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How Data Registries Help with Full Information at the Point of Care

The practice of medicine is shifting from episodic patient care to care focused on addressing many broad-based, unique, sometimes esoteric health conditions. Fueling this transition is a new focus on patient reported outcomes and health data registries that aggregate a patient’s information in one central database where it can be accessed by patients, clinicians, and […]

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end of life, general, Patient Conference Participation, positive patterns

e-Patients Drive the Conversation at CCCC’s 9th Palliative Care Summit

This post by SPM member MaryAnne Sterling is a thrilling sequel to our ongoing posts about CCCC (an organizational member of our Society) and its support for e-patients at their annual summit. MaryAnne is CEO of Sterling Health IT Consulting. She’s a healthcare transformer and Alzheimer’s activist whose motto is: no family caregiver left behind.  The 9th Palliative […]

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Join SPM Newsletter Team as Editor and Bring Real News to Members!

The Society of Participatory Medicine is currently searching for a Newsletter Editor. Is that you?? The SPM Newsletter is an important communication mechanism. The goal of the Newsletter is to inform members about current events, provide updates on SPM activities, and share news felt to be relevant for members and supporters. The Newsletter Editor plays a critical role in […]

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Our Journal of Participatory Medicine: an update, current metrics, how you can help

SPM president Joe Ternullo, formerly of Partners Healthcare, sent this letter to our members this week. It will also be posted as an editorial on the Journal’s site. Our Journal, begun as a grass roots initiative at the Society’s formation, is a crown jewel. It was the first peer-reviewed publication to focus exclusively on patient empowerment, […]

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Shared Decision Making in Imaging: How Should Patients and Physicians Discuss the Costs of Care?

The Society for Participatory Medicine is pleased to announce that we will be partnering with the American College of Radiology to present an important topic in healthcare at the next Learning Exchange, which will take place on April 19, 2017, 2-3PM EST.  Join us as we share tips, data and best practices that can empower you […]

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general, pts as teachers, trends & principles, Why PM

Service Agreements Among Friends and Colleagues

I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in clarifying expectations and accountabilities: much effort invested to reach consensus, always […]

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general, pt/doc co-care, trends & principles

Quiz: When was “Enriching the relationship by inviting the patient perspective” published?

Do not go look this up. I’ll post the answer tomorrow. We on this blog know Dr. Tom Delbanco as, among other things, the “father” of OpenNotes, along with “co-parent” Jan Walker, RN MBA. (For a history lesson, Tom’s also the lead author on the wonderful 2001 paper “Healthcare in a Land Called PeoplePower,” which […]

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general, positive patterns, pt/doc co-care, reforming hc

Dell Medical School and the Future of Care

In 2009, along with several physicians, patients and health activists, I helped form the Society for Participatory Medicine, a nonprofit promoting “a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.” I was drawn into discussions about […]

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Diabetes patient leaders: apply by 2/15 for fully funded #MasterLab Leadership Institute

Now THIS is what we call #PatientsIncluded. Twenty patient leaders will be fully funded to attend a new “MasterLab Leadership Institute” in the San Francisco bay area March 31-April 2. Click here (or the graphic above) to learn more and apply by next Wednesday, Feb 15. (They’ve been promoting it for weeks – this post is a late […]

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end of life, general, Patient Conference Participation, positive patterns

Apply by 1/23: PCORI grant to fund e-patients at palliative care summit!

Intro note by e-Patient Dave: What a great development!  CCCC is an organizational member of our Society, and last year we blogged CCCC conference announces inaugural class of palliative care e-patients, and now, even better news: e-patient participation is getting formal support through a PCORI grant! I spoke at last year’s event, and as I said in my […]

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