e-pts resources

 

e-pts resources, medical records, policy issues, positive patterns, pt/doc co-care

50 million more patients to get OpenNotes! Huge win for empowered partnership!

Big news: a multi-foundation $10 million grant will spread OpenNotes access to fifty million more patients! Nearly 20% of America will have full access to their providers’ visit notes, so they can review them from anywhere! Regular readers know we’ve always been loud fans of the OpenNotes project. Initially funded by Robert Wood Johnson Foundation […]

Read More
e-pts resources, found on the net, policy issues, positive patterns

Crohnology Blog: Am I disabled?

The series of blog posts at the online community website Crohnology continues for patients with IBD. Duncan Cross has a post that is interesting for anyone with an autoimmune or other disabling chronic condition: Am I disabled? It discusses the Americans with Disabilities Act in 1990, and the extension in 2008.

Read More
e-pts resources, general, medical records, pt/doc co-care, pts as teachers, shared decision making, trends & principles

Guest Post by Mary Beth Schoening: a Definition of the Engaged Patient

This is a guest post by our member Mary Beth Schoening. Mary Beth is co-founder of Behavioral Health Innovators, Inc. an organization combining the power of human compassion with technology, advanced research and best practices from industry to encourage healthy behaviors.  As a digital health strategist, she has developed strategies and tools to engage both […]

Read More
e-pts resources, general, hc's problem list, key people, Patient Conference Participation, patient networks, positive patterns, pts as teachers, shared decision making

Sep 26 – Patient Summit on Diagnosis in Alexandria, VA

To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of the pre-conference program of the Diagnostic Error in Medicine conference and takes place […]

Read More
e-pts resources, news & gossip, positive patterns, pt/doc co-care, shared decision making, trends & principles

A Turing test for diagnosis: BMJ evaluates online symptom checkers; good Globe article

A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don’t. I love it; in my view the bottom line is “Some are better than nothing, none is near perfect, and some are junk. Learn, but as with all […]

Read More
e-pts resources, Patient Conference Participation, pts as teachers, reforming hc, trends & principles

Conference Organizers to Affected Patients: “Go Fund Yourself”!

SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources – she’s a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her “go fund yourself” moment, is captured in this guest post. During the Holidays, I carry on a time-honored tradition in my family: […]

Read More
e-patient stories, e-pts resources, key people, policy issues, pt/doc co-care, shared decision making, trends & principles

On Making Patient Reviews of Physicians More Useful

I recently hosted a Google Hangout on Air entitled Patient Reviews of Physicians: The Wisdom of the Crowd? (presented by The Harlow Group LLC in association with The Society for Participatory Medicine). I spoke with Niam Yaraghi (Center for Technology Innovation, The Brookings Institution) and Casey Quinlan (Mighty Casey Media) following their interesting back-and-forth online […]

Read More
e-pts resources, key people, PM Tech, social media, trends & principles

Tune in for Patient Reviews of Physicians: The Wisdom of the Crowd?

HB post header for HOA

Patient Reviews of Physicians: The Wisdom of the Crowd? Google Hangout On Air Hosted by David Harlow with Niam Yaraghi and Casey Quinlan Wed, Jun 24, 3:00 PM – 4:00 PM ET Presented by David Harlow (aka HealthBlawg) in association with The Society for Participatory Medicine. I am hosting a conversation with Niam Yaraghi (Center […]

Read More
e-pts resources, found on the net, others' e-patient stories, positive patterns, pt/doc co-care, pts as teachers

“Inside Medicine at Weill Cornell: Meeting in the Middle”

Weill Cornell produced a series of mini-documentary style videos showcasing mentoring at their institution. This final video specifically focuses on how patients mentor their students. http://weill.cornell.edu/news/news/2015/05/inside-medicine-meeting-in-the-middle.html Go Weill Cornell! Let’s hope we will find out more about their LEAP (Longitudinal Educational Experience Advancing Patient Partnerships) program!

Read More
e-pts resources, general, key people, Patient Conference Participation, pts as teachers

Guest post by Annette McKinnon: Power Equality: Not Even on the Radar

This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid arthritisfor the past 30 years, and has a background in market research. She attended […]

Read More