Society for Participatory Medicine
e-patients.net blog
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general, policy issues, reforming hc, research issues, shared decision making
Save the Date: PCORI’s National Patient and Stakeholder Dialogue
We encourage our readers to attend this February 27 event and help PCORI shape its agenda for clinical effectiveness research. You can find a link to their draft priorities by clicking to this page. Registration for the forum is required; please see the link in the press release below. The Patient-Centered Outcomes Research Institute (PCORI) [...]
Read Moregeneral, patient networks, pt/doc co-care, pts as teachers, reforming hc
An e-patient issues an RFP, saying what’s important to him
It’s funny how things turn out sometimes. Lately I’ve written a lot here about e-patients taking an active role at a new level in healthcare, not just engaging in their care, but actually defining what it should be. Well, wouldn’t you know it, life has provided me with a case study – myself. Last week [...]
Read Moree-pts resources, general, PM Tech
Katie Matlack: iOS medical peripherals: convenient and connected
This guest post from Katie Matlack (reposted from the free site Software Advice) launches a new section of e-Patients.net: “PM Tech.” This special branch of e-patient resources is gaining importance as smartphones and tablets become ever more mainstream. Devices that were once just toys for techies are now the favorite tools of many ex-technophobes — [...]
Read Moregeneral, positive patterns, research issues, trends & principles
Opening the Door to Closeted Science
NOTE: We’re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she’s continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of us. Only in the past six months did [...]
Read Morefound on the net, general, shared decision making
Peter Elias: Empowerment and collaboration
Guest blogger Peter Elias, MD, a family physician, raises some interesting questions about the nature of patient empowerment and explores its implications regarding patient-physician collaboration. This piece originally appeared on the author’s blog, PeterEliasMD (personal observations and perspectives. I was struck last week by a remark in a discussion of patient-centric care: “…patient empowerment is [...]
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Open knowledge saves lives. Oppose H.R. 3699!
Note: Although currently not a member of the SPM, I have been involved, since its inception, with Tom Ferguson and others, in the creation of the e-patients white paper . I am also one of the co-founders of the SPM and one of the volunteers who created the infrastructure and policies of JOPM, an Open [...]
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Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
Follow us on Twitter (@S4PM), Facebook, and LinkedIn! Here’s how to become a member, individual or corporate. Our publications: Our blog is e-patients.net. Subscribe via RSS or email, tweets etc. Our open-access journal is the Journal of Participatory Medicine (Twitter: @JourPM) “Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which [...]
Read Moregeneral, hc's problem list, medical records, policy issues, reforming hc, understanding statistics
Fred Trotter: Data, damn data, and statistics
Why does this blog use the word “damn” so often? A search produces a whopping 38 hits, such as: Fools! Damn fools! And Medical Science (Right, Santa??) Atlantic: Lies, Damned Lies, and Medical Science “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation Lies, Damn Lies And Statistics: Collective Statistical [...]
Read Moregeneral, medical records, trends & principles
Nancy Finn: Personalized medicine and participatory medicine intersect
There’s no stopping an idea whose time has come. SPM member Nancy Finn (@NFinn8421), in the process of her own odyssey as a health care thinker, had an epiphany that strongly echoes the principles of the growing P4 Medicine movement (“predictive, personalized, preventive, and participatory”). The days of “one size fits all” medicine appear to [...]
Read Moregeneral, hc's problem list, policy issues, shared decision making
For some people, it’s still 1994
Here’s a question which inspired me today, received via email from Christie Silbajoris, director of NC Health Info: My library is rethinking its provision of services to the public. We’ve got a history of going beyond what the average academic health sciences library provides in this area but in this age of budget cuts (and [...]
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