found on the net

 

e-patient stories, found on the net, positive patterns, reforming hc

Health Affairs – Narrative Matters: Suzanne Mintz’s article about caring for caregivers

-+*Our member Suzanne Mintz, a Family Caregiver Advocate, shares the link to her Narrative Matters article/podcast in the current issue of Health Affairs: The Double Helix: When The System Fails The Intertwined Needs Of Caregiver And Patient www.healthaffairs.org/narrative-matters/ The policy recommendations for improving care for families living with multiple chronic conditions include: Document primary family […]

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found on the net, positive patterns, research issues, trends & principles

From BMJ: The BMJ’s own patient journey – Seeks to promote patient partnership by walking the talk

-+*An interesting editorial in the BMJ (British Medical Journal) describes BMJ’s path to including patients in reviewing the articles and research published in the Journal. I hope this initiative will be successful and copied by the healthcare world. http://www.bmj.com/content/348/bmj.g3726 Our new strategy aligns with our “too much medicine” and “open data” campaigns and our support […]

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found on the net, general, medical records, positive patterns

Wall Street Journal article on getting patients involved in their healthcare

-+*An article published yesterday in Wall Street Journal The Health-Care Industry Is Pushing Patients to Help Themselves – Providers are Using Tech Tools and Personalized Approaches to Get Patients More Engaged http://online.wsj.com/articles/the-health-care-industry-is-pushing-patients-to-help-themselves-1402065145 The Institute of Medicine, which cited patient engagement as key to an effective health-care system in a 2012 report, urged doctors to use technology […]

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found on the net, positive patterns, pt/doc co-care, reforming hc, trends & principles

JAMA: Reducing the Trauma of Hospitalization

-+*Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient’s hospital stay – really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress is also toxic and can emanate from uncertainty, unforeseen events, and anxiety. […]

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e-patient stories, e-pts resources, found on the net, policy issues

Times science reporter asks: “Ever hit a paywall?”

-+*Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer “yes” and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from non-scientists. Plz email me amy@nytimes.com — Amy Harmon […]

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found on the net, net-friendly docs, policy issues, positive patterns, pts as teachers, reforming hc, shared decision making

New ACP center will foster physician-patient collaboration : Internal Medicine News

-+*4 minutes video in which Dr. Steven Weinberger describes why it is important to include patients in creating guidelines and decision-making processes. New ACP center will foster physician-patient collaboration : Internal Medicine News. (requires registration. I just used my email in the Lookup field, but you might need additional registering – free)  

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found on the net, patient networks, positive patterns, pt/doc co-care, shared decision making

From BMJ: The interdependent roles of patients, families and professionals in cystic fibrosis

-+*Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here’s a link to the PDF of the article: http://qualitysafety.bmj.com/content/23/Suppl_1/i90.full.pdf+html Here’s a link […]

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found on the net

New paradigm in data sharing and analysis?

-+*A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient privacy as data is shared for research and other purposes. Googler Larry […]

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found on the net

#patientgate – digital recordings change everything

-+*Glyn Elwyn, a very smart guy/MD who’s currently thinking deep thoughts at Dartmouth, was a participant at the undisclosed location on the undisclosed project I was involved in two weeks ago. He’s posted a real barn-burner on BMJ. Its headline: “Patientgate” – digital recordings change everything There’s a hash associated with this, which is #patientgate […]

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e-pts resources, found on the net, medical records

What to do if your doctor wouldn’t fax YOU your records…

-+*Our member Keith Boone with a great explanation of what to do when a provider’s office gives you the “I can’t do this because of HIPAA” about giving you your records: http://motorcycleguy.blogspot.com/2014/01/knowing-who-to-talk-to-is-half-battle.html A little teaser off the blog post: I’m taking my own advice with this, and complaining to my physician office’s privacy officer, because […]

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