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Rheumatoid e-Patients Share the Spotlight at Medical Conferences

by Kathleen O'Malley | Feb 28, 2012

The Journal of Participatory Medicine has published a narrative by Kelly Young entitled “Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology.” Young describes how the...

A physician who really understands patient-centered care

by Kathleen O'Malley | Dec 29, 2011

The Journal of Participatory Medicine has just published “The Patient Will See You Now,” a thought-provoking and rather moving narrative by John Krueger, MD. In telling his own story of becoming and maturing as a physician, the author persuasively argues...

Kenneth S. Spriggs: The Benefits Of Visualizing Your Medical Data

by Kathleen O'Malley | Nov 21, 2011

Guest blogger Ken Spriggs talks about how he made sense of his medical data by creating a graphic electronic health record, the DIYEHR. [Update 11/25: the data visualization that Ken created is so extraordinary that we’re adding it here, four days after the...

Elaine Schattner: Don Berwick, Head of CMS, on the Value of Patient-Centered Care

by e-Patient Dave | Nov 16, 2011

Usually we talk about participatory medicine at the level of the individual care relationship, but increasingly we’re seeing the need to “Design and create a safe, decent, patient centered healthcare system.” And as we start to get real about that –...

Kari Ulrich: Experienced from both sides of the bed

by Kathleen O'Malley | Nov 11, 2011

This guest post by Kari Ulrich, RN, originally appeared in a fibromuscular dysplasia e-patients’ blog. The November 2011 issue of Reader’s Digest reads in big, bold print, “50 Secrets Nurses Won’t Tell You.” Articles like this create fear...

Next “doctor as e-patient”: Howard Luks, MD

by e-Patient Dave | Oct 27, 2011

We’ve sometimes written about doctors as e-patients. (There are a lot!) Here’s the next. SPM member Howard Luks MD, orthopedist, had some symptoms. He spoke to his physician and GI doc, who gave him pills. It didn’t make sense to him. So he did what...