general

 

general

e-Patient alert: “Are sites like WebMD healthful?” Dive in on NYTimes debate

Thanks to @SusanCarr, the highly patient-centered editor of Patient Safety & Quality Healthcare, for this tipoff this morning. I only have time right now to post this & run out the door. Click the image to visit the piece on the Times site, but first, consider my questions below. My initial thoughts – but I haven’t had time to […]

Read More
general, Patient Conference Participation

Sips with the Society: SPM Receptions at Health 2.0 and Connected Health Summit

As the sweet days of summer 2016 start to wane, it’s time to make plans to attend key fall conferences. This year, the Society for Participatory Medicine is hosting Sips With The Society – meet and great receptions at Health 2.0 in Santa Clara and the Connected Health Symposium in Boston. If you’re attending either […]

Read More
general, policy issues, positive patterns, pt/doc co-care, trends & principles

OpenNotes hits TEN MILLION patient level

As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the same page,” is no joke: I was one of the subjects in the study, and I’ve […]

Read More
e-patient stories, general, how I became an e-patient, patient networks, positive patterns, pts as teachers, social media

Cleo Kordomenos: How My Opinion on Online Health Communities Changed

This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post.  Cleo Kordomenos is a Senior Communication Studies student at The College of New Jersey with a concentration in Health Communication and a […]

Read More
general

New data from CMS insurance claims will empower consumer choice

A patient’s ability to choose the provider they want depends largely on information – same as any other choice, right? So this blog has long praised The Leapfrog Group for its deep analysis and publication of hospital quality and safety data, through its Hospital Safety Scores service. Note that this isn’t just a “patient power” issue […]

Read More
general, Patient Conference Participation, positive patterns, trends & principles

Health 2.0: first conference to offer Patient Activist awards. Vote!

Voting ends Sunday July 31 Patient activists who attend conferences know that it’s been a long climb to get patient voices welcomed. The #PatientsIncluded movement has been around for years, making small dents, but Health 2.0 is one of the best: while they don’t provide stipends to cover travel costs, they admit patients and caregivers to […]

Read More
general

OpenNotes on stage at live Washington Post event

Tuesday morning in Washington, the Post hosted a 2-1/2 hour event on improving healthcare, with numerous speakers on several topics. Of special interest to SPM is this 26 minute segment that includes OpenNotes, which we’ve often written about. OpenNotes director Tom Delbanco is one of the three speakers. He describes the historic origin of OpenNotes and […]

Read More
general, medical records, policy issues, pt/doc co-care, reforming hc, shared decision making

Just Say “No” to Medicare’s MACRA Tokenism

On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an article entitled, “You Won’t Believe What Medicare Just Did on Patient Engagement!” In it, I showed how the long-awaited draft […]

Read More
general

Fighting Cybercrime: One Hacker at a Time

Computer Crime is the misuse of a computer or associated electronic networking system in order to commit illegal and unlawful acts. Computer crimes range from the illegal use of the internet to the unlawful accessing of information stored in computer systems.  In 1984, my husband Peter Finn, who is an attorney, and I wrote an […]

Read More
general

Cancer: What’s Happening in the Lab that will Change Diagnosis and Treatment?

When a patient receives a diagnosis of cancer it is life changing. Even after treatment and assurance that you are in remission, the cancer threat is never far away.  Every time you go for a screening, the fear returns to haunt that maybe this time they will find additional tumors or cells that are not […]

Read More