e-pts resources

 

e-pts resources, positive patterns, pt/doc co-care, trends & principles

SPM loves Flip The Clinic – we’re an “ally”

The Society for Participatory Medicine enthusiastically supports this new, transformational initiative from the Robert Wood Johnson Foundation: Flip the Clinic. (Don’t you love the logo? Turning the clinic on its ear?) It’s utterly engaging and empowering to patients, because it puts information in the hands of the patient and family – outside of the clinic visit, where we can […]

Read More
e-pts resources, positive patterns, pt/doc co-care, pts as teachers, trends & principles

WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)

Significantly expanded, below the video, an hour after the first post. Peter Frishauf, member of the editorial board of our journal, has brought what is to me the most exciting news for participatory medicine since the OpenNotes project. Importantly, this news may have broader implications – because it addresses one of the core challenges of […]

Read More
e-pts resources, patient networks

Rare Diseases: Powered by Patients

A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and caregivers–and I think you’ll agree that the answer is definitely, […]

Read More
e-pts resources, medical records, PM Tech, policy issues, pt/doc co-care, research issues, trends & principles

Emory study: “PHR resulted in significantly improved quality of care and use of services”

Long-time readers will recall a hallway conversation I had at a conference in 2011 with Silke von Esenwein PhD of Emory University’s Center for Behavioral Health Policy Studies, who was presenting a poster with preliminary results of a study in process. The post was titled Safety net populations do benefit from online PHRs, and included the […]

Read More
e-pts resources, PM Tech

Evernote is my EMR

This post originally appeared on NickDawson.net here.    Spoiler alert: I’m not dying and there doesn’t appear to be anything major wrong with me. I know, you hate spoilers. But I thought I’d get that one out of there way. It makes the rest of this considerably more pleasant for us both. I’ve got a new personal […]

Read More
e-pts resources, found on the net, medical records

What to do if your doctor wouldn’t fax YOU your records…

Our member Keith Boone with a great explanation of what to do when a provider’s office gives you the “I can’t do this because of HIPAA” about giving you your records: http://motorcycleguy.blogspot.com/2014/01/knowing-who-to-talk-to-is-half-battle.html A little teaser off the blog post: I’m taking my own advice with this, and complaining to my physician office’s privacy officer, because […]

Read More
e-patient stories, e-pts resources, JoPM, patient networks, positive patterns, social media

Join #s4pm tweetchat Saturday 10/12 at 3pm ET

We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other topics of interset to our members: e-patients, health care social media, and patient-centered design. Come meet the friends you made at MedX and share […]

Read More
e-pts resources, medical records, policy issues

Expanding HIPAA Rights: Lab Test Results to Come Under the Big Tent

[Note added by e-Patient Dave: this is such a big deal that I'm taking the rude step of adding highlights [bold] to Attorney Harlow’s post!] We’re inching closer to promulgation of final regulations that will likely make all lab test results more easily accessible to patients, by making them subject to the HIPAA rules ensuring patient […]

Read More
e-pts resources, patient networks, policy issues, positive patterns, pt/doc co-care, social media, trends & principles, Why PM

New #S4PM tweetchat series kicks off Saturday 9/14 at 3pm Eastern

SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu, @Yogileana; and Carla Berg, @Confluently. We’ll be hosting an #s4pm tweetchat on the 2nd and 4th Saturdays of the month, with our 2nd […]

Read More
e-pts resources, reforming hc

Health Plan Member Engagement and Empowerment Index: The EveryMove 100

There’s a new index in town. This week’s entrant is the EveryMove 100, a ranking of health plans across the US “based on how they engage with and empower consumers to manage their own health.” according to the presser. (EveryMove is a health rewards based marketing and incentives company that provides opportunities to consumers to earn […]

Read More