end of life, found on the net, general, JoPM, others' e-patient stories, patient networks, social media

The unexpected power of storytelling

Kathleen O'Malley | September 21, 2011

The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online group, Patricia Flowers is surprised to learn how it moved and inspired her fellow members. This article [...]

ethics, found on the net, JoPM

Case Study on ‘Autonomy in Jeopardy’ for Mental Health Patients

Kathleen O'Malley | September 13, 2011

The Journal of Participatory Medicine has published a new case study entitled “Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law.” The authors examine the problem of how to achieve patient participation in societies where people with mental illness can have their decision making power overridden by mental health [...]

found on the net, JoPM, others' e-patient stories

Kathleen O'Malley | September 7, 2011

The Journal has just published a commentary by SPM member Kathy Kastner, “My 8-Point Participatory Philosophy: What Makes Me a Participatory Patient.” The author describes the “aha moment” when she decided to become a participatory patient and shares the attributes that helped her achieve her goal — they include discipline and hard work, as well [...]

found on the net, JoPM

New Study in JoPM Uses Smartphones To Enable Healthy Choices

Kathleen O'Malley | August 29, 2011

The Journal of Participatory Medicine has just published a research paper, “Exploring Everyday Health Routines of a Low Socioeconomic Population through Multimedia Elicitations.” Participants in this novel study used smartphones to capture pictures and videos of their everyday health routines, enabling them to reflect on their choices and recognize where they can make improvements.

found on the net, JoPM, others' e-patient stories, reforming hc

JoPM book review: “Out of Her Mind”

Kathleen O'Malley | August 16, 2011

The Journal of Participatory Medicine has just published a review of “Out of Her Mind: Women Writing on Madness.” Writer Meredith Linden, who lives with bipolar disorder, describes how the selections in this book can help validate people struggling with mental illness, including herself, and how the mental health industry still needs to become more [...]

ethics, found on the net, general, JoPM, net-friendly docs, social media

Social media, patients, and physicians: a sticky wicket

Kathleen O'Malley | August 9, 2011

Social media is well established in our society and it shows much promise as a tool of patient-physician communication. But despite some cases of good and enriching rapport between patients and physicians in social media, the medical world, on the whole, is still cautiously trying to make sense of social media and how to use [...]

JoPM, medical records

JoPM: A pediatric PHR, bidirectional with the EMR, where the family owns the data

e-Patient Dave | July 11, 2011

I’m short on time so I haven’t scoured this paper in the Journal of Participatory Medicine, but even from a skim I’ll say it’s important news from the front lines. Implementing an Interoperable Personal Health Record in Pediatrics: Lessons Learned at an Academic Children’s Hospital is an early report from Lucile Packard Children’s Hospital at Stanford. [...]

e-patient stories, hc's problem list, JoPM, Why PM

Two roads ahead: “I fear to be a patient” vs. “Opportunities for Patient-Clinician Partnership”

Susannah Fox | June 17, 2011

Treat yourself to 3 minutes of Don Berwick’s 2009 speech on patient-centered care, which at a certain point becomes an elegy: Now cheer yourself up with the latest article from the Journal of Participatory Medicine: “The Cancer Supportive Care Model: A Patient-Partnered Paradigm Shift in Health Care Delivery,” by Elias Anaissie and Tara Mink.

JoPM, policy issues

New JoPM Commentary: “Healthcare: A Human Rights and Economic Justice Issue”

Kathleen O'Malley | March 8, 2011

JoPM has just published Healthcare: A Human Rights and Economic Justice Issue, a commentary by SPM member Kathleen McCaffrey Friedman. Drawing on her experiences as an empowered patient, Friedman argues: “It ultimately falls to us, the patients, to frame health care as a human right and matter of economic justice, alongside national security, public education, [...]

JoPM, research issues, trends & principles

Journal of Participatory Medicine: Top Ten Articles

Jon Lebkowsky | January 9, 2011

From the editors of our society’s journal, the Journal of Participatory Medicine: As we close out Volume 2 of JoPM, we’re pleased to look back at how the journal has grown. We published a total of 23 articles in 2010. We published our first two podcasts. In mid-September, we moved to a new publishing platform [...]