JoPM

 

found on the net, how I became an e-patient, JoPM, positive patterns, pts as teachers

Rheumatoid e-Patients Share the Spotlight at Medical Conferences

The Journal of Participatory Medicine has published a narrative by Kelly Young entitled “Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology.” Young describes how the Rheumatoid Patient Foundation evolved from her and other e-patients’ efforts to better understand their condition through online research […]

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ethics, found on the net, JoPM

New editorial series in JoPM asks the tough questions

A new Journal of Participatory Medicine tradition has just launched. Our monthly editorial series will tackle the toughest questions of participatory medicine, from both the patient and the provider side. The first installment, by Joe and Terry Graedon, is titled “Participatory Medicine: Must You Be Rich to Participate?” — read on at http://www.jopm.org/?p=2342. And by […]

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ethics, found on the net, JoPM

JoPM: A Doctor’s Remedy for Long Waits

A new article in the Journal of Participatory Medicine tackles the problem of long wait times at doctors’ offices, a leading cause of patient dissatisfaction. “Waiting Room Remedy: Doctor Pays for Delays (The Doctor’s Perspective)” by Pamela Wible, MD offers a solution that shows respect for patients, at the same time explaining why many of […]

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how I became an e-patient, JoPM, positive patterns, pt/doc co-care, reforming hc

A physician who really understands patient-centered care

The Journal of Participatory Medicine has just published “The Patient Will See You Now,” a thought-provoking and rather moving narrative by John Krueger, MD. In telling his own story of becoming and maturing as a physician, the author persuasively argues that the key to practicing patient-centered medicine is devoting time to listen to patients’ stories […]

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found on the net, JoPM

Book review takes a look at neurofeedback

The Journal of Participatory Medicine has published a review of A Symphony in the Brain, a book that offers a history and overview of neurofeedback, a type of biofeedback that aims to help patients control their brain activity.

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found on the net, JoPM

Two new JoPM articles tell one great participatory medicine success story

The Journal of Participatory Medicine has published a pair of complementary articles, one by a patient advocate and one by a physician, both concerning the story of a woman who worked tirelessly to obtain better health care for her two chronically ill and developmentally disabled sisters, and of the team of participatory clinicians who helped […]

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found on the net, JoPM

JoPM: Patient-oriented content on hospital websites

The Journal of Participatory Medicine has published a research paper entitled “Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices.” The study analyzed the content of 14 top hospitals’ websites, particularly patient-oriented features. The authors conclude that the convergence of interactive media formats with web-based […]

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end of life, found on the net, general, how I became an e-patient, JoPM, patient networks, social media

The unexpected power of storytelling

The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online group, Patricia Flowers is surprised to learn how it moved and inspired her fellow members. This article […]

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ethics, found on the net, JoPM

Case Study on ‘Autonomy in Jeopardy’ for Mental Health Patients

The Journal of Participatory Medicine has published a new case study entitled “Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law.” The authors examine the problem of how to achieve patient participation in societies where people with mental illness can have their decision making power overridden by mental health […]

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found on the net, how I became an e-patient, JoPM

The Journal has just published a commentary by SPM member Kathy Kastner, “My 8-Point Participatory Philosophy: What Makes Me a Participatory Patient.” The author describes the “aha moment” when she decided to become a participatory patient and shares the attributes that helped her achieve her goal — they include discipline and hard work, as well […]

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