and a video challenge for members of the public <a href="http://bluebuttonvideo.challenge.gov" rel="nofollow">http://bluebuttonvideo.challenge.gov</a></p>
<p>Follow the latest on Blue Button via <a href="http://healthIT.gov/bluebutton" rel="nofollow">http://healthIT.gov/bluebutton</a></p>
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		<title>By: Merle Bushkin</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-117206</link>
		<dc:creator>Merle Bushkin</dc:creator>
		<pubDate>Sat, 26 Jan 2013 14:17:46 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-117206</guid>
		<description><![CDATA[This is a great start. But what happens when a wounded warrior sees civilian providers, as frequently happens?  Are records and notes from out-of-network encounters included in the VA system?  If not, the VA records are incomplete and so is the Blue Button-generated data.]]></description>
		<content:encoded><![CDATA[<p>This is a great start. But what happens when a wounded warrior sees civilian providers, as frequently happens?  Are records and notes from out-of-network encounters included in the VA system?  If not, the VA records are incomplete and so is the Blue Button-generated data.</p>
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		<title>By: Mark Harmel</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-117018</link>
		<dc:creator>Mark Harmel</dc:creator>
		<pubDate>Thu, 24 Jan 2013 05:51:04 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-117018</guid>
		<description><![CDATA[I could see the argument for only going forward because providers will know from that point that notes will be open and they can be written with patient viewing in mind. The recent study found that  doctors changed their notes. 
&quot;I know I changed mine I wrote better notes. Notes written didn&#039;t take more time; they were more educational - &quot;take penicillin BECAUSE.&quot;-Tom Delbanco, MD, Co-Principal Investigator, OpenNotes]]></description>
		<content:encoded><![CDATA[<p>I could see the argument for only going forward because providers will know from that point that notes will be open and they can be written with patient viewing in mind. The recent study found that  doctors changed their notes.<br />
&#8220;I know I changed mine I wrote better notes. Notes written didn&#8217;t take more time; they were more educational &#8211; &#8220;take penicillin BECAUSE.&#8221;-Tom Delbanco, MD, Co-Principal Investigator, OpenNotes</p>
]]></content:encoded>
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		<title>By: Susan Woods</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-117013</link>
		<dc:creator>Susan Woods</dc:creator>
		<pubDate>Thu, 24 Jan 2013 05:33:56 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-117013</guid>
		<description><![CDATA[Tom,
Good questions, and I can give you a very non-official answer. VA had to start somewhere. It may not be the perfect solution, but it&#039;s sure a great one to start with. You know - the beginning, solid stairs of that very dramatic staircase. :-)]]></description>
		<content:encoded><![CDATA[<p>Tom,<br />
Good questions, and I can give you a very non-official answer. VA had to start somewhere. It may not be the perfect solution, but it&#8217;s sure a great one to start with. You know &#8211; the beginning, solid stairs of that very dramatic staircase. :-)</p>
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		<title>By: Susan Woods</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-117011</link>
		<dc:creator>Susan Woods</dc:creator>
		<pubDate>Thu, 24 Jan 2013 05:28:31 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-117011</guid>
		<description><![CDATA[Mark,
Yes, the OpenNotes study found similar patient experience at all 3 health systems, related to feeling more in control of health, and motivated to address treatment plans. With these clinical sites, and now the VA, there is huge opportunity to evaluation several dimensions -- affects on business processes and workflow (e.g., requests to amend records), patient and caregiver participation and health outcomes, and clinical team impact. Whoever can pull off doing a large prospective cohort study will have lots to contribute to this journey..]]></description>
		<content:encoded><![CDATA[<p>Mark,<br />
Yes, the OpenNotes study found similar patient experience at all 3 health systems, related to feeling more in control of health, and motivated to address treatment plans. With these clinical sites, and now the VA, there is huge opportunity to evaluation several dimensions &#8212; affects on business processes and workflow (e.g., requests to amend records), patient and caregiver participation and health outcomes, and clinical team impact. Whoever can pull off doing a large prospective cohort study will have lots to contribute to this journey..</p>
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		<title>By: Tom Kintner</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-116991</link>
		<dc:creator>Tom Kintner</dc:creator>
		<pubDate>Wed, 23 Jan 2013 20:56:43 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-116991</guid>
		<description><![CDATA[Yes, BUT:  It seems that the VA is still withholding older notes:  &quot;Initially, you will be able to view VA Notes entered into your VA health record from January 1, 2013 forward.  In the future, you may be able to view more historical VA notes (written before January 1, 2013).

