Society for Participatory Medicine
e-patients.net blog
e-pts resources
e-pts resources, found on the net, JoPM
Making Sense of “Patient-Centered Care”
The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site called uPrevent, which translates research findings into actionable information for patients. Read the post at http://www.golocalprov.com/health/paul-levy-how-to-become-a-more-informed-patient/.
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Applying Tom Gilbert’s performance improvement framework to the “compliance” issue
I participated today in a webinar hosted by eHI. My slides arrived (ahem) too late to be broadcast, so I posted them online, with comments, on my site. In case you don’t click through to the whole thing, here’s a quick excerpt: Long ago in another career I learned about Thomas Gilbert (1927-1995), a real [...]
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Gangadhar Sulkunte: TEDMED 2012 Highlights
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the Patient.” as on of its next “Great Challenges.” I was able to secure a scholarship [...]
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“The cancer at the core of evidence-based medicine”: Ben Goldacre on the missing data
Updates: The text below the video was added later on 4/17, and the graphic was added 4/18. For me the evidence highlight of TEDMED last week was a talk by Ben Goldacre MD (@BenGoldacre), a charming and articulate doctor who’s dug deeply into what seems to be scurrilous business: suppression of evidence that doesn’t favor [...]
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Self-Service Healthcare?
In a recent commentary on the American Public Media program Marketplace Money, Francis Frei discussed the failure of self check-out at supermarkets. Her insightful commentary is clearly based on both personal experience as well as her professional knowledge of operations management and customer behavior (she is a professor at Harvard Business School). The piece is [...]
Read Moree-pts resources, found on the net, JoPM
JoPM: “Making Every Second Count” at the Doctor’s Office
Co-Editors-in-Chief Joe and Terry Graedon tell patients how to get the most out of today’s all-too-brief medical office visits in the April editorial of the Journal of Participatory Medicine. “Making Every Second Count – What We Can Do As Patients” complements JoPM’s March editorial, which tackled the time problem from the physician perspective.
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#firstMRI is a project! Tweetchat tonight
Update 3/23: here’s the transcript of the event. Remember December’s post about the #firstMRI idea, to help poor unsuspecting patients prepare for the “monkeys banging on garbage cans” experience? It’s a project now! Join us for tonight’s #s4pm tweetchat at 8 ET / 5 PT! http://tweetchat.com/room/s4pm (Background info is at bottom here.) Topics: T1: Bad [...]
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Former NEJM editors on the corruption of American medicine (NY Times)
This is longer than it might be, because this point is essential. If this subject is familiar to you, skip to the heading “Today’s update.” As we said in December, an e-patient essential is sorting out what writings to trust, whether we find them online or in print. There’s an important update on this in [...]
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Visualize This: An e-Patient’s Medical Life History
The following was originally Katie McCurdy’s response to the excellent, ongoing discussion about the future for self-tracking. It’s too good not to elevate to a post of its own — Susannah. ____________________________________________________________________________ Katie’s self-crafted medical timeline (Click to enlarge; see story below) There is some recent thought that self-tracking or data gathering is “a manifestation of [...]
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The Power of Rare Disease Patients
I’m honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a transformation of healthcare in this country. Pew’s Susannah Fox has named them [...]
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