Society for Participatory Medicine
e-patients.net blog
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e-pts resources, general, PM Tech
Katie Matlack: iOS medical peripherals: convenient and connected
This guest post from Katie Matlack (reposted from the free site Software Advice) launches a new section of e-Patients.net: “PM Tech.” This special branch of e-patient resources is gaining importance as smartphones and tablets become ever more mainstream. Devices that were once just toys for techies are now the favorite tools of many ex-technophobes — [...]
Read Moregeneral, positive patterns, research issues, trends & principles
Opening the Door to Closeted Science
NOTE: We’re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she’s continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of us. Only in the past six months did [...]
Read Morefound on the net, general, shared decision making
Peter Elias: Empowerment and collaboration
Guest blogger Peter Elias, MD, a family physician, raises some interesting questions about the nature of patient empowerment and explores its implications regarding patient-physician collaboration. This piece originally appeared on the author’s blog, PeterEliasMD (personal observations and perspectives. I was struck last week by a remark in a discussion of patient-centric care: “…patient empowerment is [...]
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Open knowledge saves lives. Oppose H.R. 3699!
Note: Although currently not a member of the SPM, I have been involved, since its inception, with Tom Ferguson and others, in the creation of the e-patients white paper . I am also one of the co-founders of the SPM and one of the volunteers who created the infrastructure and policies of JOPM, an Open [...]
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Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
Follow us on Twitter (@S4PM), Facebook, and LinkedIn! Here’s how to become a member, individual or corporate. Our publications: Our blog is e-patients.net. Subscribe via RSS or email, tweets etc. Our open-access journal is the Journal of Participatory Medicine (Twitter: @JourPM) “Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which [...]
Read Moregeneral, hc's problem list, medical records, policy issues, reforming hc, understanding statistics
Fred Trotter: Data, damn data, and statistics
Why does this blog use the word “damn” so often? A search produces a whopping 38 hits, such as: Fools! Damn fools! And Medical Science (Right, Santa??) Atlantic: Lies, Damned Lies, and Medical Science “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation Lies, Damn Lies And Statistics: Collective Statistical [...]
Read Moregeneral, medical records, trends & principles
Nancy Finn: Personalized medicine and participatory medicine intersect
There’s no stopping an idea whose time has come. SPM member Nancy Finn (@NFinn8421), in the process of her own odyssey as a health care thinker, had an epiphany that strongly echoes the principles of the growing P4 Medicine movement (“predictive, personalized, preventive, and participatory”). The days of “one size fits all” medicine appear to [...]
Read Moregeneral, hc's problem list, policy issues, shared decision making
For some people, it’s still 1994
Here’s a question which inspired me today, received via email from Christie Silbajoris, director of NC Health Info: My library is rethinking its provision of services to the public. We’ve got a history of going beyond what the average academic health sciences library provides in this area but in this age of budget cuts (and [...]
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.5 x .5: Deconstructing Margolis
As often happens, a Susannah Fox post has led to lingering questions. This time I’ve figured out what I want to say.:-) Last week, in a side note on her World AIDS Day post, she inserted this: … Let’s review the basic math of health services delivery in the U.S., beautifully, devastatingly summarized by Peter [...]
Read Moree-pts resources, general, Why I joined
Kathy Kastner: Why I joined is not why I’ve stayed
Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words “Participatory Medicine” I felt fully in synch, even without delving into its practical day-to-day application(s). I heard e-Patient Dave and Danny Sands speak and I was energized by the [...]
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