key people

 

e-patient stories, e-pts resources, key people, policy issues, pt/doc co-care, shared decision making, trends & principles

On Making Patient Reviews of Physicians More Useful

I recently hosted a Google Hangout on Air entitled Patient Reviews of Physicians: The Wisdom of the Crowd? (presented by The Harlow Group LLC in association with The Society for Participatory Medicine). I spoke with Niam Yaraghi (Center for Technology Innovation, The Brookings Institution) and Casey Quinlan (Mighty Casey Media) following their interesting back-and-forth online […]

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e-pts resources, key people, PM Tech, social media, trends & principles

Tune in for Patient Reviews of Physicians: The Wisdom of the Crowd?

HB post header for HOA

Patient Reviews of Physicians: The Wisdom of the Crowd? Google Hangout On Air Hosted by David Harlow with Niam Yaraghi and Casey Quinlan Wed, Jun 24, 3:00 PM – 4:00 PM ET Presented by David Harlow (aka HealthBlawg) in association with The Society for Participatory Medicine. I am hosting a conversation with Niam Yaraghi (Center […]

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key people, net-friendly docs, positive patterns, pt/doc co-care

Guest Post by Matthew Katz, MD: E-Patients Deserve E-Doctors

Matthew S. Katz, MD, is the Medical Director of Radiation Oncology at Lowell General Hospital and a lifetime member of S4PM. He is former Chair of Communications Committee for the American Society for Radiation Oncology (ASTRO) and external advisor for Mayo Clinic’s Center for Social Media. He is co-moderator of the #radonc journal club and […]

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e-pts resources, general, key people, Patient Conference Participation, pts as teachers

Guest post by Annette McKinnon: Power Equality: Not Even on the Radar

This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid arthritisfor the past 30 years, and has a background in market research. She attended […]

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e-patient stories, e-pts resources, hc's problem list, key people, others' e-patient stories, pts as teachers, social media

Guest post by Duncan Cross: I Sent This Letter To A Doctor Who Pissed Me Off

Ordinarily we limit guest posts to current members of SPM, but this is an extraordinary case. Duncan Cross’s post illustrates so many aspects of how empowered, engaged, activated patients view their lives, and how important it is to have an effective partnerships with their medical professionals. This is exemplary – except for the physician’s rejection […]

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general, key people, medical records, news & gossip, PM Tech, policy issues, positive patterns

BREAKING: Susannah Fox is HHS’s new Chief Technology Officer

A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox​ is the new Chief Technology Officer at U.S. Department of Health and Human Services​. How amazing is that??” My comment on Susannah’s short post: “This wins my prize as the biggest government-based Mazel Tov in the history of the e-patient movement!  Bringing heart […]

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e-patient stories, e-pts resources, general, key people, patient networks, pt/doc co-care, pts as teachers

Guest post by Annette McKinnon: Power Equality: Why Is My Silo Two Miles Away?

This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid arthritisfor the past 30 years, and has a background in market research. She attended […]

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e-pts resources, key people, net-friendly docs, news & gossip, policy issues, reforming hc, research issues

NLM Director Donald Lindberg is retiring. Speak up: what’s next for the Library?

Dr. Donald Lindberg, long-time director of the National Library of Medicine, is surely the single most-quoted authority from “Doc Tom” Ferguson’s e-Patient White Paper. In almost every speech I’ve given in the past five years I’ve used Doc Tom’s quote of Dr. Lindberg in the White Paper: “If I read and memorized two medical journal articles […]

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general, key people, patient networks, positive patterns

Inaugural Emerging Leader Award from CCFA- DC Chapter for Carly Medosch

Society for Participatory Medicine member Carly Medosch and her mother Mary Jo have run the Crohn’s and Colitis Foundation of America’s Fredericksburg, VA support group for the past 6 years. Crohn’s disease and ulcerative colitis are two forms of imflamatory bowel disease (IBD) – conditions with chronic or recurring immune response and inflammation of the […]

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key people

Remembrance in New York: “Jessie Gruman, the Force”

Yesterday at the New York Academy of Medicine was the first of Jessie Gruman’s two remembrance events, which we blogged about. Here’s a view of the gathering, which was followed by a reception. It was a fitting, moving, great tour through her life, with short talks by many people who knew her: Jessie the Child, […]

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