found on the net

 

found on the net, net-friendly docs, policy issues, positive patterns, pts as teachers, reforming hc, shared decision making

New ACP center will foster physician-patient collaboration : Internal Medicine News

4 minutes video in which Dr. Steven Weinberger describes why it is important to include patients in creating guidelines and decision-making processes. New ACP center will foster physician-patient collaboration : Internal Medicine News. (requires registration. I just used my email in the Lookup field, but you might need additional registering – free)  

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found on the net, patient networks, positive patterns, pt/doc co-care, shared decision making

From BMJ: The interdependent roles of patients, families and professionals in cystic fibrosis

Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here’s a link to the PDF of the article: http://qualitysafety.bmj.com/content/23/Suppl_1/i90.full.pdf+html Here’s a link […]

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found on the net

New paradigm in data sharing and analysis?

A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient privacy as data is shared for research and other purposes. Googler Larry […]

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found on the net

#patientgate – digital recordings change everything

Glyn Elwyn, a very smart guy/MD who’s currently thinking deep thoughts at Dartmouth, was a participant at the undisclosed location on the undisclosed project I was involved in two weeks ago. He’s posted a real barn-burner on BMJ. Its headline: “Patientgate” – digital recordings change everything There’s a hash associated with this, which is #patientgate […]

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e-pts resources, found on the net, medical records

What to do if your doctor wouldn’t fax YOU your records…

Our member Keith Boone with a great explanation of what to do when a provider’s office gives you the “I can’t do this because of HIPAA” about giving you your records: http://motorcycleguy.blogspot.com/2014/01/knowing-who-to-talk-to-is-half-battle.html A little teaser off the blog post: I’m taking my own advice with this, and complaining to my physician office’s privacy officer, because […]

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found on the net

Peer-to-peer health care is a slow idea that will change the world

“The most exciting innovation of the connected health era is…people talking with each other.” This is the essential point of a post that is garnering some great comments on my personal blog. I weave together concepts I developed in my work at the Pew Research Center and on this blog and I’d love for the e-patients.net […]

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found on the net

Cleveland Clinic To Give Patients Full Access to Data

Healthcare IT News posted a detailed story about how the Cleveland Clinic plans to roll out its new MyChart EMR to give patients complete access to their health records by the end of 2013. According to the article, the Cleveland Clinic believes this move is “the right thing to do because it will give patients […]

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e-patient stories, found on the net, social media

Lisanne St Onge Klute: The Power of Social Healthcare; Becoming an Empowered Patient and Surviving a Cavernous Malformation of the Brainstem

This guest post was written by Lisanne St. Onge Klute and originally appeared on The Story of iPatchman, a blog for e-patients with brain tumors. It is a great example of the power of social media for helping e-patients find the best treatment. Thanks to Akiva Zablocki, the blog’s editor and founder, for bringing Lisanne’s […]

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found on the net

Fwd: [New post] Does scientific misconduct cause patient harm? The

Important quick update – pardon the lack of formatting – I’ll try to clean it up later – ———- Forwarded message ———- From: Retraction Watch Date: Tue, Feb 19, 2013 at 4:22 PM Subject: [New post] Does scientific misconduct cause patient harm? The case of Joachim Boldt To: dave@epatientdave.com Does scientific misconduct cause patient harm? […]

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e-patient stories, found on the net, news & gossip, positive patterns, reforming hc, research issues, trends & principles

Health Affairs Patient Engagement Edition – with videos and commentary

The Health Affairs February 2013 issue is titled “New Era of Patient Engagement” and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here’s a short extract from the blog post. It’s worth reading, it has other interesting tidbits. The briefing was […]

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