Society for Participatory Medicine
e-patients.net blog
found on the net
found on the net, social media
Cleveland Clinic’s John Sharp with a review of Social Media in Healthcare
Member John Sharp from Cleveland Clinic has a great review of Social Media in Health Care in the last two years. The Society for Participatory Medicine is also mentioned. http://www.ihealthbeat.org/perspectives/2012/a-look-at-social-media-in-health-care-two-years-later.aspx
Read Morefound on the net, medical records, policy issues, trends & principles
KQED blog on Hugo Campos and his quest to access his data
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo’s desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he wrote, “Just had the biggest arrhythmia ever. I’m trying to recover [...]
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Is “gimme my damn data” damning to patients?
E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients — that he may be perceived by clinicians as a “difficult patient” just because he wants his [...]
Read Morefound on the net, policy issues
@Ahier on the AHA’s “it’s too hard”: Planetree hospitals give access while still in-patient
[Reminder: The place to register an official comment to the government is this page on Regulations.gov.] SPM member Brian Ahier is Health IT Evangelist at Mid-Columbia Medical Center in The Dalles, Oregon. Today he posted this on Google+; reposted here with permission: (emphasis added) First, I want to say that I am strongly opposed to [...]
Read Moree-pts resources, found on the net, JoPM
Making Sense of “Patient-Centered Care”
The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site called uPrevent, which translates research findings into actionable information for patients. Read the post at http://www.golocalprov.com/health/paul-levy-how-to-become-a-more-informed-patient/.
Read Morefound on the net, hc's problem list, medical records
Let’s Get Medical Info as Good as Our Pets Get! — A Petition
SPM member Ken Farbstein sent us this invitation to help persuade the Office of the National Coordinator for Health Information Technology to include printed summaries of doctor visits in the ONC’s definition of meaningful use. After our pets go to the veterinarian, many of us promptly and routinely get a paper summary that instructs us [...]
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AHRQ Cancer Resources to Help Understand Treatment Options
From Nadia Dawson at Ogilvy, the PR firm that’s handling AHRQ (the Agency for Healthcare Research & Quality) – ———- Forwarded message ———- From: Nadia Dawson Date: Wed, Apr 25, 2012 at 6:34 PM Subject: Cancer Resources to Help Understand Treatment Options Hello Dave, HHS’s Agency for Healthcare Research and Quality (AHRQ) offers a growing [...]
Read Moree-pts resources, found on the net, PM Tech, trends & principles
Applying Tom Gilbert’s performance improvement framework to the “compliance” issue
I participated today in a webinar hosted by eHI. My slides arrived (ahem) too late to be broadcast, so I posted them online, with comments, on my site. In case you don’t click through to the whole thing, here’s a quick excerpt: Long ago in another career I learned about Thomas Gilbert (1927-1995), a real [...]
Read Morefound on the net, net-friendly docs, positive patterns, shared decision making, social media
Technology Enables Collaborative Doctor-Patient Relationships
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence that more physicians are recognizing the value of these patient-empowerment tools, contributing to a trend toward patient-centered, [...]
Read Moree-pts resources, found on the net, positive patterns, trends & principles, Why PM
Gangadhar Sulkunte: TEDMED 2012 Highlights
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the Patient.” as on of its next “Great Challenges.” I was able to secure a scholarship [...]
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