general

 

general, reforming hc

SPM member & husband try to get care from one of the “best systems in the world.” #Fails.

Sunnie Southern is an avid activist for better care, a proactive patient (very responsible), a long-time member of our Society for Participatory Medicine, and a good friend with an irrepressibly bright disposition. As I often say, “I’ve never seen anyone with a more truthful first name.” So when she posted this publicly today on Facebook, […]

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e-pts resources, general, positive patterns, pts as teachers, trends & principles

From the UK: “Habits of an Improver”

We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a patient or carer; some of us, after […]

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general

Closing the Gaps in South African Health

Guest post by SPM member Vanessa Carter. See bio at end. In many countries globally, the e-Patient revolution has raised many significant questions about the role of empowered patients in an integrated health system, particularly with expanding access to Information and Communication Technologies (ICTs). South Africa is still experiencing extensive gaps in our digital divide. […]

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How Data Registries Help with Full Information at the Point of Care

The practice of medicine is shifting from episodic patient care to care focused on addressing many broad-based, unique, sometimes esoteric health conditions. Fueling this transition is a new focus on patient reported outcomes and health data registries that aggregate a patient’s information in one central database where it can be accessed by patients, clinicians, and […]

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end of life, general, Patient Conference Participation, positive patterns

e-Patients Drive the Conversation at CCCC’s 9th Palliative Care Summit

This post by SPM member MaryAnne Sterling is a thrilling sequel to our ongoing posts about CCCC (an organizational member of our Society) and its support for e-patients at their annual summit. MaryAnne is CEO of Sterling Health IT Consulting. She’s a healthcare transformer and Alzheimer’s activist whose motto is: no family caregiver left behind.  The 9th Palliative […]

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Join SPM Newsletter Team as Editor and Bring Real News to Members!

The Society of Participatory Medicine is currently searching for a Newsletter Editor. Is that you?? The SPM Newsletter is an important communication mechanism. The goal of the Newsletter is to inform members about current events, provide updates on SPM activities, and share news felt to be relevant for members and supporters. The Newsletter Editor plays a critical role in […]

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Our Journal of Participatory Medicine: an update, current metrics, how you can help

SPM president Joe Ternullo, formerly of Partners Healthcare, sent this letter to our members this week. It will also be posted as an editorial on the Journal’s site. Our Journal, begun as a grass roots initiative at the Society’s formation, is a crown jewel. It was the first peer-reviewed publication to focus exclusively on patient empowerment, […]

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Shared Decision Making in Imaging: How Should Patients and Physicians Discuss the Costs of Care?

The Society for Participatory Medicine is pleased to announce that we will be partnering with the American College of Radiology to present an important topic in healthcare at the next Learning Exchange, which will take place on April 19, 2017, 2-3PM EST.  Join us as we share tips, data and best practices that can empower you […]

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general, pts as teachers, trends & principles, Why PM

Service Agreements Among Friends and Colleagues

I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in clarifying expectations and accountabilities: much effort invested to reach consensus, always […]

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general, pt/doc co-care, trends & principles

Quiz: When was “Enriching the relationship by inviting the patient perspective” published?

Do not go look this up. I’ll post the answer tomorrow. We on this blog know Dr. Tom Delbanco as, among other things, the “father” of OpenNotes, along with “co-parent” Jan Walker, RN MBA. (For a history lesson, Tom’s also the lead author on the wonderful 2001 paper “Healthcare in a Land Called PeoplePower,” which […]

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