general

 

e-pts resources, general, medical records, policy issues, pt/doc co-care, reforming hc, trends & principles

#NoMUwithoutME: Primary School Edition

-+*        Created using Bitstrips. Text engine: Up Goer Five, “Can you explain a hard idea using only the ten hundred most used words? It’s not very easy.” Bottom line: When you go to the doctor, any doctor, always ask for your records. Ideally, electronic versions of your records that you can look […]

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general, policy issues, reforming hc, research issues

PHI Data Breaches May be Increasing, But It’s Not Impacting Our Sharing

-+*According to a new study in JAMA, data breaches into people’s protected health information (PHI) records are increasing: “[The] study that found almost 30 million health records nationwide were involved in criminal theft, malicious hacking or other data breaches over four years,” notes the AP reporting on the study. That’s a lot of data theft. […]

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general, JoPM, news & gossip, reforming hc

“Lighting Goes to Ground”: Peter Elias responds to Paul Levy in JoPM

-+*Perhaps it’s time for an argument about how we’re doing this. Many of us in the Society for Participatory Medicine have long noted that what we’re up to here is nothing less than full-bore culture change. In my own speeches I often note that culture is the set of shared beliefs about what’s possible and expectations […]

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e-patient stories, e-pts resources, general, net-friendly docs, positive patterns, pts as teachers

Regina Holliday’s whooping cough story in PharmaTimes: “Treat us as partners”

-+*SPM member/legend Regina Holliday, a powerful force for grass roots empowerment and creator of The Walking Gallery of Healthcare, got whooping cough (pertussis) this winter, despite having been vaccinated just a few years earlier. The UK magazine Pharma Times interviewed her for their inside-back-cover feature in the current issue. She details how she took advantage […]

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general, policy issues

Accountable Care: Transparency of Fees Is Mandatory

image of HIPAA form

-+*Participatory medicine and healthcare system transparency warrior Cyndy Nayer put this up on her blog this week, and we’re re-posting it here because it’s a message that’s got to spread. A personal account of a transaction that went very badly, and rules of Health Reform were not followed In my surveys and seminars, physicians tell me […]

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Leveraging Technology to Improve Health

-+*Providing apropriate health care is a challenge in remote areas of developing and developed nations, where skilled professional health personnel and facilities are limited. However, e-health, with tools to redesign care models around the common needs of discrete patient populations, is saving lives every day, and serving as a spring-board for further progress. I spoke […]

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general

Partnering with Patients: From Theory to Practice

-+*Patients have a unique expertise that is often overlooked. The day-to-day life experiences of a patient and the wisdom they gain as they navigate their healthcare journey are invaluable. In fact, that expertise is a key driver in helping to shape the future of healthcare. However, that expertise is often missing at key medical conferences […]

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general, news & gossip, patient networks, positive patterns, pt/doc co-care, reforming hc, Stanford Medicine X, trends & principles

Big BMJ supplement on Patient Centred Care – with many SPM and MedX voices

-+*This is a great week for SPM, for our colleagues at the Stanford Medicine X conference, and for everyone else who’s been working for years to shift medicine’s thinking about the role of the patient: Yesterday the BMJ (formerly British Medical Journal) released a big, 21 article “Spotlight” supplement on “patient centred care.” The print edition is due out tomorrow, […]

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general, pts as teachers, Why I joined, Why PM

on the complexity of problems and ePatients as innovators

-+*One of our Society’s best kept secrets is the composition of our membership. And lately, some of my best collaborations are coming out of conversations with fellow members. Last week, as I frenetically packed for a trip, I was chatting on the phone with our own e-Patient Dave. We were talking about the Movement, some […]

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general

Join @HurtBlogger’s 48-hour “live tweet my chronic life”

-+*LADIES AND GENTS, YOUR ATTENTION PLEASE. The famous @HurtBlogger, chronic pain patient Britt Johnson, has announced that she will LIVE TWEET 48 hours of “her chronic life,” MONDAY AND TUESDAY, Feb. 2-3. She has no idea what will happen – might be ordinary, might be nasty. (Long ago the radical group The Last Poets sang […]

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