hc’s problem list

 

hc's problem list, medical records, news & gossip, policy issues

An angry veterinarian says “I don’t understand…” (Reprise five years later)

It’s five years since the ARRA/HITECH legislation was passed that pretty much mandates that American medicine has to computerize. Policies created since then have been enormously effective at moving adoption forward. We still need vast improvements of the user interface, but things are moving in the right direction. Five years ago I myself was trying […]

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hc's problem list, medical records, policy issues

“Imagine someone had been managing your money and you thought you weren’t qualified.” (Reprise five years later)

Five years ago last week, I posted this. A lot has changed since then. Next week I’ll be re-posting what happened next, back then. The subject is still just as valid, so do think about it. Here’s a “reprint”: _________________ I want you to think about something for a few days. Imagine that for all […]

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hc's problem list, patient networks, policy issues, pts as teachers, reforming hc, shared decision making, trends & principles

e-Patient Manifesto: “Patients Included”

In 1517, Martin Luther nailed his “Ninety-Five Theses” to the wooden doors of Wittenberg Cathedral, sparking a global reformation of the Christian faith that’s still going on today. In the 1950s and 1960s Dr. Martin Luther King Jr. worked to drive inclusion for all in a society that had long separated people of different backgrounds. […]

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e-patient stories, general, hc's problem list, policy issues

Screw HIPAA: Here’s a Look at My Doctor’s Office

A few months ago, I complained about the layout of one of my doctor’s offices. There’s a rough layout drawing of the office waiting area to the side there. I’m standing just in front of the number 1, while people are sitting along the wall behind me. Do you see the problem? After I identify […]

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hc's problem list, research issues

NY Times: “Do clinical trials work?”

Just a quick note on something I’m happy to say we’ve been hollering here for years: A lot of what passes for “evidence” from peer reviewed medical journals is scientifically weak, and has never been verified by an independent lab. That means to be scientific, e-patients and their physicians must be cautious about interpreting any published result: […]

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hc's problem list, policy issues, research issues, shared decision making

Raw data now! Open science! Sign Ben Goldacre’s #AllTrials petition

Last year during TEDMED 2012, in “The cancer at the core of evidence-based medicine”: Ben Goldacre on the missing data, we covered the vitally important news that a lot of medical research has gone missing, leading to a severely corrupted foundation for evidence-based medicine. If you haven’t read that quick post with 6 minute video interview, please […]

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end of life, hc's problem list, key people

Caregivers, please share your stories

Caregivers, please share your stories

The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a neighbor, either now or in the past, please consider writing […]

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hc's problem list, positive patterns, reforming hc

What if health care…?

For over a year I’ve been the accidental manager of a community garden. All I did — I swear — is point out an open plot of land and people started pitching in, planting, asking friends to join them. All of a sudden we’d transformed a bare patch into something beautiful. I thought for sure […]

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found on the net, hc's problem list, policy issues

What if we treated substandard *info* like substandard drugs? (Riff on an IOM report)

Major typo fix, 3:23pm – “they’re giving” is not same as “they’re given”! Sorry. This note arrived today from the Institute of Medicine. I’m in DC at the moment, at a big briefing by the Health Affairs policy journal about patient engagement, and a key issue keeps coming up: the problems that happen when patients […]

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e-patient stories, hc's problem list

Cristin Lind: My new litmus test for patient-centeredness

Guest blogger Cristin Lind is an e-caregiver and e-patient; her personal blog is called Durga’s Toolbox. When trying to find a definition for what real patient- or family-centered care looks like, I can easily to get caught up in inspirational jargon. But a recent visit for my biannual mammogram (fun!) helped me give a very […]

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