Your VA Notes are available for viewing seven (7) days after your VA health care team member signs the note.&quot;  (from VA Customer Service, via email)

When will the &quot;7 days&quot; get reduced, and whne will the older notes be available?]]></description>
		<content:encoded><![CDATA[<p>Yes, BUT:  It seems that the VA is still withholding older notes:  &#8220;Initially, you will be able to view VA Notes entered into your VA health record from January 1, 2013 forward.  In the future, you may be able to view more historical VA notes (written before January 1, 2013).</p>
<p>Your VA Notes are available for viewing seven (7) days after your VA health care team member signs the note.&#8221;  (from VA Customer Service, via email)</p>
<p>When will the &#8220;7 days&#8221; get reduced, and whne will the older notes be available?</p>
]]></content:encoded>
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		<title>By: Six Awkward Concerns in My OpenNotes &#124; The Health Care Blog</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-116986</link>
		<dc:creator>Six Awkward Concerns in My OpenNotes &#124; The Health Care Blog</dc:creator>
		<pubDate>Wed, 23 Jan 2013 18:53:16 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-116986</guid>
		<description><![CDATA[[...] found out this past weekend that the VA will be making clinician progress notes available for patients to view on the MyHealtheVet portal. In other words, the VA is going OpenNotes. (Note: I was a primary care provider in geriatrics [...]]]></description>
		<content:encoded><![CDATA[<p>[...] found out this past weekend that the VA will be making clinician progress notes available for patients to view on the MyHealtheVet portal. In other words, the VA is going OpenNotes. (Note: I was a primary care provider in geriatrics [...]</p>
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		<title>By: Mark Harmel</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-116978</link>
		<dc:creator>Mark Harmel</dc:creator>
		<pubDate>Wed, 23 Jan 2013 16:27:46 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-116978</guid>
		<description><![CDATA[Susan,

Great to see that OpenNotes is now available. The initial qualitative data hinted that patients will be more involved with their care. Is anyone tracking the clinical impact?
http://annals.org/article.aspx?articleid=1363511]]></description>
		<content:encoded><![CDATA[<p>Susan,</p>
<p>Great to see that OpenNotes is now available. The initial qualitative data hinted that patients will be more involved with their care. Is anyone tracking the clinical impact?<br />
<a href="http://annals.org/article.aspx?articleid=1363511" rel="nofollow">http://annals.org/article.aspx?articleid=1363511</a></p>
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		<title>By: Million Veteran March Toward Participatory Medicine &#8211; VA OpenNotes</title>
		<link>http://e-patients.net/archives/2013/01/1-million-va-patients-can-now-access-their-complete-health-record.html/comment-page-1#comment-116862</link>
		<dc:creator>Million Veteran March Toward Participatory Medicine &#8211; VA OpenNotes</dc:creator>
		<pubDate>Tue, 22 Jan 2013 18:04:11 +0000</pubDate>
		<guid isPermaLink="false">http://e-patients.net/?p=14118#comment-116862</guid>
		<description><![CDATA[[...] Additional comments posted on Society for Participatory Medicine blog. [...]]]></description>
		<content:encoded><![CDATA[<p>[...] Additional comments posted on Society for Participatory Medicine blog. [...]</p>
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