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OpenNotes on stage at live Washington Post event

Tuesday morning in Washington, the Post hosted a 2-1/2 hour event on improving healthcare, with numerous speakers on several topics. Of special interest to SPM is this 26 minute segment that includes OpenNotes, which we’ve often written about. OpenNotes director Tom Delbanco is one of the three speakers. He describes the historic origin of OpenNotes and […]

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general, medical records, policy issues, pt/doc co-care, reforming hc, shared decision making

Just Say “No” to Medicare’s MACRA Tokenism

On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an article entitled, “You Won’t Believe What Medicare Just Did on Patient Engagement!” In it, I showed how the long-awaited draft […]

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Fighting Cybercrime: One Hacker at a Time

Computer Crime is the misuse of a computer or associated electronic networking system in order to commit illegal and unlawful acts. Computer crimes range from the illegal use of the internet to the unlawful accessing of information stored in computer systems.  In 1984, my husband Peter Finn, who is an attorney, and I wrote an […]

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Cancer: What’s Happening in the Lab that will Change Diagnosis and Treatment?

When a patient receives a diagnosis of cancer it is life changing. Even after treatment and assurance that you are in remission, the cancer threat is never far away.  Every time you go for a screening, the fear returns to haunt that maybe this time they will find additional tumors or cells that are not […]

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“Extremis”: new Netflix documentary on end of life with Dr. Jessica Zitter

We’ve often written here about palliative care and end of life. (The two are not the same: you can have palliative care without having decided the end is near.) They’re, in a sense, the ultimate expression of patient-centered care, forcing the question: who gets to say what’s the right thing to do? One of SPM’s newest […]

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e-pts resources, general, reforming hc

Curiosity Got These Cats Their Health Data – from GetMyHealthData

Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data – it’s yours! Here’s the whole GIF-rich party. Cats have nine lives to figure out how to get their health data, but you don’t have that kind of time.  Here are […]

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e-pts resources, general, reforming hc

A hackathon for Open Access?? Check it out!

We’ve often written here about open access medical literature (freely available) vs “paywalled” journals. It’s a controversial subject, and this guest post is about an idea I’ve never heard of: a hackathon to explore the subject. (In the cartoon, “impact factor” refers to another controversial subject: how impressive science considers a journal to be.) Here’s the […]

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general, reforming hc, trends & principles

Pharma TV ads: Film at 11

SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, “Patient Leaders Want To Kill Pharma TV Ads, Right Now,” at the 2016 ePharma Summit in New York last week (February 29 through March 2). This was the first time a group of […]

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Meet Donna Cryer, new co-chair of SPM

At 10 ET today (Feb 25) Donna will be a guest at the White House Precision Medicine Initiative, with several other members of our Society. Watch it on livestream. See also our post on the PMI event a year ago by then-president Nick Dawson. I’m thrilled to announce that after seven years as founding co-chair […]

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Join the #ScopeScope, March 1, to help Fight Colorectal Cancer

This is a hoot. I say this as someone who first blogged in 2008 about this process. On Tuesday March 1, Mayo Clinic will be streaming video of a colonoscopy, live on Periscope, in a broadcast they’re calling The #ScopeScope. Lee Aase, head of the Mayo Clinic Social Media Network, has volunteered to be the patient. […]

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