Society for Participatory Medicine
e-patients.net blog
hc’s problem list
hc's problem list, reforming hc, social media
What’s your health care dream?
#whatifhc in #TheWalkingGallery Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That’s how I see hashtags – [...]
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Medical Devices: Another take on “We want Access to our Damm Data”
Another potent guest post by SPM member Alexandra Albin, @MsAxolotl. If this doesn’t give you a sense of who is “the ultimate stakeholder” in health matters, nothing will. Remember, “patient” is not a third person word. Your time will come. A conversation on the SPM listserve was started by Joleen Chambers, @JjrkCh, a patient advocate [...]
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Star Tribune: Simple pharmacy change produces major quality improvement
We often note here that quality improvement in hospitals seems excruciatingly slow to happen, and engaged patients and families need to keep their eyes wide open, because sometimes a fix doesn’t require being a genius. For instance, see the cartoon at right – from 1999, when the Institute of Medicine’s famous report To Err is [...]
Read Moregeneral, hc's problem list, medical records, policy issues, reforming hc, understanding statistics
Fred Trotter: Data, damn data, and statistics
Why does this blog use the word “damn” so often? A search produces a whopping 38 hits, such as: Fools! Damn fools! And Medical Science (Right, Santa??) Atlantic: Lies, Damned Lies, and Medical Science “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation Lies, Damn Lies And Statistics: Collective Statistical [...]
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For some people, it’s still 1994
Here’s a question which inspired me today, received via email from Christie Silbajoris, director of NC Health Info: My library is rethinking its provision of services to the public. We’ve got a history of going beyond what the average academic health sciences library provides in this area but in this age of budget cuts (and [...]
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Lisa Gualtieri: Must waiting be inherent to medical care?
This guest post by Lisa Gualtieri originally appeared in the author’s health blog. “By the time you see the doctor, you’re either dead or you’re better,” my mother-in-law told me. She had to have multiple tests, all with long waits to get the appointments and the results, before her health insurer would allow her to [...]
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“When I became a patient, I felt my identity slipping away.”
Participatory medicine requires an empowered partnership, in which patients express their wants and pursue their goals in partnership with providers who hear them and work together. And that’s not just about the biology. In this powerful narrative, a hospital executive becomes a patient, sees what it’s like to be stripped of everything and not heard, [...]
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Two roads ahead: “I fear to be a patient” vs. “Opportunities for Patient-Clinician Partnership”
Treat yourself to 3 minutes of Don Berwick’s 2009 speech on patient-centered care, which at a certain point becomes an elegy: Now cheer yourself up with the latest article from the Journal of Participatory Medicine: “The Cancer Supportive Care Model: A Patient-Partnered Paradigm Shift in Health Care Delivery,” by Elias Anaissie and Tara Mink.
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Powerful new “Doctor becomes an e-patient” story in Journal of Participatory Medicine
Two years ago we wrote “Let’s hear it for the ‘d-patients’” — doctors who become e-patients themselves. We said “D-patients prove that patient empowerment is anything but anti-doctor. Heck, sometimes it’s a doctor preservation movement.” A new article in our Journal of Participatory Medicine provides a compelling example: A Physician’s Experience as a Cancer of the [...]
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Rest in Peace: Personal Health Records (PHRs)
While doing some research the other day on personal health records (PHRs), I came across this article, describing Revolution Health’s announcement — without much media attention — about dropping its PHR at the beginning of 2010. (Disclosure: I worked for Revolution Health in 2005-2006, and now have a business relationship with the company that acquired [...]
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