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Evidence! New S4PM Survey Shows People Want to Collaborate with Their Doctors and Co-Produce Their Clinical Data

A fundamental precept of participatory medicine is that health care should not be a spectator sport—it’s best practiced in a participatory manner. This requires engagement from both the patient and the clinician. Yet the typical behavior of health encounters is not that. Too often, physicians still refuse to openly communicate, share information with patients, and […]

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John Q. Sherman Award in Patient Engagement: Nominations Open

Our Society for Participatory Medicine is a partner with EngagingPatients.org. Founded in 2013, Engaging Patients is particularly focused on the communication aspects of participatory medicine. They asked us to share this announcement.

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2016: Opportunities and Challenges in Health Care

In 2016, mHealth technology will occupy center stage in transforming clinical care and clinical research.  Smartphone-linked wearable sensors will turn science fiction into reality as these mobile diagnostic tools provide the in depth information that enables    patients and clinicians to experience more accurate, continuous streams of information that will help them make better informed health […]

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general, hc's problem list, medical records, policy issues

Individuals’ Rights to Their Health Information: The Federales Awaken

A long time ago (in internet years), the original HIPAA regulations were promulgated. (The final Privacy Rule was published in 2000.) They’ve been tweaked and updated over the years, most notably in the “mega-reg” promulgated a few years  back in order to implement the updates included in the HITECH Act. For purposes of the present […]

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general, key people, positive patterns, reforming hc

Regina Holliday and the Walking Gallery are in AMA Journal of Ethics

One sign of a movement’s progress is when the establishment takes notice. This one’s a biggie: Regina Holliday’s Walking Gallery of Healthcare (Facebook) is in the January 16 edition of the AMA Journal of Ethics. A five page article! Click the image to view it. We’ve said since the founding of our society that participatory […]

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Alternative Choices for Healthcare: What are the Options?

I was at dinner with friends recently when I noticed that my right thumb was red, swollen and painful.  One of my friends is a biochemist and instructed me to immediately soak the finger in hot water.  I continued our social evening dipping my right thumb in and out of a cup of boiling water. […]

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general, hc's problem list, reforming hc

When no other feedback channels exist, the Patient Advocate becomes a single point of failure

This blog welcomes guest posts from SPM members on relevant topics. One of our Society’s newest members, Susan Cournoyer, is a tech industry analyst, and is familiar with the concept of systems that are well designed or weakly designed, e.g. with a “single point of failure” – a single item that, if it breaks, makes […]

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KevinMD picks up SPM’s “The truth about that mug” post. Engage.

Funny how a complex cultural discussion can get triggered by something as simple as a coffee mug. In our work to change healthcare’s beliefs about the patient-clinician relationship, nothing has had greater impact in less time than our post two weeks ago The truth about that “your Googling and my medical degree” mug. In one week it became one […]

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Why the Google mug leaves such a bitter taste

Guest post by SPM member Katherine Kelly Leon @KatherineKLeon of the famous “SCAD sisters,” spotlighted in this 2011 post. This is about the “Your Googling” mug many of us discussed last week. Coffee mugs are like totems, spiritual items that empower us. Many of us have a favorite mug that helps us feel strong enough […]

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“Where can I get that mug???”

You can’t make this stuff up. One of our most-commented posts ever was Monday’s The truth about that “your Googling and my medical degree” mug, about the coffee mug that went viral on Facebook this week. Well, some docs saw it and emailed, asking where to buy one! Here’s the answer:  

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