found on the net

 

found on the net, hc's problem list, key people

The Doctor as Patient

Charlotte Yeh is the Chief Medical Officer of AARP Services, and has had a long career in government and as a practicing emergency physician. (Our paths first crossed years ago when we were both working on pre-hospital care reform in Massachusetts.) She wrote a piece published in the current issue of Health Affairs about her […]

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found on the net, positive patterns, research issues, trends & principles

From BMJ: The BMJ’s own patient journey – Seeks to promote patient partnership by walking the talk

An interesting editorial in the BMJ (British Medical Journal) describes BMJ’s path to including patients in reviewing the articles and research published in the Journal. I hope this initiative will be successful and copied by the healthcare world. http://www.bmj.com/content/348/bmj.g3726 Our new strategy aligns with our “too much medicine” and “open data” campaigns and our support […]

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found on the net, general, medical records, positive patterns

Wall Street Journal article on getting patients involved in their healthcare

An article published yesterday in Wall Street Journal The Health-Care Industry Is Pushing Patients to Help Themselves - Providers are Using Tech Tools and Personalized Approaches to Get Patients More Engaged http://online.wsj.com/articles/the-health-care-industry-is-pushing-patients-to-help-themselves-1402065145 The Institute of Medicine, which cited patient engagement as key to an effective health-care system in a 2012 report, urged doctors to use technology […]

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found on the net, positive patterns, pt/doc co-care, reforming hc, trends & principles

JAMA: Reducing the Trauma of Hospitalization

Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient’s hospital stay – really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress is also toxic and can emanate from uncertainty, unforeseen events, and anxiety. […]

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e-patient stories, e-pts resources, found on the net, policy issues

Times science reporter asks: “Ever hit a paywall?”

Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer “yes” and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from non-scientists. Plz email me amy@nytimes.com — Amy Harmon […]

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found on the net, net-friendly docs, policy issues, positive patterns, pts as teachers, reforming hc, shared decision making

New ACP center will foster physician-patient collaboration : Internal Medicine News

4 minutes video in which Dr. Steven Weinberger describes why it is important to include patients in creating guidelines and decision-making processes. New ACP center will foster physician-patient collaboration : Internal Medicine News. (requires registration. I just used my email in the Lookup field, but you might need additional registering – free)  

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found on the net, patient networks, positive patterns, pt/doc co-care, shared decision making

From BMJ: The interdependent roles of patients, families and professionals in cystic fibrosis

Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here’s a link to the PDF of the article: http://qualitysafety.bmj.com/content/23/Suppl_1/i90.full.pdf+html Here’s a link […]

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found on the net

New paradigm in data sharing and analysis?

A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient privacy as data is shared for research and other purposes. Googler Larry […]

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found on the net

#patientgate – digital recordings change everything

Glyn Elwyn, a very smart guy/MD who’s currently thinking deep thoughts at Dartmouth, was a participant at the undisclosed location on the undisclosed project I was involved in two weeks ago. He’s posted a real barn-burner on BMJ. Its headline: “Patientgate” – digital recordings change everything There’s a hash associated with this, which is #patientgate […]

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e-pts resources, found on the net, medical records

What to do if your doctor wouldn’t fax YOU your records…

Our member Keith Boone with a great explanation of what to do when a provider’s office gives you the “I can’t do this because of HIPAA” about giving you your records: http://motorcycleguy.blogspot.com/2014/01/knowing-who-to-talk-to-is-half-battle.html A little teaser off the blog post: I’m taking my own advice with this, and complaining to my physician office’s privacy officer, because […]

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