Society for Participatory Medicine
e-patients.net blog
found on the net
found on the net, positive patterns, pt/doc co-care
Patient Engagement shows up big in special WSJ section on Healthcare Innovations
Thanks to SPM co-founder Joe Graedon of PeoplesPharmacy.com for this note about today’s special section in the Wall Street Journal on healthcare innovation. (Some of the content requires a subscription, but you can register for 8 weeks free.) Joe’s note, with additions…
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A Season in Hell
Author Mark Dery’s eloquent essay on his hospitalizations for cancer and complications is clearly one of the best – and most disturbing – patient stories we’ve read. [Link]
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Health 2.0 Tools: Recommendations from a Net-Friendly Doc
This week in ScienceRoll, Dr. Bertalan Meskó blogs about several links that the e-patient community will find interesting: IBM Clinical Genomics Helps with Clinical Decision Making Haifa, Israel has developed a new clinical decision support tool that correlates a patients’ unique disease profile against various clinical guidelines and a wide range of previously acquired clinical [...]
Read Moree-pts resources, found on the net, JoPM
JoPM: “Making Every Second Count” at the Doctor’s Office
Co-Editors-in-Chief Joe and Terry Graedon tell patients how to get the most out of today’s all-too-brief medical office visits in the April editorial of the Journal of Participatory Medicine. “Making Every Second Count – What We Can Do As Patients” complements JoPM’s March editorial, which tackled the time problem from the physician perspective.
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The DIY Clinical Trial – Health Blog – WSJ
When Medicine Really Gets Personal: The DIY Clinical Trial – Health Blog – WSJ http://blogs.wsj.com/health/2012/03/30/when-medicine-really-gets-personal-the-diy-clinical-trial/
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Consumer Reports: Medical devices are rarely tested
Consumer Reports notes that medical devices are rarely tested to determine whether they’re safe. Consumers Union’s Safe Patient Project is gathering stories from patients who’ve had a problem with an implant or a medical device. The Project is hosting a Twitter chat on the subject of medical device safety March 30 at 1pm ET; hashtag [...]
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The BRCA patents, the Supreme Court and Empowered Healthcare Consumers
SPM member Eve Harris, on her “Healthy Piece of My Mind” blog, has a potent post on yesterday’s Supreme Court decision about the BRCA1 and BRCA2 patents held by a private company. The patents have restricted patients’ and families’ access to screening tests. Excerpt: Although at least 90 percent of the time breast cancer is sporadic, these two [...]
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Hugo Campos: compelling 3 minute video (Medicine X promo video)
Beyond question, the “gimme my damn data” rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his call to action, for patients to have access to their [...]
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“Physicians, Patients and the Internet”: good article in Physicians Practice magazine
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s Advocate is prominently featured, along with data from the Pew Internet and American Life project and [...]
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A psychiatrist touts self-care for patients and clinicians
The Journal of Participatory Medicine has published “An Introduction to Self-Care,” a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her communication with her patients in ways that enables them to engage more effectively in their care.
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